Thank you so much for visiting our site! We hope you were led here by our recent March promotion announcement ~ just make a donation of at least $25 below and receive a signed copy of our book “Every Breath I Take, Surviving and Thriving with Cystic Fibrosis” written by our founder, Claire Wineland and her dear friend Chynna Bracha Levin. Link to March Promo Paypal
What is the experience of a child with a life-threatening illness? It can be so hard for parents, family, and friends to understand, because the experience of serious illness is so hard to articulate. That’s why Claire Wineland’s memoir, Every Breath I Take, Surviving and Thriving With Cystic Fibrosis, is so important. With her co-author, Chynna Bracha Levin, Claire describes with precision, honesty, and a remarkable sense of humor just what it’s like to live with an illness that is so often fatal. The book is a must read for anyone who feels compassion for a child, a relative, or friend going through an intense or even life-threatening illness. Claire explains exactly what it’s like to live as normal a life as possible while taking care of a condition that requires constant treatment and frequent hospitalization. Yet there’s nothing grim about Claire’s journey as she describes it. Claire finds the sunny side of life and the spirituality of her experiences in ways that captivate and amaze the reader. It’s impossible to come away from the book without a renewed sense of compassion and sensitivity toward anyone suffering from a serious illness. The book is required reading for anyone—adult or child—who wants to understand how it truly is possible to survive and thrive, no matter what.
Here are some reviews and articles…looks like it’s a hit!!
What an amazing year this has been! Claire has recently joined a beautiful movement of getting positive messages out to the world wide web and WOW did they get a huge response. Positivelypositive.com is such a powerful website with many beautiful people contributing stories and videos about inspiring lives, positive thinking, self love, overcoming obstacles, etc…please take a minute and check them out! You can also join their mailing list and get a daily dose of positivity right to your inbox!
It has become a fantastic platform reaching over 1 million subscribers, where she can share about what it is like living with cystic fibrosis and the importance of remaining positive.
To see all of the videos that Claire has done for them, please visit this page:
Claire explains a little bit of her tools for preparing for surgery. For other kids going through similar situations, hopefully this will help you! There is also a more professional video on the CF University page of this website called “Tips and Tricks: Relaxation 101″
MIRACLE! Claire’s first walk post coma, June 2010. Here she is with her step mother Elizabeth and Ingrid, her dear friend, filming. All the nurses and doctors were escorting her and managing her equipment. Quite a miraculous day for our family considering 2 months prior to this, she had a 1% chance of surviving her septic coma.
You can see that her sense of humor stayed intact –
This is a video that Claire made in May, 2010 a few weeks before heading home. In total, she spent 3 months in the hospital recovering from a septic incident post surgery. We were so thankful that she was able to graduate off of the high flow oxygen mask to a simple canula and that we have high hopes of recovery.
Never give up hope!