Blog & Events

Riki’s Ride 17 Starts TODAY ~ Let’s Show Him Some Support

June 1, 2017

Starting today, June 1st, 2017, Riki Rachtman will be riding his motorcycle through 48 states without a chase vehicle, producer or any real plan. Riki’s Ride 17 is all about raising donations & spreading awareness for us, Claire’s Place Foundation, which provides help to children and young adults diagnosed with Cystic Fibrosis, as well as their families, for the purpose of improving their quality of life. What a ROCKSTAR!

We are so excited to have his support and would love it if our followers could show him that we are behind him 100%.

Here are 5 ways you can get involved:

  1.  Make a donation directly to Riki’s Ride here:  DONATE
  2. Order a custom Riki’s Ride 17 T-shirt by Hot Leathers here:  T-Shirt Order 100% of proceeds go directly to Claire’s Place Foundation.  Thank you Hot Leathers!
  3. Share this post on your social media channels and with your friends to get some buzz going and help us spread the word about this ride!  You can follow Riki on the road and share about his ride on Twitter, Instagram and Facebook with #RikisRide17
  4. Visit Riki’s Ride 17 Sponsor Death Wish Coffee Company and enter code CLAIRE at checkout for a 10% discount AND they will donate an extra $1 for each code used!  Great coffee, great cause!  ORDER
  5. Love PRS Guitars?  Check out this custom painted PRS Guitar created by RonzWorld Custom Painted Guitars that will be framed by G Frames and signed by some of the biggest names in rock!   This one of a kind guitar will then be auctioned off to the highest bidder with 100% of the proceeds going to Claire’s Place Foundation.  Stay tuned to www.rikisride.com for details.

Blog & Events, Families we have assisted

Teaming up with WT Farley to Help a Family in Need

May 22, 2017

Recently we were contacted by a family looking for assistance in acquiring a portable oxygen concentrator or POC for their teen, Caleb, who had become oxygen dependent due to cystic fibrosis.  This family went through a divorce and the mother, a now single parent with 3 children, was unable to find the support she needed in acquiring such an expensive device through her insurance.  Most of the time, insurance carriers will provide oxygen tanks for individuals with low income but tanks are very cumbersome and make it difficult for the patient, especially young and fairly active patients, to get out and enjoy their life.

This was a challenge we were willing to take on, especially given the fact that our Founder’s primary message is one of positivity and resilience.

We were lucky to find WT Farley, Inc., a local medical supply company serving the industry for over 45 years and known for offering Innovative, Truly Relevant and Reliable service for patients needing medical supplies including medical gas, accessories and equipment.  Not only were they helpful and knowledgeable, they were also inspired to donate the equipment to this family, what a blessing!

Working together, we were able to secure a brand new Inogen One G3 oxygen concentrator plus an over the shoulder carry bag for Caleb.  The Inogen One G3 is compact and lightweight making it easy for him to continue his active teen lifestyle.

Caleb’s mother writes “Caleb is so grateful for his new Inogen One G3 concentrator that allows him more freedom to leave the house! Thank you to Claire’s Place Foundation and WT Farley, Inc.

We are proud to partner with our friends at WT Farley, Inc. ~ your generosity has made a real difference in this teen’s life!

WT Farley Inc. has been serving the medical industry for more than 45 years. Established in 1968, Mr. Farley set out to create and offer quality products and unmatched customer service.

We have become a “just in time” company getting you what you need when you need it. Outstanding customer service is also very important to us. We pride ourselves as being helpful to our customers. If we don’t offer the product you need, we will make it or help you find someone who has it.

*Inspired by what we are up to here at Claire’s Place Foundation?  Please consider making a donation today so we can continue providing much needed support to families and children living with cystic fibrosis.  Thank you!

Blog & Events, Press

May is National Cystic Fibrosis Awareness Month: Share A Story & The Facts

May 5, 2017

Laura McHolm, Contributor NorthStar Moving Company Co-Founder

May is National Cystic Fibrosis Awareness Month: Share A Story & The Facts

05/04/2017 02:45 pm ET

How can you help? Use your voice and get involved. Participate in walks and other events to support CF and share the facts on social media and elsewhere. There is a great foundation working to find a cure: the Cystic Fibrosis Foundation as well as, a foundation that supports children and families living with CF: Claire’s Place Foundation. Get involved. Donate. Come to their events.

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Claire’s Place Foundation, founded by Claire Wineland when she was just 14 years old, is a 501c3 non-profit organization designed to help children and families affected by cystic fibrosis. Claire and was born with CF. In her short life, Claire has undergone more than 20 surgeries and has spent months at a time in the hospital. She survived months in a coma on mechanical ventilation despite the odds and was also a Make-a-Wish recipient. She has 40% of ideal lung function and the doctors have estimated two years left to live. This is not, however, what characterizes or defines her. Claire has dedicated her life work to making a difference in the lives of others living with CF.

Now 20 years old, Claire’s Place Foundation is a way for Claire to give back with hope, strength, and joy. She wants to live with intention and purpose. In her own words, “I know my life will be shorter so every day has meaning.” She strives to find new ways to help the CF community and other children afflicted with chronic illness. Claire’s Place is making a huge impact through its two programs – The Extended Hospital Stay Fund and the Family Support Program. These programs are in high demand and the foundation needs your donations to continue assisting young patients in need. You can meet Claire and support her foundation at her next fundraiser, “Glow Ride,” in September in Hermosa Beach, CA.

To find others ways you can help bring awareness to CF find a local chapter near you. In May and through out the year, let’s share Claire’s story to help find a cure!

Newsletters

May is CF Awareness Month ~ 3 Ways to Get Involved

May 5, 2017
May is Cystic Fibrosis Awareness Month
Our mission here at Claire’s Place Foundation is to raise awareness about cystic fibrosis on a national and sometimes global level as well as provide financial and emotional support to the children and families it affects.
In honor of CF Awareness Month, please consider making a small commitment to get involved ~ following are 3 ways you can make an impact in May

Thank you for your support!  Each and every one of you are valued and appreciated.  I could not have made this happen without you.  Claire Wineland, Founder

SUPPORT A FUNDRAISER
This year, we have been blessed by 3 individuals who are inspired by our mission and chose to make a contribution in a big way.  Kathie and Paul donated their wedding shower by requesting that donations be made to our foundation in lieu of wedding gifts. Rocker Riki Rachtman is riding his motorcycle across 48 states on his epic #RikisRide17 to raise money and awareness for our cause starting June 1st and Doug is cycling 3400 miles from Oregon to New York on his “Cycling USA 4 CF” tour raising money and awareness as he goes.  ALL are incredible, heroic acts of selflessness and we want to support them in any way we can.  You can help by visiting their various sites and making a donation or by contacting us with an idea for your own creative event.
Our Founder, Claire Wineland, will be sharing her story about living a life she loves, not in spite of having been born with cystic fibrosis but because of it.  Show your support by joining us on May 12th for the TEDx event “We are all in this together”.  It is sure to be a day of inspiration and community.  Tickets will sell out so be sure to reserve yours today.
 Photo Credit: Todd Westphal
With all the media spotlight and the new connections we are making with hospital Social Workers across the country,  the number of families and children referred to us and our important programs continue to grow.  We are always grateful to meet new families and nothing gives us more happiness than to be able to help them during Extended Hospital Stays.  But, we need your support so that we can keep up with the demand.
Please consider becoming a monthly donor in honor of CF Awareness Month from May 2017 to May 2018 and watch how your donations help families across the country.  If you sign up today and select “Recurring Monthly Donation” for at least $25/month, we will send you a custom Claire’s Place Foundation “CLAIRITY” t-shirt and bracelet as a thank you gift along with a private message in May 2018 showing a brief story and picture of every family we were able to assist during that 12 month period with your donations.
Our recent “2nd Annual Comedy Roast for Charity” honoring our dear friend Mr Ted Kaplan was a huge success!  Thank you again to all of you who joined us and supported our event.  We raised over $26,000, all of which will go directly towards funding our programs in 2017.  To see all the beautiful pics by Julia Lofstrandt Photography, click HERE or on the picture to the left.
Blog & Events, Families we have assisted

Meet Joshua ~ Extended Hospital Stay Grant Recipient

May 1, 2017

Joshua, age 11, was not diagnosed with cystic fibrosis until the age of 10.  Occasionally, patients present with all the symptoms but the underlying cause is over looked.  Thank Goodness this family found a doctor who decided to look a little deeper and try to find the cause of his recurring infections and failure to thrive.

A diagnosis such as this can be at first comforting to know that the disease causing negative and recurring issues has a name and a specific treatment plan but at the same time, it can be devastating to learn that cystic fibrosis is incurable and often times fatal.

Joshua experienced his first 2 extended hospital stays due to Pearson Pic 2 cystic fibrosis in the last few months.  This upheaval in a family can be expensive and stressful to say the least.  The social worker at their new CF Center referred them to us as potential candidates for an Extended Hospital Stay Grant and we were grateful to be able to offer them much needed assistance in catching up on missed payments and expenses incurred while caring for Joshua.

The family is home together again, learning as much as they can about raising a child with cystic fibrosis and the daily regimen involved.  Our hearts are with you and if you need anyone to help you navigate the path, please reach out to us about our Support Families Network.

“Claire’s Place has helped our family climb out from debt that had accumulated from loss of pay due to a long hospitalization for our son. We were already living paycheck to paycheck so any loss of pay has a huge detrimental effect on our family. We are still playing catch up with all the medical expenses too, seems like an impossible feat.  We cannot thank you enough for the help!”  ~ Joshua’s Parents

*This grant was made possible by our friend Riki Rachtman and his famous #RikisRide17.  He is raising money for Claire’s Place Foundation by riding his motorcycle across 48 states beginning June 1, 2017.  Be sure to visit his fundraising page today and find out more about this exciting event.  Thank you to Riki and all the people who are supporting his efforts!  YOU are making a real difference in this child’s life. (Rikis Ride 17 is sponsored in part by DeathWish Coffee)

Pearson Pic 3