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Blog & Events

SAVE THE DATE ~ 3rd Annual Glow Ride for CF

June 7, 2017

We are so excited to announce our 3rd Annual Glow Ride for CF on September 23, 2017 in lovely Hermosa Beach, CA!  Please be sure to SAVE THE DATE and join us for a great family event that supports our Extended Hospital Stay Grant Program.

Aren’t in the Los Angeles area?  It’s ok ~ you can still support this event from afar by making a donation or creating a team and setting a fundraising goal.  We will have great prizes for the teams that reach their goal!

Click here to see pictures from our Glow Ride 2016

Visit our Crowdrise Page for all the details and to sign up or create a team

We are currently seeking event sponsors ~ this is a fantastic way for you to create brand  awareness as a charitable contributor in the South Bay and Los Angeles communities. We have many different sponsorship levels so be sure to let us know if you are interested.  Deadline for sponsors is August 1, 2017  Glow Ride Hermosa Beach Sponsorship Brochure 2017

Let us know if you are interested in getting involved in a bigger way! We LOVE our volunteers and cannot make this happen without you ~ it’s a great way to earn some community service hours for our young friends in high school or applying for college in the next year.  Email Melissa@clairesplacefoundation.org

 

Blog & Events, Families we have assisted

Meet Logan ~ Extended Hospital Stay Grant Recipient

June 6, 2017

Logan is an 11 year old boy living with cystic fibrosis and has had a particularly rough year.  He was referred to us by his CF Center Social Worker who let us know that he has been hospitalized 4 times in quick succession and the family was facing extreme financial difficulties as well as a move to a new city.  Logan’s parents made the decision that many parents of children with Cystic Fibrosis do and were depending on only one income so that one parent could take care of all the many hours of treatments, doctor appointments, missed school and hospital stays that constitute living with this disease.

Out of desperation and in an attempt to bring in more money, Logan’s father accepted a job for better pay in a city far from home.  The cost of moving expenses coupled with 4 hospital stays became too much to bear and the family was in a critical position.

We are so grateful that our supporters continue to make donations to the Extended Hospital Stay Fund so that we can help families like this.  We were able to cover the rent and utilities for the month of May so that they could take a breath and get settled in to their new home and new CF Center/hospital.

This grant was made possible in part by our friend Douglas Forsyth and the fundraising he is doing in honor of his young friend Connor, a 5 year old with Cystic Fibrosis.  Douglas is riding his bicycle 3400 miles from Portland, OR to New York City beginning in July.  Please support his efforts and thank him for his generosity by visiting his Go Fund Me Page to make a donation and following his Facebook Page.  Thank you Douglas and everyone who is helping with Cycling America for CF!  Your efforts are making a real difference in this family’s life.

Logan’s parents write “Our family took a huge pay cut so that my husband could attend a 2 week job training for his new position and at the exact same time, we were hit with another long hospital stay, the 4th this year.  Without help from Claire’s Place Foundation, we would not have had the money to cover our rent and make the move needed to start a better life.  Knowing that it was taken care of took a huge burden off of our shoulders and allowed us to focus on Logan.  We feel blessed! Thank you all

Cycling America for CF is sponsored byIdentified Talent Solutions, Dixon Construction, Inc. and Hermosa Cyclery


Blog & Events, Press

Press Release ~ Kathie David joins as Fundraising Chair

June 2, 2017

Claire’s Place Foundation, a non-profit organization providing support to children and families affected by cystic fibrosis, today announced the election of Identified Talent Solutions Vice President Kathie David as the foundation’s new Fundraising Chair.

Paul David, ED Melissa Yeager, Founder Claire Wineland and Kathie David Photo credit: Julia Lofstrandt Photography

 

Kathie came to Claire’s Place Foundation by a chance encounter. She was a member of the audience at Claire’s Place Foundation Founder Claire Wineland’s speech at Zappos and Claire’s words enchanted her. “When I heard Claire say, ‘Human beings are so adaptable. We have this incredible gift of taking whatever is thrown at us and making something with it. Everyone is going through something. Big or small, it can affect each and every one of us in a profound way.’ It immediately changed how I view life,” said Kathie. “These words from a 19-year-old girl who has been living with cystic fibrosis her entire life, gave me a moment of clarity through a simple shift in my mindset. I have a choice. I choose to live life with clarity. And it’s made an incredible difference.”

Since then, Kathie has been making a huge impact on Claire’s life and Claire’s Place Foundation. Kathie dedicated her recent bridal shower to raising money for the foundation in lieu of gifts; and her creativity and professional skillset has uncovered new opportunities to raise needed funds to continue to provide grants to families living with cystic fibrosis.

“Kathie is a one-of-kind, her heart radiates around her,” said Claire’s Place Foundation Executive Director Melissa Yeager. “Even though I have known her for a short time, I feel like I have known her for a lifetime. Her kindness is infectious and her professional skills are a huge asset to the foundation. She has already contributed to helping us raise funds and is continually thinking of new ways she can help. We are absolutely thrilled to have her join our board of directors.”

“Being a part of Claire’s Place Foundation means I get to be at the forefront of an organization that is creating positive change,” said Kathie. “Together we will continue to raise awareness and help families who are affected by cystic fibrosis. When someone in your family is sick, it affects the entire family. Help in every form can make a world of difference. I also want to show my daughter what giving back truly means.”

To assist Claire Place Foundation’s mission in helping other children with cystic fibrosis please visit their website to make a tax deductible donation as well as support two summer 2017 bike rides fundraising for Claire’s Place  – RikisRide & Doug’s Cycling USA for Cystic Fibrosis.

 

About Claire’s Place Foundation, Inc.

Claire’s Place Foundation, Inc. is a 501c3 non-profit organization providing support to children and families affected by cystic fibrosis (CF). Claire’s Place Foundation is named in honor of Claire Wineland, now a teenager, who has been living with CF her entire life. The foundation provides grants to families affected by CF, offering both emotional and financial support. A young author of bestseller “Every Breath I Take, Surviving and Thriving with Cystic Fibrosis,” Claire’s unique inspirational model for people living with this disease has led her to be a TEDx Speaker and receive multiple awards including Seventeen Magazine’s “17 Power Teens” of 2016, Fox Teen Choice Awards 2015, Gloria Barron Prize for Young Heroes, Southbay Magazine’s “Top 10 South Bay Teen”, Looking Beyond LA’s “Soaring Spirit Award,” and winner of Los Angeles Business Journal’s “Small Nonprofit of the Year.” She has been featured on Inside Edition, The Dr. Oz Show, CNN, Huffington Post, ABC News, Cosmopolitan, People, Ladies’ Home Journal and more. Claire’s Place Foundation is a way for Claire to give back with hope, strength, and joy and make meaning of what she has had to go through. For more information and make a donation, please visit www.clairesplacefoundation.org.

Blog & Events

Riki’s Ride 17 Starts TODAY ~ Let’s Show Him Some Support

June 1, 2017

Starting today, June 1st, 2017, Riki Rachtman will be riding his motorcycle through 48 states without a chase vehicle, producer or any real plan. Riki’s Ride 17 is all about raising donations & spreading awareness for us, Claire’s Place Foundation, which provides help to children and young adults diagnosed with Cystic Fibrosis, as well as their families, for the purpose of improving their quality of life. What a ROCKSTAR!

We are so excited to have his support and would love it if our followers could show him that we are behind him 100%.

Here are 5 ways you can get involved:

  1.  Make a donation directly to Riki’s Ride here:  DONATE
  2. Order a custom Riki’s Ride 17 T-shirt by Hot Leathers here:  T-Shirt Order 100% of proceeds go directly to Claire’s Place Foundation.  Thank you Hot Leathers!
  3. Share this post on your social media channels and with your friends to get some buzz going and help us spread the word about this ride!  You can follow Riki on the road and share about his ride on Twitter, Instagram and Facebook with #RikisRide17
  4. Visit Riki’s Ride 17 Sponsor Death Wish Coffee Company and enter code CLAIRE at checkout for a 10% discount AND they will donate an extra $1 for each code used!  Great coffee, great cause!  ORDER
  5. Love PRS Guitars?  Check out this custom painted PRS Guitar created by RonzWorld Custom Painted Guitars that will be framed by G Frames and signed by some of the biggest names in rock!   This one of a kind guitar will then be auctioned off to the highest bidder with 100% of the proceeds going to Claire’s Place Foundation.  Stay tuned to www.rikisride.com for details.

Blog & Events, Families we have assisted

Teaming up with WT Farley to Help a Family in Need

May 22, 2017

Recently we were contacted by a family looking for assistance in acquiring a portable oxygen concentrator or POC for their teen, Caleb, who had become oxygen dependent due to cystic fibrosis.  This family went through a divorce and the mother, a now single parent with 3 children, was unable to find the support she needed in acquiring such an expensive device through her insurance.  Most of the time, insurance carriers will provide oxygen tanks for individuals with low income but tanks are very cumbersome and make it difficult for the patient, especially young and fairly active patients, to get out and enjoy their life.

This was a challenge we were willing to take on, especially given the fact that our Founder’s primary message is one of positivity and resilience.

We were lucky to find WT Farley, Inc., a local medical supply company serving the industry for over 45 years and known for offering Innovative, Truly Relevant and Reliable service for patients needing medical supplies including medical gas, accessories and equipment.  Not only were they helpful and knowledgeable, they were also inspired to donate the equipment to this family, what a blessing!

Working together, we were able to secure a brand new Inogen One G3 oxygen concentrator plus an over the shoulder carry bag for Caleb.  The Inogen One G3 is compact and lightweight making it easy for him to continue his active teen lifestyle.

Caleb’s mother writes “Caleb is so grateful for his new Inogen One G3 concentrator that allows him more freedom to leave the house! Thank you to Claire’s Place Foundation and WT Farley, Inc.

We are proud to partner with our friends at WT Farley, Inc. ~ your generosity has made a real difference in this teen’s life!

WT Farley Inc. has been serving the medical industry for more than 45 years. Established in 1968, Mr. Farley set out to create and offer quality products and unmatched customer service.

We have become a “just in time” company getting you what you need when you need it. Outstanding customer service is also very important to us. We pride ourselves as being helpful to our customers. If we don’t offer the product you need, we will make it or help you find someone who has it.

*Inspired by what we are up to here at Claire’s Place Foundation?  Please consider making a donation today so we can continue providing much needed support to families and children living with cystic fibrosis.  Thank you!