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Blog & Events, Celebrity Friends

We will be on Everyday Health TV on Saturday, April 28th

April 26, 2012

Hi everyone ~

Some of you may remember that  Everyday Health TV did a show on our foundation featuring a flash mob with Ethan Zohn!  Well, they are running another brief follow up episode on us due to air this Saturday, April 28th on your local ABC station!  Click here to see a preview of the episode that will feature 3 Health Heroes including Claire Wineland.  Watch Everyday Health TV

Please check you guide or if you are in the Los Angeles area, tune in to KABC at 11:00am for Everday Health Heroes!

As always, thanks so much for you continued support!

Love,

Melissa and Claire

 

Celebrity Friends, Video

Claire’s Place Foundation Custom Bracelets

April 23, 2012

 

True Blood actor, Joe Manganiello showing his support by wearing his CPF bracelet

These beautiful bracelets were designed by Pura Vida Bracelet company just for us!! Please visit our Paypal Site to purchase these one of a kind bracelets and show your support for those living with cystic fibrosis.  They are only $10.00/ea plus shipping.

Your donation will be immediately put to work developing our programs and supporting the families that look to us for assistance

PV bracelet claires_foundation

 

 

 

 

 

 

Thank you so much for your support!

 

 

Blog & Events, Celebrity Friends

Register Here for our upcoming fundraiser “A Day at the Beach” on February 11, 2012

February 1, 2012

 

Hi everyone!  We have an exciting fundraiser coming up on February 11, 2012 in Santa Monica, CA.

Visit our Eventbrite page to register and get all the details:

A Day at the Beach Registration Page

Here’s a fun video with True Blood’s werewolf, Joe Manganiello and another video with Chad Lowe:

Joe Manganiello and Claire Wineland telling us all we need to know about A Day at the Beach fundraiser for Claire\’s Place Foundation

Video – Chad Lowe showing his support for Claire’s Place Foundation

Hope to see you all there!

 

Celebrity Friends, Press, Video

Everyday Health Heroes with Ethan Zohn, Jenna Moraska and Laila Ali!

September 8, 2011

Hi everyone!  Thank you so much for stopping by our foundation website.  We had such a great time filming Everyday Health with Ethan and Jenna! You can click to see the previews!

Here’s a little bit about it from my perspective.  ~Claire

It was about two months ago when we got the call from ABC, they wanted us to be on one of their new shows, “Every Day Health”.   My first thought was “how cool is it that they are doing a positive show about people, which we all know is rare”.  Then I thought, “Oh my gosh..they want ME to do it!”

Meanwhile, we had just started a foundation for other children and families living with Cystic Fibrosis.  We did a flash mob to kick start the foundation.  It went so well that we were thinking about doing it again but we had not put much thought into it until Everyday Health contacted us.  They said they would love to do another one with us/for us.  That sort of sold us on it!

They were scheduled to come film in about a month so we just went on with our normal life.  Sadly, I caught a virus that reacted with mouth sores caused by my chemotherapy.  I got lesions in my mouth and down my throat the same time filming started!  It was crazy, but I was able to talk and eat, just not very well.  We tried everything to get rid of them but it had to run it’s course.

The first day we started, I got to meet Ethan and Jenna, they were awesome!  It was great talking to them about our foundation and what it is like living with a disease like this.  I think Ethan really understood having gone through his cancer.  The next day, we took them to the Doctor’s appointment with us.  It was strange, I am not used to being filmed while he listens to my lungs and gives me a check up but it was great showing them that hospitals aren’t so bad.  I have been a patient at Long Beach Memorial Hospital on and off since I was 4 years old..they have the BEST doctors and nurses!

Day 2 also had a big surprise for us..I won’t give it away in case you haven’t seen the episode yet but it was unbelievable!  During all of this, we had been rehearsing our flash mob dance and trying to round up participants, get the music right, find the location, etc…it was a lot of work and a lot of fun.  Everyone with Everyday Health, The Pretenders Dance Studio and our community really came together to support us.  We are so grateful!

Finally, the big day was here..time to DANCE!  Okay, so Ethan and I are not the best dancers but this was all about having fun and raising awareness for cystic fibrosis and Claire’s Place Foundation, Inc.  We had done a flash mob before but this one seemed so much more full of impact and purpose.  I think everyone was a little nervous..and, that day my mouth was really hurting.  All the energy and excitement made me forget about the pain for a little while, I felt on top of the world.

A flash mob is really an amazing, joyful event..looking around at all the smiling faces was such a rush and knowing that people would be seeing this and maybe taking a minute to learn more about cystic fibrosis was a good feeling.  Thank you to everyone at ABC and Everyday Health for the amazing, once in a lifetime experience!

Watch the episode:

And the follow up: