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Blog & Events, Families we have assisted

In Loving Memory of Julia

January 8, 2018

Julia was a beautiful, vivacious young woman with cystic fibrosis who beat the odds for many years.  Her mother and I were at the University of Pennsylvania Hospital in November 2017 sitting vigil with our children, hoping and praying they would both be able to come home with us after extensive lung infections.  We CF parents understand the path we walk together and are always drawn to each other sharing about our child and their particular journey with cystic fibrosis.

While Claire recovered just enough lung function to be able to take a train home to Los Angeles, sadly Julia was not able to recover this time.  Her hospital stay was just over 2 months and although the doctors and amazing team of specialists at U Penn worked very hard, she reached her final resting place at home surrounded by her loving family shortly thereafter in hospice care.

Julia was loved by all, especially her 5 year old son.  Many women with cystic fibrosis are not able to bear children but some are lucky enough to have this experience.  Her son was her pride and joy and she will live on in his heart forever. She will be greatly missed by her husband and her mother and I have been very touched to know of her and her brave battle, her triumphs and the angel wings she recently received.  Breathe easy dear Julia.

Her mother and I connected again shortly after Julia’s death and she shared with me that the 2 month stay in Pennsylvania, far from home, had caused financial distress  and coupled with the loss of her only child, she felt quite overwhelmed with little support.  I was grateful to share with her about our Extended Hospital Stay Program and accepted her application immediately.  We were able to pay several of her larger bills so that she could feel supported and loved by her CF Community while beginning the long process of grieving.

“During my daughter Julia’s last and final hospitalization, which lasted 2 months, I crossed paths with another CF Mom and we found comfort in each other and our shared experience. I kept her card and found the Claire’s Place Foundation website easily and applied for a grant for assistance considering all of the expenses incurred during our long stay. Their financial help made a huge difference to me and enabled me not to go into further debt, while grieving the loss of my darling girl. In addition to the financial help, knowing there are people who care and donate to this cause during a difficult economy has given me emotional strength and reinforced my faith in the kindness of strangers.  I see your face before me Melissa and our meeting changed my life way beyond financial. I am feeling much better as time lessens the pain and heals the soul. I’ve come through the other side with a sense of peace that is remarkable. Of course my sadness and loss is always there, but I am so grateful for the life we had together and for all the emotional and psychological support I’ve received during and since my time with Julia. With gratitude, Julia’s Mom

Our hearts are with you all ~ all of us walking the road with a loved one with cystic fibrosis or any terminal illness.  It can be a lonely and scary place for sure with many ups and downs sprinkled with little miracles along the way.

#CureCF

Thank you all who support this program ~ as Julia’s mom writes, it is a small kindness that we can do for others who are suffering.

Melissa

Blog & Events, Families we have assisted

Meet Allie ~ Extended Hospital Stay Grant Recipient

November 28, 2017

Allie is a 15 year old, vivacious teen living with cystic fibrosis.  In 2017, she suffered 3 extended hospital stays as her CF continues to progress.

Her Social Worker sent us a referral  and describes her family’s situation as follows:

“Allie has been admitted for her current hospitalization since October 30, 2017.  It is important for her mother Brandy to be with Allie for supportive reasons but she is therefore unable to work due to how far away the family lives.  Brandy’s loss of income during this admission is creating financial burdens for the family in many ways.  Even though Allie’s father continues to work, his income is not sufficient alone.  As their social worker, I have referred the family to assistance programs to help with some of their bills but these programs have severe limitations and will not cover some of the more extensive expenses such as car insurance which is due to be cancelled and is very important in getting Allie and her family back and forth to the hospital.  Any assistance your foundation may see fit to provide will be greatly appreciated.”

Allie, Age 15

Our organization was established because we heard this story so many times and understand on a deep level the amount of work lost and support is required when raising a child with cystic fibrosis.  We also understood that there were very few resources for family’s in this particular situation.  Living with cystic fibrosis entails many many extended hospital stays over a life time and is absolutely unmanageable for most middle or low income families.

We were thrilled to offer Allie’s family a grant that covered their living expenses for a complete month and caught them up on their car insurance due to the incredible fundraising our donors have done this year.  We are grateful to be the shoulder they could lean on during their time of need.

Allie’s parent write “Words can never truly express our thanks for what Claire’s Place has done for us.  I made a promise to both my daughters when they were born that no matter what I would always be by their side.  Because of all of you I have less stress about getting bills paid.  My children understand that due to so many hospital stays this year, there was going to be no Christmas money.  But, because of all of you my children won’t need to miss Christmas or go without heat.  God bless you all”

Thank you for your continued support of this program ~ as you can see, your donations are hard at work helping families every day that have nowhere else to turn.

Wishing you all a happy, joyous holiday season!

Allie and her supportive family

 

Blog & Events, Newsletters

#GivingTuesday2017

November 21, 2017

#GivingTuesday

 

Save the date – Join the Global Giving Movement 11.28.2017

#GivingTuesday is a global day of giving fueled by the power of social media and collaboration.

Celebrated on the Tuesday following Thanksgiving (in the U.S.) and the widely recognized shopping events Black Friday and Cyber Monday, #GivingTuesday kicks off the charitable season, when many focus on their holiday and end-of-year giving.

This #GivingTuesday, Claire’s Place Foundation is partnering with Facebook and the Bill & Melinda Gates Foundation to make your giving so much easier and more impactful. We are setting up our campaign so that ALL donations made through our Facebook page on November 28, 2017 beginning at 5am PST will be free of fees and will be matched up to $50,000 by the Bill and Melinda Gates Foundation. Our “Donate” button on our Facebook page will allow you to donate and share in one simple click ..easy peasy!

Be sure to set your alarms to make your donation early as the matching grant only lasts until they reach their $2,000,000 limit. For those of you on the East Coast, you get a great head start.

We encourage you to share our Giving Tuesday campaign on your own page or even fundraise on our behalf with your friends and family by a simple click of a button. Go to our FB page and click “Fundraisers” on the left side of the page. It will take you to a site where you can choose to “Raise Money”, create your own Giving Tuesday fundraiser and share it will all of your friends and family on social media.

This is the biggest day of the year to show your support for your favorite charities. We hope you are inspired by our mission here at Claire’s Place Foundation and choose to make a difference for families living with #cysticfibrosis on the daily. We are always grateful for you, our loving community of supporters.

Stay tuned for the countdown to Tuesday, November 28, 2017 and get ready to GIVE!

Be sure to “like” us on Facebook so you can take advantage of this great opportunity

Blog & Events, Families we have assisted

Meet Payton ~ Extended Hospital Stay Grant Recipient

November 10, 2017

Payton’s family is committed to getting her the best care possible even though they reside in an area without an accredited CF Center.  “The Cystic Fibrosis Foundation funds and accredits care centers located at teaching and community hospitals across the country. These centers offer comprehensive, high-quality care. This elevated level of specialized care has led to longer, more productive lives for people living with CF.”

Living in Hawaii but having Payton’s care managed at Lucile Packard Children’s Hospital here in California put a huge financial strain on this family, as you can imagine.

Traveling back and forth every 3 months for clinic visits and enduring 2 week stays for “tune ups” has been a nearly impossible task but one they are committed to to ensure she receives the best care possible.

Claire’s Place Foundation was happy to provide a grant for this family to cover their mortgage, a portion of their outstanding hospital bill and pharmacy bills so that they would have additional monies to cover the cost of airfare and travel related expenses that were becoming overwhelming.

Payton’s mother writes

Claire’s Place has helped lift some of the financial burden off of our shoulders during this stressful time.

We can’t thank you all enough for this grant . Caring for our daughter is our number one job . At times the pressure to have enough cash to provide what she needs can be so hard . We are very thankful for this Foundation . Truly a blessing & so appreciated !! Bless you all !!!”

This grant was made possible by all of the wonderful fundraising done by you, Rikis Ride 2017 and Thrive: Make Money Matter ~ we are so grateful.  I love it that the structure Claire set in place when founding this organization is very simple ~ donations come in and grants go out.  We have very little overhead so you know that most of your donation will go directly to a family in need.

Thank you one and all for your continued support of this important program.

Blog & Events, Press

Thrive Event Raises Over $150K for Claire’s Place Foundation

November 8, 2017

Los Angeles, CA, Nov. 08, 2017 (GLOBE NEWSWIRE) — Claire’s Place Foundation, a non-profit organization providing support to children and families affected by cystic fibrosis, thanks the founders of Thrive: Make Money Matter and their attendees for raising over $150,000 to support their Extended Hospital Stay Fund.

Thrive Co Founder Sanja Hatter, Claire’s Place Foundation Fundraising Chair Kathie David, Executive Director Melissa Yeager and Founder Claire Wineland

“I was invited to speak at Thrive 2017, which was such an honor. I had no idea the event would change my life,” said Claire’s Place Founder Claire Wineland. “While on stage Thrive Co-Founders Cole and Sanja Hatter surprised me with a personal donation to support my foundation. They then called upon the audience to open their wallets. In just minutes we raised more money than we have ever raised for Claire’s Place! The funds raised will help thousands of families affected by cystic fibrosis pay their bills. I can’t thank Cole, Sanja and everyone in attendance enough. I am overwhelmed by their generosity.”

“Claire is a beautiful light in our world; I’m so honored to know her, support her, and call her a friend,” said Thrive Co-Founder Cole Hatter. “The work she is doing is amazing, and I know the impact she will make in the world is only just beginning. Thrive was a great start, looking forward to continue to support Claire in leaving her legacy.”

The funds raised at Thrive 2017 will support Claire’s Place Foundation Extended Hospital Stay Fund, a special cache of funds available to families with children living with cystic fibrosis that are experiencing financial distress due to a hospital stay of at least 14 consecutive days. The grants are paid directly to third parties on the families’ behalf to cover basic necessities such as mortgage, rent and utilities so that the parents can focus their energies on being with their child in their great time of need.

“Raising the money for Claire and her foundation on that stage is my favorite moment of Thrive,” said Thrive Co-Founder Sanja Hatter. “It is a highlight in my life that I will never forget. I am so grateful for Claire, her outlook on life and the difference she is making helping others living with cystic fibrosis.”

“When I first connected with Cole and Sanja I was so excited to share the opportunity with Claire and the foundation,” said Claire’s Place Foundation Fundraising Chair Kathie David. “In my wildest dreams I couldn’t have imagined what would later happen at Thrive. It was one of the most exciting and rewarding moments of my life and I’m humbled by Cole and Sanja’s vision and the generosity of the Thrive tribe. The money raised will go a long way to help our families.”

Thrive Co-Founder Cole A Hatter Photo Credit: @tostistudios

To learn more about Thrive: Make Money Matter, please visit: www.attendthrive.com. And, to assist Claire Place Foundation’s mission in helping children with cystic fibrosis, please visit: www.clairesplacefoundation.org.

About Claire’s Place Foundation, Inc.

Claire’s Place Foundation, Inc. is a 501c3 non-profit organization providing support to children and families affected by cystic fibrosis (CF). Claire’s Place Foundation is named in honor of Claire Wineland, now a teenager, who has been living with CF her entire life. The foundation provides grants to families affected by CF, offering both emotional and financial support. A young author of bestseller “Every Breath I Take, Surviving and Thriving with Cystic Fibrosis,” Claire’s unique inspirational model for people living with this disease has led her to be a TEDx Speaker and receive multiple awards including Seventeen Magazine’s “17 Power Teens” of 2016, Fox Teen Choice Awards 2015, Gloria Barron Prize for Young Heroes, Southbay Magazine’s “Top 10 South Bay Teen”, Looking Beyond LA’s “Soaring Spirit Award,” and winner of Los Angeles Business Journal’s “Small Nonprofit of the Year.” She has been featured on Inside Edition, The Dr. Oz Show, CNN, Huffington Post, ABC News, Cosmopolitan, People, Ladies’ Home Journal and more. Claire’s Place Foundation is a way for Claire to give back with hope, strength, and joy and make meaning of what she has had to go through. For more information and make a donation, please visit www.clairesplacefoundation.org.

Claire Wineland Photo Credit: @tostistudios

About THRIVE: Make Money Matter

Thrive: Make Money Matter is a top rated business conference that encourages and equips ‘for-purpose’ businesses to make an impact in their local economy and around the world.  In addition, Thrive: Make Money Matter offers resources and a private networking group for business owners.  The next conference will be held September 15-17, 2018 in Las Vegas, NV.  For more information visit www.attendthrive.com or call 949-534-2653

Cole A Hatter, Claire Wineland, Sanja Hatter, Melissa Yeager Photo Credit: @tostistudios