Hallmark Channel “Home and Family” Appearance

In honor of Cystic Fibrosis Awareness month, we have been working hard to gain appearances and exposure through our media channels.  Well, we got lucky!! Claire received a call from a producer of the new Emmy nominated Lifestyle show on the Hallmark Channel called “Home and Family”.  She will be a guest on the show on Wednesday, May 22nd at 10am/9am central so be sure to TUNE IN or set your DVR!

This will be a perfect opportunity to share her message of hope and spread awareness about cystic fibrosis to millions of viewers.

We would love to hear your feedback after the show – you can post comments here

 

 

 

March Promotion

photo(57)Hi everyone ~

Thank you so much for visiting our site!  We hope you were led here by our recent March promotion announcement ~ just make a donation of at least $25 below and receive a signed copy of our book “Every Breath I Take, Surviving and Thriving with Cystic Fibrosis” written by our founder, Claire Wineland and her dear friend Chynna Bracha Levin. Link to March Promo Paypal

What is the experience of a child with a life-threatening illness? It can be so hard for parents, family, and friends to understand, because the experience of serious illness is so hard to articulate. That’s why Claire Wineland’s memoir, Every Breath I Take, Surviving and Thriving With Cystic Fibrosis, is so important. With her co-author, Chynna Bracha Levin, Claire describes with precision, honesty, and a remarkable sense of humor just what it’s like to live with an illness that is so often fatal. The book is a must read for anyone who feels compassion for a child, a relative, or friend going through an intense or even life-threatening illness. Claire explains exactly what it’s like to live as normal a life as possible while taking care of a condition that requires constant treatment and frequent hospitalization. Yet there’s nothing grim about Claire’s journey as she describes it. Claire finds the sunny side of life and the spirituality of her experiences in ways that captivate and amaze the reader. It’s impossible to come away from the book without a renewed sense of compassion and sensitivity toward anyone suffering from a serious illness. The book is required reading for anyone—adult or child—who wants to understand how it truly is possible to survive and thrive, no matter what.

Here are some reviews and articles…looks like it’s a hit!!

Press and Reviews:
Bookpleasures.com Review by Kari O’Driscoll
Amazon.com reviews by readers
CBS News.com Article
Boston Globe Article

Thank you for your support and we hope this book makes a difference for you and your loved ones!

 

Claire Wineland, Youngest Contributor on PositivelyPositive.com

What an amazing year this has been!  Claire has recently joined a beautiful movement of getting positive messages out to the world wide web and WOW did they get a huge response.  Positivelypositive.com is such a powerful website with many beautiful people contributing stories and videos about inspiring lives, positive thinking, self love, overcoming obstacles, etc…please take a minute and check them out!  You can also join their mailing list and get a daily dose of positivity right to your inbox!

It has become a fantastic platform reaching over 1 million subscribers, where she can share about what it is like living with cystic fibrosis and the importance of remaining positive.

To see all of the videos that Claire has done for them, please visit this page:

Claire Wineland, Positively Positive’s Youngest Contributor

Claire is named The Soaring Spirit Award by Looking Beyond LA Foundation

More exciting news for 2013!  We feel like this is going to be the year where it all really Flowershappens..the first 2 years were getting ourselves established and set up and now, things are going to take off!

Looking Beyond LA is a non-profit organization founded in 1999 when 12 friends joined forces to create a committee dedicated to the awareness and enrichment of the lives of children with special needs. Every year, with the help of many generous supporters, this group of committed women have been holding events to raise funds for various organizations through ticket sales, donations, and a silent auction.  They strive to achieve their mission for children with disabilities by supporting different programs and services.

Each year, this wonderful, generous foundation awards a community member with their Soaring Spirit Award.  This person usually embodies their mission of helping children with special needs..someone who has made a difference in the lives of others and exemplifies love and service.  Claire’s dedication to making a difference in the lives of others living with cystic fibrosis caught their attention in 2012.

We are honored beyond words and are excited to accept this lovely award on March 12, 2013 at The Beverly Hills Hotel during their annual Spring Luncheon.  The award will be presented to Claire by Model/Actress Molly Sims.

We hope that this event will help spread awareness about cystic fibrosis and all the people living with this disease today. Claire’s Place Foundation is grateful to be in a position to help other families by providing Extended Hospital Stay grants as well as connecting families to support families in their area.

If you are in the Los Angeles area on March 12th, please consider attending ~ we would be thrilled to see you there! This should be an exciting and beautiful event! To view the invitation and inquire about tickets, please visit this link:  http://lookingbeyond2013.eventbrite.com/#

Thank you for all your love and support ~

Claire’s Place  Foundation, Inc.

 

Handpainted Holiday Cards

Claire’s Place Foundation Holiday Cards

‘Tis the season for year end giving ~
This year your donation can send a special message to a loved one

We have these 3 beautiful, hand painted holiday cards made by Claire Wineland in time for the holidays!  We are offering to send a personalized card to a recipient of your choice when you make a donation of at least $25.00

Scroll Down to add your selection to the SHOPPING CART

Must act before December 20, 2012

CARD “A”

4×6 Folded

“Merry Christmas and Happy New Year”
Inside: “Wishing You Health and Happiness This Holiday Season and Always”

 

CARD “B”

4×6 Folded

“Peace, Love and Family”
Inside:  “Wishing You Health and Happiness This Holiday Season and Always”

CARD “C”

5×7 Flat

“Happy Holidays”

“Wishing You Health and Happiness This Holiday Season and Always”

When you make a donation “In Honor Of” or “In Memory Of” or “A Donation Was Made in Your Name”, we will send a card to your recipient  or their family with a special message from you.

Your generous gift is sure to touch their hearts and they will be comforted by the fact that your donation will live on as we strive to help as many families and children as possible.

Donation Amount
Card Choice
Recipient Address
Personal Message for Recipient

HURRY AND MAKE YOUR TAX DEDUCTIBLE GIFT TODAY

If you do not want us to send a card on your behalf, please let us know at checkout and we will happily send the card directly to you. 

If you need a receipt for tax purposes other than the on line receipt, please send an email to melissa@clairesplacefoundation.org.
Our tax ID is 45-2453459 and we are a fully recognized 501c3

As always, thank you so much for your love and support during this holiday season and always ~

P.S. – If you missed Claire’s recent TEDx talk in Malibu, you can see the Livestream video here:  http://new.livestream.com/tedx/TEDxMalibu
Click on the Session 2 video and her talk starts at about 19minutes

An inspiring message to share with your loved ones over the holidays and perfectly sums up Claire’s view on life and her mission to be of service to other children and families living with cystic fibrosis by founding Claire’s Place Foundation, Inc.

Melissa Nordquist
Executive Director
Claire’s Place Foundation, Inc.

TEDx Malibu ~ Living Out Loud!

If you have never been to a TEDx event, now is the time!  TEDx Malibu is coming up soon and Claire Wineland is going to be a presenter.  There will be some exciting talks by people “Living Out Loud”! Save your seat today!  http://tedxmalibu.com

TEDxMalibu is taking place on 12/02/12. Our theme; Living Out Loud = LOL will feature presenters who are living with full engagement, making an impact, creating positive change and flourishing on their chosen path!
Mission

TED is a nonprofit organization devoted to Ideas Worth Spreading. Our goal with TEDxMalibu is for attendees and presenters to leave the conference driven to creatively improve our collective future.

Description

TEDxMalibu 2012: Living Out Loud = LOL, is an independently organized TED event. TEDxMalibu strives to create the unique experience found at TED, where the world’s leading thinkers and doers congregate to share what they are most passionate about. We aim to provide a platform where visionaries, breathtaking artists, and fascinating teachers will be inspired and have the opportunity to inspire others. Our goal is for attendees and presenters to leave the conference driven to creatively improve our collective future.

First Annual Texas Hold ‘Em Poker Event in Los Angeles

Claire’s Place Foundation  is proud to present its 1st annual Texas Hold ‘Em Tournament! Registration and event information  is now available by following the link below. Take a chance at being CPF’s Texas Hold ‘Em champion — you just have to beat 59 other players. Easy enough, you say? Bring it on!

Our event will feature a professional Texas Hold ‘Em poker tournament, gourmet dinner, full bar, live entertainment and a rowdy live auction!

Reduced price tickets available for guests to come enjoy the entertainment and dinner without playing in the tournament.

Should be a great time!  Hope to see y’all there!

EVENT INFORMATION AND REGISTRATION LINK

California Families – Have you heard of CoachArt?

Hello everyone ~

We recently received such an amazing gift and wanted to share with all you other California families living with cystic fibrosis.  CoachArt is a foundation based in California, that helps chronically ill children and their siblings enjoy activities with mentors such as piano lessons, horseback riding, soccer, special art classes, photography lessons, etc.  We were introduced to them at our hospital on one of Claire’s long stays – they had a representative drop off an application and we submitted it promptly.  Within weeks we got a phone call from a volunteer trying to find out a little more about Claire and what she was interested in.  We finally decided as a family that piano lessons were something she has always wanted but we just were never able to fit it in to our tiny budget.

CoachArt went to work to find  us a lovely piano teacher in our area, willing to provide her services as a mentor through CoachArt.  So far, Claire has gotten 3 lessons and we are amazed at how quickly she is able to pick it up.  Without CoachArt’s help, we never would have been able to explore this as a creative outlet for her!

If you are in California, we encourage you to look them up!  We are very grateful for their services and can really tell that the volunteers at CoachArt love these kids and offer their services out of kindness and sincerity.

Thank you CoachArt!

CoachArt improves the quality of life for children with chronic and life-threatening illnesses and their siblings by providing free lessons in the arts and athletics.  To enroll a child, become a volunteer or to donate, please visit them at www.coachart.org.

“Flash Mob for Claire” wins an Emmy Award

Hi everyone ~

If you missed the special that Fox 11 News LA did last year on Claire, her mission and our flash mob, please take a second and watch it here:
Emmy Award Winning Fox 11 Special “Flash Mob for Claire”

Television and Media Emmy for "Best Medical Piece"

The story was done by a dear friend and supporter of Claire’s Place Foundation, Inc, Producer Gerri Shaftel Constant and her team at Fox 11 News.  They tell the story of Claire’s journey with cystic fibrosis, surviving a near death experience and coming out of that with a mission imprinted in her mind…to help others living with cystic fibrosis.  This is the story of the why and how Claire’s Place Foundation began and the flash mob we did to kick it off.

We were so happy with the way it turned out.  Gerri and the entire news team put a lot of love and hard work into creating a sincere and touching story.  The integrity of the piece resonated throughout the media circles and culminated in an Emmy Award for “Best Medical Piece”!

What an honor to work with this team of dedicated individuals..they aim to bring uplifting, positive stories to the community and tell them with integrity and sincerity.

Thank you so much to all of you who participated in our flash mob and brought the magic to life!

Much love,

Melissa and Claire