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Families we have assisted

Blog & Events, Families we have assisted

A Team Effort to Help a Family in Need

December 19, 2016

Recently, our friends at The CF Foundation helped us connect with The Breathe Foundation, a similar organization that serves CF families living in the state of New Jersey.  A family had an enormous hospital co pay that was nearly impossible for them to catch up on having only one income, a family of 6 and a child with great medical needs.  We were thrilled to work together in getting this bill completely paid off with all of your generous donations.

Elizabeth’s mother writes in their application “Elizabeth had a 2 week hospital stay shortly after my husband was laid off, causing us great high_elizabeth-picstress as he is the sole wage earner for our family of six. We struggled to make the payments on our hospital bill but it was shortly turned over to collections.  Last year, my husband earned only enough for us to get by and continue to make our insurance payments.  The Compass Program at The CF Foundation put us in touch with you and The Breathe Foundation as avenues for support…we sincerely hope that between the two of you, we can get some assistance that will help us get back on our feet.”

We reached out directly to our new friends at The Breathe Foundation and came up with a plan of action.  In a few short days, the bill was paid in full and the family notified.

The speed in which both foundations responded to our needs was so greatly appreciated.  We were just so relieved because we are also currently applying to colleges and the application fees alone are quite significant for us.  This grant has also made Elizabeth less stressed about all the costs associated with her illness and now college.”

Your donations are always hard at work here at Claire’s Place Foundation.  Please consider supporting us during our year end campaign so that our programs will continue to make a difference in the lives of so many children living with cystic fibrosis and their families.

Elizabeth ~  we will keep you in our thoughts and prayers and are sending you best wishes as you begin your college journey!

 

Blog & Events, Families we have assisted

Meet Emma ~ Extended Hospital Stay Grant Recipient

December 12, 2016

Meet Emma, a theatrical, vivacious teen living with cystic fibrosis.  Over the last year, her CF course has been plagued with several admissions, most recently for nearly an entire month, in a city quite far from their home.  Admissions such as this place a huge burden on families as it can 123_1_2cause a family to be separated for the duration and need to maintain the cost of what can feel like two households.  Food costs and lodging for caregivers, transportation costs of traveling to and from the hospital, child care for other siblings and many times, the loss of income adds up to an insurmountable financial crisis.  fb_img_1478017166739

We were so very grateful to be able to grant this family some much needed assistance, with the support of our donors.  Checks were sent out directly to their landlord, utilities company and car loan for the month so that they could focus their energy and time on being with Emma while she received the care she needed.  We are happy to report that Emma is now home and doing well ~ our thoughts and prayers are with you little fighter!

Emma’s mother writes “We are so appreciative of your organization and we know how very blessed we were to receive a referral from our social worker and ultimately a grant. Having support helped us get caught up and that meant so much to us. We are a one income family and it’s tough. Thank you for making it easier for us to be there for Emma.” 

 

Blog & Events, Families we have assisted

Meet Patricia ~ Extended Hospital Stay Grant Recipient

November 13, 2016

photostudio-pruittpruitt_pic2Meet Patricia ~ she was referred to us during an extended hospital stay due to a collapsed lung.  Thus far, she has been in the hospital for nearly one month, working hard to regain her lung function and enough strength to go home.  Patricia is one of two children in the family that suffer from cystic fibrosis and this current hospital stay has taken a real financial toll on her mother as the sole bread winner in the family.   We were very grateful to be able to assist them with getting caught up on their rent thereby avoiding an imminent eviction.

Her Mother writes “What this grant means to us is less stress.  We can continue to function as a family.  It gives us assurance that my daughter will have a home to come back to when released from the hospital.  Thank you Claire’s Place Foundation!”

Thank you to all of our donors and supporters who make these grants possible!  Please remember us as we approach #GivingTuesday where your donations will be matched 50% on our Global Giving Page

We are all pulling for you Patricia ~ wishing you a speedy recovery!

 

Blog & Events, Families we have assisted

Meet Connor ~ Extended Hospital Stay Grant Recipient

October 11, 2016

Meet Connor, a vivacious pre teen living with cystic fibrosis.  Connor’s family recently had a financial adjustment that caused them to lose their secondary insurance, something very important for families living with chronic illness.  Connor is currently battling a mycobacterium, a very resistant bacteria with properties that can wreak havoc on compromised immune systems and children with lung disease such as cystic fibrosis.  connor-jpg

Connor’s family was referred to us through their hospital social worker who wrote “Connor’s extensive medical needs this year have caused a great financial hardship for the family.  His parents take turns staying with him during his treatments and I know how very important their presence is for his recovery and mental well being.  Any assistance you might provide for them would be greatly appreciated and well deserved.”

We were excited to provide an Extended Hospital Stay Grant to this family to cover their monthly utilities, gas and mortgage with the generous support of our lovely donors.  Please, keep up the great work and know that your donations are making a real difference for this family and many others.

Thank you so very much for your help! I can’t describe how much stress it took off my plate! Thank you from the bottom of my heart!”  ~ Jamie, Connor’s Mom

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Connor with his mom Jamie

 

 

Blog & Events, Families we have assisted

Meet Juan ~ Extended Hospital Stay Grant Recipient

July 21, 2016

Juan was introduced to Claire’s Place Foundation by the Cystic Fibrosis Foundation’s Compass program, a personalized service to help you with the insurance, financial, legal and other issues you are facing.   Juan is a vibrant young man living with cystic fibrosis, trying to maintain a full time job as well as his health needs on a daily basis.  As most of us  know, insurance companies can be very difficult to maneuver and often times the co-pays when dealing with a chronic illness are insurmountable.

Juan’s doctors prescribed the use of a High-frequency Chest Wall Oscillation Vest almost one year ago Photo (1)but he had not been able to find a way to cover the equipment co-pay which was just over $3,000.  A Social Worker at the Compass program reached out to us after an extended hospital stay to see if we might be able to help.

With the funds raised at our events this year, we were able to send a check out directly to the maker of the vest system so that Juan could receive his vest!

His most recent email says “I started using my new vest system and looks like it is doing its job.  Yesterday, I went to my doctor appointment and my PFT (pulmonary function test) went up by 3%! I owe Claire’s Place Foundation those 3%!!!

Last year, Juan participated in the CF Foundation’s Maryland Cycle for Life Event and created a beautiful video of his team, the Spinning Dreamers.  Please take a look at this inspirational young man’s commitment to raising funds to help find a cure for Cystic Fibrosis!  YouTube Spinning Dreamers Video

Your donations are hard at work helping families that look to us for assistance ~ thank you so much!

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