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Blog & Events

Our Glow Ride is now an Inner Glow Ride ~ Read more HERE

June 12, 2018

Hi everyone! So, this August 18th was going to be the date of our 4th Annual Glow Ride for CF in beautiful Hermosa Beach but we have had a huge change in plans. Our founder, Claire Wineland, has been listed for a life saving double lung transplant at UCSD and from what the doctors say, we could get the call at any minute.

As a very small organization, we simply do not have the emotional and physical bandwidth to put this event together while we focus on our upcoming transplant. We hope you all understand ♥ We have made the hard decision to change our glow ride from an in person event to an on line fundraiser so that we don’t leave the families that look to us for assistance “in the dark”.

The money we raise each year at our glow ride is a large piece of our yearly budget and Claire is committed to continuing her foundation, even in her absence. One fantastic thing to keep in mind is that 100% of any donation will go directly to our Extended Hospital Stay Fund since we will have 0 overhead in producing this event.

 

If you are inspired to support our Inner Glow Ride sponsored by Vertex Pharmaceuticals, please consider any one of these options:

1. Create a team on the Crowdrise page HERE and encourage your friends and family to help you get your inner glow on for children and families living with cystic fibrosis by donating to your team. The team that raises the most money will win our prestigious “Milky Way Award” and will be announced on August 20, 2018. This award will include either a personalized video message from Claire that you can share on social media or the option of having her record your voice mail message on your cell phone. We will also include CLAIRITY Tshirts to your entire team.

2. Donate as an individual to the Crowdrise page and help us reach our goal of $15,000. The individual that donates the most money will win our “Shining Star Award” and will also have the option of receiving a video from Claire or having her record your voice mail message on your phone, and a CLAIRITY Tshirt.

3. Donate anonymously to the Crowdrise page but share our campaign far and wide. Sharing campaigns on your social media channels and via email with your friends and family has been proven to bring in 3x the donations. So, please share away!

4. Make a donation to the Crowdrise page and “Get your inner glow on”. Please send us a picture all lit up at night to be posted on our event page and social media channels. We would LOVE to see you participate from afar either as an individual or with your group. All pictures welcome 🙂 Best group picture will be sent our custom CLAIRITY tshirts as a thank you gift for participating.

ALL donations and pictures are due by August 18th and awards will be posted on August 20th 🙂

So, as we prepare for Claire’s big surgery and a new chance at life, we are envisioning her being able to ride in her glow ride next summer with a brand new set of lungs. How cool would that be? We would love for you to participate in person again next year to help us celebrate.

We truly apologize for the last minute change in plans but being on the waitlist for lungs is so unpredictable. We look forward to seeing you all again next year! For those of you who already purchased a ticket, I will be reaching out to you privately with a few options.

2017 Glow Ride for CF Photo Claire’s Place Foundation Board Members, Event Sponsors and members of the Redondo Beach, Hermosa Beach and Manhattan Beach City Council along with our Founder Claire Wineland. Photo Credit: Julia Lofstrandt

 

 

Blog & Events

Claire’s Place Foundation Welcomes New Board Member

June 12, 2018

Welcome New Member ~ David Gersholowitz, MBA, Board Director

David Gersholowitz,MBA, Director

Read our Recent Press Release

Dave is originally from Cape Town, South Africa, but has never been on a safari or in a single gold mine. Rather, after a few attempts, his family moved to the US to pursue the American Dream. Cue “Out Of Africa” Theme…

Dave entered the veterinary field in 2005 when he joined BluePearl Veterinary Partners to launch a large practice in NYC. Working with an amazing team of doctors and staff, Dave grew the NY Region into one of the largest Specialty and Emergency practices in the country. In 2011, Dave transitioned into the COO role for BluePearl and was instrumental in BluePearl’s growth to over 60 locations in 20 states. Then Mars came knocking…

In early 2017, Dave joined Andy Loar, Dave Gardiner and Everett Smith to pursue the next great thing, which is of course veterinary diagnostics. The four musketeers came together to create ZNLabs Veterinary Diagnostics with a simple goal – revolutionize the veterinary laboratory field. We’re working on it! 😊

Dave is married and lives with his wife and two children, Adam and Nadia, in sunny Tampa, Florida. They share their place with their three dogs, Ollie, Fiona, and Kenny. In his spare time, Dave enjoys travel, driving manual cars and looking for deals. Dave earned a BS in Electrical Engineering from USF and an MBA from UCLA Anderson School of Management.

Dave reached out to Claire’s Place Foundation after reading a CNN article about Claire’s Place Founder Claire Wineland’s journey with cystic fibrosis. “We all face challenges in life and I am a strong believer that we each have a choice in how we respond to these challenges,” said Dave. “Claire’s amazing positive outlook on life and desire to help others despite her own challenges is truly inspiring. I was also impressed with the hyper-efficient, entrepreneurial nature of Claire’s Place Foundation. I knew I had to find a way to get involved. I am also excited for anything that brings me back for a visit to beautiful Southern California!”

“In addition to being a smart and driven entrepreneur, Dave is a compassionate, creative, giving and energetic individual. The moment the board met him, we knew we would be lucky to have him,” said Claire’s Place Foundation Executive Director Melissa Yeager. “Dave’s experience and business development skills are a huge asset to the foundation. He has already contributed to the foundation with his creativity, contacts and insight. He is continually thinking of new ways he can help. We are absolutely thrilled to have Dave join our board of directors.”

 

Blog & Events, Families we have assisted

Meet Maddox ~ Extended Hospital Stay Grant Recipient

February 14, 2018

Meet Maddox, a 7 month old new CF baby who was referred to us by his social worker at Children’s Healthcare of Atlanta Emory University Hospital.  Maddox has already spent a month in the hospital due to complications that can arise from this disease, leaving the family overwhelmed and exhausted trying to maintain their jobs and take care of an older sibling who does not have CF.  Oftentimes families will choose to have one parent stay home and care for the child but occasionally we see families where both parents must work in order to maintain their healthcare insurance costs and opportunities.  Cystic Fibrosis is a very difficult disease to qualify for private insurance and if a parent has group coverage through a job, it is something that they hold on to dearly.

Maddox’ family looked to us for assistance with their mortgage payment and a few outstanding hospital bills that were threatening collection involvement.  We were so grateful to be able to provide them with the assistance they needed to keep their heads above water and turn their attention to learning the ins and outs of raising a child with CF and all of the elaborate home treatment required. We will keep this family in our thoughts and hope that they will find a supportive CF community to help them along the road as we have.

Thank you so much, Claire’s Place Foundation, from the bottom of our hearts! There are not enough words to express our gratitude for this kindness. The weight that has been lifted off this Mom and Dad’s hearts is significant and truly appreciated.  Raising children is a daily challenge in itself and then you add in a Chronic disease, it truly takes a tribe. Thank you, again!”

Blog & Events, Families we have assisted

Meet Elijah ~ Extended Hospital Stay Grant Recipient

January 24, 2018

Elijah comes from a large family ~ 5 children, 2 of which have cystic fibrosis.  He was recently hospitalized for a 21 day stay, which is not unusual when living with this disease but incredibly difficult for a family taking care of so many children while also maintaining their jobs.  This lovely family was referred to us by the Children’s Hospital of Pittsburgh and the referral reads “Elijah has been a patient at our CF Center since 2010 and was recently admitted for a 21 day hospitalization.  During this time, his parents traveled back and forth from their home to the hospital daily, almost 40 miles each way.  While they took turns staying overnight at the bedside in order to be present for supportive and medical decision making purposes, Elijah has other siblings at home, including a brother who also has CF.  The mother is a part time nanny and the father is a pastor, both had to take turns being present at home and at the hospital simultaneously with no paid medical leave.  As their social worker, I provided the extent of resources available to families through our hospital as well as referrals to outside organizations.  Although they worked diligently to make contact with these resources, as you are probably well aware, very few have the ability to assist with the overwhelming amount of expenses that families of children with chronic illnesses incur.  At this point, we are approaching the holidays and the family is having trouble keeping their lights on and their mortgage paid.  Any assistance you may provide to them would be greatly appreciated.

I was very grateful for the fact that we were in a position to assist this family due to the generous support of our donors in 2017.  I have noticed that there are not many other organizations that assist families with bills that pile up while they are in countless hospital stays over the years due to chronic illness.  Both of these parents work in service jobs and are committed to being available to their 5 children.

We paid all of their bills for the month of December to get them caught up and received the most beautiful thank you note in the mail:

Dear Claire’s Place Foundation ~  It is Christmas afternoon and I keep thinking about you.  My children are all happy and grateful for their gifts and I know it would not have been possible without the tremendous help you all were able to give us after Elijah’s long hospitalization.  Words cannot express how incredibly grateful we are.  It’s not like we spent a ton of money for Christmas, nothing major, clothes, shoes, book bags, but to be able to get them nice things without being stressed about how we would afford anything right now, was simply amazing.  You all understand and minister to CF families and that is a rare and beautiful thing.  With grateful hearts, Camille, Jeff, Makenzie, Natty, Zach, Reagan and Elijah

We hope to keep in touch with this family and send them all of our love ~ Thank you for supporting this program!