Blog & Events, Video

TEDx La Jolla

October 17, 2011

Hi everyone ~

I recently had an amazing opportunity to participate at the TEDx La Jolla event on September 17th.  It was so much fun and talk about a room full of inspiring people!  I felt honored that they invited me to come share my story about living with chronic illness and maintaining a positive I do it and my message to others out there.

To all you families living with cystic fibrosis…we know it’s a real difficult task at times.  We are always thinking of you and would love to hear from you!  We are going to add a page featuring real life families from all over the world.  If you want to participate, please drop us a line at

Keep up the good work!

Lots of love to you all,


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