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Families we have assisted

Blog & Events, Families we have assisted

Teaming up with WT Farley to Help a Family in Need

May 22, 2017

Recently we were contacted by a family looking for assistance in acquiring a portable oxygen concentrator or POC for their teen, Caleb, who had become oxygen dependent due to cystic fibrosis.  This family went through a divorce and the mother, a now single parent with 3 children, was unable to find the support she needed in acquiring such an expensive device through her insurance.  Most of the time, insurance carriers will provide oxygen tanks for individuals with low income but tanks are very cumbersome and make it difficult for the patient, especially young and fairly active patients, to get out and enjoy their life.

This was a challenge we were willing to take on, especially given the fact that our Founder’s primary message is one of positivity and resilience.

We were lucky to find WT Farley, Inc., a local medical supply company serving the industry for over 45 years and known for offering Innovative, Truly Relevant and Reliable service for patients needing medical supplies including medical gas, accessories and equipment.  Not only were they helpful and knowledgeable, they were also inspired to donate the equipment to this family, what a blessing!

Working together, we were able to secure a brand new Inogen One G3 oxygen concentrator plus an over the shoulder carry bag for Caleb.  The Inogen One G3 is compact and lightweight making it easy for him to continue his active teen lifestyle.

Caleb’s mother writes “Caleb is so grateful for his new Inogen One G3 concentrator that allows him more freedom to leave the house! Thank you to Claire’s Place Foundation and WT Farley, Inc.

We are proud to partner with our friends at WT Farley, Inc. ~ your generosity has made a real difference in this teen’s life!

WT Farley Inc. has been serving the medical industry for more than 45 years. Established in 1968, Mr. Farley set out to create and offer quality products and unmatched customer service.

We have become a “just in time” company getting you what you need when you need it. Outstanding customer service is also very important to us. We pride ourselves as being helpful to our customers. If we don’t offer the product you need, we will make it or help you find someone who has it.

*Inspired by what we are up to here at Claire’s Place Foundation?  Please consider making a donation today so we can continue providing much needed support to families and children living with cystic fibrosis.  Thank you!

Blog & Events, Families we have assisted

Meet Joshua ~ Extended Hospital Stay Grant Recipient

May 1, 2017

Joshua, age 11, was not diagnosed with cystic fibrosis until the age of 10.  Occasionally, patients present with all the symptoms but the underlying cause is over looked.  Thank Goodness this family found a doctor who decided to look a little deeper and try to find the cause of his recurring infections and failure to thrive.

A diagnosis such as this can be at first comforting to know that the disease causing negative and recurring issues has a name and a specific treatment plan but at the same time, it can be devastating to learn that cystic fibrosis is incurable and often times fatal.

Joshua experienced his first 2 extended hospital stays due to Pearson Pic 2 cystic fibrosis in the last few months.  This upheaval in a family can be expensive and stressful to say the least.  The social worker at their new CF Center referred them to us as potential candidates for an Extended Hospital Stay Grant and we were grateful to be able to offer them much needed assistance in catching up on missed payments and expenses incurred while caring for Joshua.

The family is home together again, learning as much as they can about raising a child with cystic fibrosis and the daily regimen involved.  Our hearts are with you and if you need anyone to help you navigate the path, please reach out to us about our Support Families Network.

“Claire’s Place has helped our family climb out from debt that had accumulated from loss of pay due to a long hospitalization for our son. We were already living paycheck to paycheck so any loss of pay has a huge detrimental effect on our family. We are still playing catch up with all the medical expenses too, seems like an impossible feat.  We cannot thank you enough for the help!”  ~ Joshua’s Parents

*This grant was made possible by our friend Riki Rachtman and his famous #RikisRide17.  He is raising money for Claire’s Place Foundation by riding his motorcycle across 48 states beginning June 1, 2017.  Be sure to visit his fundraising page today and find out more about this exciting event.  Thank you to Riki and all the people who are supporting his efforts!  YOU are making a real difference in this child’s life. (Rikis Ride 17 is sponsored in part by DeathWish Coffee)

Pearson Pic 3

Blog & Events, Families we have assisted

Meet Jackson ~ Extended Hospital Stay Grant Recipient

April 7, 2017

Wimmer Photo2Jackson’s family came to us shortly after a second extended hospital stay in great need of assistance. He is one of 3 children in the family and the only one with cystic fibrosis.  This year has been a particularly rough year for the family as they recently lost a parent after a long battle with cancer.  Jackson’s mother works full time but was in her new job less than a year when Jackson suffered his second hospital stay therefore she was not eligible for FMLA/paid family leave.

The social worker at their hospital reached out to Claire’s Place Foundation in the hopes of helping this family keep their home, which was in threat of foreclosure.

We were thrilled and grateful to be able to provide assistance so that the family could rest at ease and take a minute to get caught up on their mortgage and other bills that were also piling up. This was only possible due to recent help from our supporters in the form of a “Wedding Shower Donation“.  Thank you to Kathie and Paul DPhoto1avid who worked so diligently fundraising for this important program.

“Claire’s Place Foundation has helped our family by not being put out on the street.  They saved us from the heartache, stress, constant worry and feelings of worthlessness.  We will be able to remain as a family unit in our home that was facing foreclosure proceedings. This is something that we will be eternally grateful for, for the rest of our lives.” ~ Jackson’s Mother

Even with all the hard work it takes for this family to stay afloat, the social worker let me know that Jackson’s mother is the first person to put her hand out to newly diagnosed families at their cystic fibrosis center and has volunteered many times with projects to improve the overall care of the kids in their community.

Our hat is off to you, many blessings to you and your family ~

*If you are interested in hosting a fundraiser for Claire’s Place Foundation through our Crowdrise site, please let us know by sending an email to Melissa@clairesplacefoundation.org

Blog & Events, Families we have assisted

Meet Isis ~ Extended Hospital Stay Grant Recipient

January 26, 2017

This was a first of it’s kind request and has left a real impact on all of us here at Claire’s Place Foundation.

Isis was introduced to us by our friends at The Cystic Fibrosis Foundation’s Compass Program, a personalized service to help you with the insurance, financial, legal and other issues you are facing when living with this disease.

Isis is a 27 year old woman with cystic fibrosis who found herself, due to some extenuating circumstances, homeless and living in a shelter.  Immediately our hearts went out to her as we could not imagine how difficult it must be to care for such a high maintenance illness while not having a place to call home.

Over the next 6 weeks, we communicated regularly as she tried various avenues for support in finding a place to live.  At one point, she was hospitalized and didn’t have anywhere to go when released with all her medications and continuous need for breathing treatments.

Isis worked very hard and was finally able to find an apartment complex that gives people like her a second chance but she could not afford the deposit plus utilities in order to move in.  We were thrilled to be able to provide that for her through our generous supporters and are happy to say that she is settling in to her new apartment and working at a new job!

I feel so relieved to have Claire’s Place Foundation on my side.  I am a strong believer in God and I isis-photobelieve He sent them to me to help get me out of homelessness. I want to send blessing to you all and your whole group for helping me.  It brings tears of joy to my eyes!” ~ Isis

Our hearts are with you Isis ~ we hope this new home offers you a fresh start and a clean, safe environment where you can take the best possible care of yourself and your illness.

Lots of love to all of you who help make this important program possible!

Please consider becoming a monthly donor or making a one time donation to our Extended Hospital Stay Grant Program here

 

 

Blog & Events, Families we have assisted

A Team Effort to Help a Family in Need

December 19, 2016

Recently, our friends at The CF Foundation helped us connect with The Breathe Foundation, a similar organization that serves CF families living in the state of New Jersey.  A family had an enormous hospital co pay that was nearly impossible for them to catch up on having only one income, a family of 6 and a child with great medical needs.  We were thrilled to work together in getting this bill completely paid off with all of your generous donations.

Elizabeth’s mother writes in their application “Elizabeth had a 2 week hospital stay shortly after my husband was laid off, causing us great high_elizabeth-picstress as he is the sole wage earner for our family of six. We struggled to make the payments on our hospital bill but it was shortly turned over to collections.  Last year, my husband earned only enough for us to get by and continue to make our insurance payments.  The Compass Program at The CF Foundation put us in touch with you and The Breathe Foundation as avenues for support…we sincerely hope that between the two of you, we can get some assistance that will help us get back on our feet.”

We reached out directly to our new friends at The Breathe Foundation and came up with a plan of action.  In a few short days, the bill was paid in full and the family notified.

The speed in which both foundations responded to our needs was so greatly appreciated.  We were just so relieved because we are also currently applying to colleges and the application fees alone are quite significant for us.  This grant has also made Elizabeth less stressed about all the costs associated with her illness and now college.”

Your donations are always hard at work here at Claire’s Place Foundation.  Please consider supporting us during our year end campaign so that our programs will continue to make a difference in the lives of so many children living with cystic fibrosis and their families.

Elizabeth ~  we will keep you in our thoughts and prayers and are sending you best wishes as you begin your college journey!