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Blog & Events, Press

Press Release ~ Kathie David joins as Fundraising Chair

June 2, 2017

Claire’s Place Foundation, a non-profit organization providing support to children and families affected by cystic fibrosis, today announced the election of Identified Talent Solutions Vice President Kathie David as the foundation’s new Fundraising Chair.

Paul David, ED Melissa Yeager, Founder Claire Wineland and Kathie David Photo credit: Julia Lofstrandt Photography

 

Kathie came to Claire’s Place Foundation by a chance encounter. She was a member of the audience at Claire’s Place Foundation Founder Claire Wineland’s speech at Zappos and Claire’s words enchanted her. “When I heard Claire say, ‘Human beings are so adaptable. We have this incredible gift of taking whatever is thrown at us and making something with it. Everyone is going through something. Big or small, it can affect each and every one of us in a profound way.’ It immediately changed how I view life,” said Kathie. “These words from a 19-year-old girl who has been living with cystic fibrosis her entire life, gave me a moment of clarity through a simple shift in my mindset. I have a choice. I choose to live life with clarity. And it’s made an incredible difference.”

Since then, Kathie has been making a huge impact on Claire’s life and Claire’s Place Foundation. Kathie dedicated her recent bridal shower to raising money for the foundation in lieu of gifts; and her creativity and professional skillset has uncovered new opportunities to raise needed funds to continue to provide grants to families living with cystic fibrosis.

“Kathie is a one-of-kind, her heart radiates around her,” said Claire’s Place Foundation Executive Director Melissa Yeager. “Even though I have known her for a short time, I feel like I have known her for a lifetime. Her kindness is infectious and her professional skills are a huge asset to the foundation. She has already contributed to helping us raise funds and is continually thinking of new ways she can help. We are absolutely thrilled to have her join our board of directors.”

“Being a part of Claire’s Place Foundation means I get to be at the forefront of an organization that is creating positive change,” said Kathie. “Together we will continue to raise awareness and help families who are affected by cystic fibrosis. When someone in your family is sick, it affects the entire family. Help in every form can make a world of difference. I also want to show my daughter what giving back truly means.”

To assist Claire Place Foundation’s mission in helping other children with cystic fibrosis please visit their website to make a tax deductible donation as well as support two summer 2017 bike rides fundraising for Claire’s Place  – RikisRide & Doug’s Cycling USA for Cystic Fibrosis.

 

About Claire’s Place Foundation, Inc.

Claire’s Place Foundation, Inc. is a 501c3 non-profit organization providing support to children and families affected by cystic fibrosis (CF). Claire’s Place Foundation is named in honor of Claire Wineland, now a teenager, who has been living with CF her entire life. The foundation provides grants to families affected by CF, offering both emotional and financial support. A young author of bestseller “Every Breath I Take, Surviving and Thriving with Cystic Fibrosis,” Claire’s unique inspirational model for people living with this disease has led her to be a TEDx Speaker and receive multiple awards including Seventeen Magazine’s “17 Power Teens” of 2016, Fox Teen Choice Awards 2015, Gloria Barron Prize for Young Heroes, Southbay Magazine’s “Top 10 South Bay Teen”, Looking Beyond LA’s “Soaring Spirit Award,” and winner of Los Angeles Business Journal’s “Small Nonprofit of the Year.” She has been featured on Inside Edition, The Dr. Oz Show, CNN, Huffington Post, ABC News, Cosmopolitan, People, Ladies’ Home Journal and more. Claire’s Place Foundation is a way for Claire to give back with hope, strength, and joy and make meaning of what she has had to go through. For more information and make a donation, please visit www.clairesplacefoundation.org.

Blog & Events

Riki’s Ride 17 Starts TODAY ~ Let’s Show Him Some Support

June 1, 2017

Starting today, June 1st, 2017, Riki Rachtman will be riding his motorcycle through 48 states without a chase vehicle, producer or any real plan. Riki’s Ride 17 is all about raising donations & spreading awareness for us, Claire’s Place Foundation, which provides help to children and young adults diagnosed with Cystic Fibrosis, as well as their families, for the purpose of improving their quality of life. What a ROCKSTAR!

We are so excited to have his support and would love it if our followers could show him that we are behind him 100%.

Here are 5 ways you can get involved:

  1.  Make a donation directly to Riki’s Ride here:  DONATE
  2. Order a custom Riki’s Ride 17 T-shirt by Hot Leathers here:  T-Shirt Order 100% of proceeds go directly to Claire’s Place Foundation.  Thank you Hot Leathers!
  3. Share this post on your social media channels and with your friends to get some buzz going and help us spread the word about this ride!  You can follow Riki on the road and share about his ride on Twitter, Instagram and Facebook with #RikisRide17
  4. Visit Riki’s Ride 17 Sponsor Death Wish Coffee Company and enter code CLAIRE at checkout for a 10% discount AND they will donate an extra $1 for each code used!  Great coffee, great cause!  ORDER
  5. Love PRS Guitars?  Check out this custom painted PRS Guitar created by RonzWorld Custom Painted Guitars that will be framed by G Frames and signed by some of the biggest names in rock!   This one of a kind guitar will then be auctioned off to the highest bidder with 100% of the proceeds going to Claire’s Place Foundation.  Stay tuned to www.rikisride.com for details.

Blog & Events, Families we have assisted

Teaming up with WT Farley to Help a Family in Need

May 22, 2017

Recently we were contacted by a family looking for assistance in acquiring a portable oxygen concentrator or POC for their teen, Caleb, who had become oxygen dependent due to cystic fibrosis.  This family went through a divorce and the mother, a now single parent with 3 children, was unable to find the support she needed in acquiring such an expensive device through her insurance.  Most of the time, insurance carriers will provide oxygen tanks for individuals with low income but tanks are very cumbersome and make it difficult for the patient, especially young and fairly active patients, to get out and enjoy their life.

This was a challenge we were willing to take on, especially given the fact that our Founder’s primary message is one of positivity and resilience.

We were lucky to find WT Farley, Inc., a local medical supply company serving the industry for over 45 years and known for offering Innovative, Truly Relevant and Reliable service for patients needing medical supplies including medical gas, accessories and equipment.  Not only were they helpful and knowledgeable, they were also inspired to donate the equipment to this family, what a blessing!

Working together, we were able to secure a brand new Inogen One G3 oxygen concentrator plus an over the shoulder carry bag for Caleb.  The Inogen One G3 is compact and lightweight making it easy for him to continue his active teen lifestyle.

Caleb’s mother writes “Caleb is so grateful for his new Inogen One G3 concentrator that allows him more freedom to leave the house! Thank you to Claire’s Place Foundation and WT Farley, Inc.

We are proud to partner with our friends at WT Farley, Inc. ~ your generosity has made a real difference in this teen’s life!

WT Farley Inc. has been serving the medical industry for more than 45 years. Established in 1968, Mr. Farley set out to create and offer quality products and unmatched customer service.

We have become a “just in time” company getting you what you need when you need it. Outstanding customer service is also very important to us. We pride ourselves as being helpful to our customers. If we don’t offer the product you need, we will make it or help you find someone who has it.

*Inspired by what we are up to here at Claire’s Place Foundation?  Please consider making a donation today so we can continue providing much needed support to families and children living with cystic fibrosis.  Thank you!

Blog & Events, Press

May is National Cystic Fibrosis Awareness Month: Share A Story & The Facts

May 5, 2017

Laura McHolm, Contributor NorthStar Moving Company Co-Founder

May is National Cystic Fibrosis Awareness Month: Share A Story & The Facts

05/04/2017 02:45 pm ET

How can you help? Use your voice and get involved. Participate in walks and other events to support CF and share the facts on social media and elsewhere. There is a great foundation working to find a cure: the Cystic Fibrosis Foundation as well as, a foundation that supports children and families living with CF: Claire’s Place Foundation. Get involved. Donate. Come to their events.

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Claire’s Place Foundation, founded by Claire Wineland when she was just 14 years old, is a 501c3 non-profit organization designed to help children and families affected by cystic fibrosis. Claire and was born with CF. In her short life, Claire has undergone more than 20 surgeries and has spent months at a time in the hospital. She survived months in a coma on mechanical ventilation despite the odds and was also a Make-a-Wish recipient. She has 40% of ideal lung function and the doctors have estimated two years left to live. This is not, however, what characterizes or defines her. Claire has dedicated her life work to making a difference in the lives of others living with CF.

Now 20 years old, Claire’s Place Foundation is a way for Claire to give back with hope, strength, and joy. She wants to live with intention and purpose. In her own words, “I know my life will be shorter so every day has meaning.” She strives to find new ways to help the CF community and other children afflicted with chronic illness. Claire’s Place is making a huge impact through its two programs – The Extended Hospital Stay Fund and the Family Support Program. These programs are in high demand and the foundation needs your donations to continue assisting young patients in need. You can meet Claire and support her foundation at her next fundraiser, “Glow Ride,” in September in Hermosa Beach, CA.

To find others ways you can help bring awareness to CF find a local chapter near you. In May and through out the year, let’s share Claire’s story to help find a cure!

Blog & Events, Families we have assisted

Meet Joshua ~ Extended Hospital Stay Grant Recipient

May 1, 2017

Joshua, age 11, was not diagnosed with cystic fibrosis until the age of 10.  Occasionally, patients present with all the symptoms but the underlying cause is over looked.  Thank Goodness this family found a doctor who decided to look a little deeper and try to find the cause of his recurring infections and failure to thrive.

A diagnosis such as this can be at first comforting to know that the disease causing negative and recurring issues has a name and a specific treatment plan but at the same time, it can be devastating to learn that cystic fibrosis is incurable and often times fatal.

Joshua experienced his first 2 extended hospital stays due to Pearson Pic 2 cystic fibrosis in the last few months.  This upheaval in a family can be expensive and stressful to say the least.  The social worker at their new CF Center referred them to us as potential candidates for an Extended Hospital Stay Grant and we were grateful to be able to offer them much needed assistance in catching up on missed payments and expenses incurred while caring for Joshua.

The family is home together again, learning as much as they can about raising a child with cystic fibrosis and the daily regimen involved.  Our hearts are with you and if you need anyone to help you navigate the path, please reach out to us about our Support Families Network.

“Claire’s Place has helped our family climb out from debt that had accumulated from loss of pay due to a long hospitalization for our son. We were already living paycheck to paycheck so any loss of pay has a huge detrimental effect on our family. We are still playing catch up with all the medical expenses too, seems like an impossible feat.  We cannot thank you enough for the help!”  ~ Joshua’s Parents

*This grant was made possible by our friend Riki Rachtman and his famous #RikisRide17.  He is raising money for Claire’s Place Foundation by riding his motorcycle across 48 states beginning June 1, 2017.  Be sure to visit his fundraising page today and find out more about this exciting event.  Thank you to Riki and all the people who are supporting his efforts!  YOU are making a real difference in this child’s life. (Rikis Ride 17 is sponsored in part by DeathWish Coffee)

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