March Promotion

photo(57)Hi everyone ~

Thank you so much for visiting our site!  We hope you were led here by our recent March promotion announcement ~ just make a donation of at least $25 below and receive a signed copy of our book “Every Breath I Take, Surviving and Thriving with Cystic Fibrosis” written by our founder, Claire Wineland and her dear friend Chynna Bracha Levin. Link to March Promo Paypal

What is the experience of a child with a life-threatening illness? It can be so hard for parents, family, and friends to understand, because the experience of serious illness is so hard to articulate. That’s why Claire Wineland’s memoir, Every Breath I Take, Surviving and Thriving With Cystic Fibrosis, is so important. With her co-author, Chynna Bracha Levin, Claire describes with precision, honesty, and a remarkable sense of humor just what it’s like to live with an illness that is so often fatal. The book is a must read for anyone who feels compassion for a child, a relative, or friend going through an intense or even life-threatening illness. Claire explains exactly what it’s like to live as normal a life as possible while taking care of a condition that requires constant treatment and frequent hospitalization. Yet there’s nothing grim about Claire’s journey as she describes it. Claire finds the sunny side of life and the spirituality of her experiences in ways that captivate and amaze the reader. It’s impossible to come away from the book without a renewed sense of compassion and sensitivity toward anyone suffering from a serious illness. The book is required reading for anyone—adult or child—who wants to understand how it truly is possible to survive and thrive, no matter what.

Here are some reviews and articles…looks like it’s a hit!!

Press and Reviews:
Bookpleasures.com Review by Kari O’Driscoll
Amazon.com reviews by readers
CBS News.com Article
Boston Globe Article

Thank you for your support and we hope this book makes a difference for you and your loved ones!

 

Everyday Health Heroes Episode

Hi everyone ~

Several months ago, we were lucky enough to meet Ethan Zohn and Jenna Morasca from Everyday Health TV.  They came out to Calabasas and helped us organize another flash mob for Claire’s Place Foundation and raising awareness for cystic fibrosis.

If you missed the show on air, you can watch it here:  Episode – Claire’s Place Foundation

We had such a great time working with them and fell in love with Ethan and Jenna.  We hear Ethan is battling yet another phase of cancer.  Our hearts and prayers are with him!

They came back again in February to film our Day at the Beach Fundraiser.  We will get that episode up as soon as possible for those of you interested.

As always, thank you for your love and support!  We are working so hard to keep our foundation up and running,…we are committed and excited to help other families living with cystic fibrosis.

Our foundation and the services we hope to provide are only made possible by your generous donations.  Please keep us in mind and spread the word!

Lots of love,

Melissa and Claire

Claire on Cystic Fibrosis

Video of Claire talking about Cystic Fibrosis ~ age 7