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Families we have assisted

Blog & Events, Families we have assisted

Meet Lori ~ Extended Hospital Stay Grant Recipient

July 17, 2017

Lori is a young woman with cystic fibrosis that was referred to us by her hospital social worker.

Her referral reads “Lori is a beautiful and strong young woman living with cystic fibrosis. We have witnessed her endure numerous obstacles, while simultaneously participating within the CF community. Any assistance that you may provide to her and her family would be greatly appreciated.”

Lori had just been hospitalized for a long period of time and she and her fiance desperately needed help catching up on bills as she tried to return to her daily life.  Because of you, our generous supporters, we were able to provide them with a grant to cover one month’s expenses so they could get back on their feet.

She writes “Thank you so much for all that you do. I appreciate how much you have helped my me and my fiance with the Extended Hospital Stay Grant, it has made a huge difference!

Thank you to all of our supporters ~ your donations are hard at work in our CF community and are making a real difference for many children, young adults and families.

This grant was made possible by 2 fundraisers going on right now!  Riki’s Ride 17 and Cycling USA for Cystic Fibrosis.  Way to be awesome guys! Let’s show them some love!

Blog & Events, Families we have assisted

Meet Logan ~ Extended Hospital Stay Grant Recipient

June 6, 2017

Logan is an 11 year old boy living with cystic fibrosis and has had a particularly rough year.  He was referred to us by his CF Center Social Worker who let us know that he has been hospitalized 4 times in quick succession and the family was facing extreme financial difficulties as well as a move to a new city.  Logan’s parents made the decision that many parents of children with Cystic Fibrosis do and were depending on only one income so that one parent could take care of all the many hours of treatments, doctor appointments, missed school and hospital stays that constitute living with this disease.

Out of desperation and in an attempt to bring in more money, Logan’s father accepted a job for better pay in a city far from home.  The cost of moving expenses coupled with 4 hospital stays became too much to bear and the family was in a critical position.

We are so grateful that our supporters continue to make donations to the Extended Hospital Stay Fund so that we can help families like this.  We were able to cover the rent and utilities for the month of May so that they could take a breath and get settled in to their new home and new CF Center/hospital.

This grant was made possible in part by our friend Douglas Forsyth and the fundraising he is doing in honor of his young friend Connor, a 5 year old with Cystic Fibrosis.  Douglas is riding his bicycle 3400 miles from Portland, OR to New York City beginning in July.  Please support his efforts and thank him for his generosity by visiting his Go Fund Me Page to make a donation and following his Facebook Page.  Thank you Douglas and everyone who is helping with Cycling America for CF!  Your efforts are making a real difference in this family’s life.

Logan’s parents write “Our family took a huge pay cut so that my husband could attend a 2 week job training for his new position and at the exact same time, we were hit with another long hospital stay, the 4th this year.  Without help from Claire’s Place Foundation, we would not have had the money to cover our rent and make the move needed to start a better life.  Knowing that it was taken care of took a huge burden off of our shoulders and allowed us to focus on Logan.  We feel blessed! Thank you all

Cycling America for CF is sponsored byIdentified Talent Solutions, Dixon Construction, Inc. and Hermosa Cyclery


Blog & Events, Families we have assisted

Teaming up with WT Farley to Help a Family in Need

May 22, 2017

Recently we were contacted by a family looking for assistance in acquiring a portable oxygen concentrator or POC for their teen, Caleb, who had become oxygen dependent due to cystic fibrosis.  This family went through a divorce and the mother, a now single parent with 3 children, was unable to find the support she needed in acquiring such an expensive device through her insurance.  Most of the time, insurance carriers will provide oxygen tanks for individuals with low income but tanks are very cumbersome and make it difficult for the patient, especially young and fairly active patients, to get out and enjoy their life.

This was a challenge we were willing to take on, especially given the fact that our Founder’s primary message is one of positivity and resilience.

We were lucky to find WT Farley, Inc., a local medical supply company serving the industry for over 45 years and known for offering Innovative, Truly Relevant and Reliable service for patients needing medical supplies including medical gas, accessories and equipment.  Not only were they helpful and knowledgeable, they were also inspired to donate the equipment to this family, what a blessing!

Working together, we were able to secure a brand new Inogen One G3 oxygen concentrator plus an over the shoulder carry bag for Caleb.  The Inogen One G3 is compact and lightweight making it easy for him to continue his active teen lifestyle.

Caleb’s mother writes “Caleb is so grateful for his new Inogen One G3 concentrator that allows him more freedom to leave the house! Thank you to Claire’s Place Foundation and WT Farley, Inc.

We are proud to partner with our friends at WT Farley, Inc. ~ your generosity has made a real difference in this teen’s life!

WT Farley Inc. has been serving the medical industry for more than 45 years. Established in 1968, Mr. Farley set out to create and offer quality products and unmatched customer service.

We have become a “just in time” company getting you what you need when you need it. Outstanding customer service is also very important to us. We pride ourselves as being helpful to our customers. If we don’t offer the product you need, we will make it or help you find someone who has it.

*Inspired by what we are up to here at Claire’s Place Foundation?  Please consider making a donation today so we can continue providing much needed support to families and children living with cystic fibrosis.  Thank you!

Blog & Events, Families we have assisted

Meet Joshua ~ Extended Hospital Stay Grant Recipient

May 1, 2017

Joshua, age 11, was not diagnosed with cystic fibrosis until the age of 10.  Occasionally, patients present with all the symptoms but the underlying cause is over looked.  Thank Goodness this family found a doctor who decided to look a little deeper and try to find the cause of his recurring infections and failure to thrive.

A diagnosis such as this can be at first comforting to know that the disease causing negative and recurring issues has a name and a specific treatment plan but at the same time, it can be devastating to learn that cystic fibrosis is incurable and often times fatal.

Joshua experienced his first 2 extended hospital stays due to Pearson Pic 2 cystic fibrosis in the last few months.  This upheaval in a family can be expensive and stressful to say the least.  The social worker at their new CF Center referred them to us as potential candidates for an Extended Hospital Stay Grant and we were grateful to be able to offer them much needed assistance in catching up on missed payments and expenses incurred while caring for Joshua.

The family is home together again, learning as much as they can about raising a child with cystic fibrosis and the daily regimen involved.  Our hearts are with you and if you need anyone to help you navigate the path, please reach out to us about our Support Families Network.

“Claire’s Place has helped our family climb out from debt that had accumulated from loss of pay due to a long hospitalization for our son. We were already living paycheck to paycheck so any loss of pay has a huge detrimental effect on our family. We are still playing catch up with all the medical expenses too, seems like an impossible feat.  We cannot thank you enough for the help!”  ~ Joshua’s Parents

*This grant was made possible by our friend Riki Rachtman and his famous #RikisRide17.  He is raising money for Claire’s Place Foundation by riding his motorcycle across 48 states beginning June 1, 2017.  Be sure to visit his fundraising page today and find out more about this exciting event.  Thank you to Riki and all the people who are supporting his efforts!  YOU are making a real difference in this child’s life. (Rikis Ride 17 is sponsored in part by DeathWish Coffee)

Pearson Pic 3

Blog & Events, Families we have assisted

Meet Jackson ~ Extended Hospital Stay Grant Recipient

April 7, 2017

Wimmer Photo2Jackson’s family came to us shortly after a second extended hospital stay in great need of assistance. He is one of 3 children in the family and the only one with cystic fibrosis.  This year has been a particularly rough year for the family as they recently lost a parent after a long battle with cancer.  Jackson’s mother works full time but was in her new job less than a year when Jackson suffered his second hospital stay therefore she was not eligible for FMLA/paid family leave.

The social worker at their hospital reached out to Claire’s Place Foundation in the hopes of helping this family keep their home, which was in threat of foreclosure.

We were thrilled and grateful to be able to provide assistance so that the family could rest at ease and take a minute to get caught up on their mortgage and other bills that were also piling up. This was only possible due to recent help from our supporters in the form of a “Wedding Shower Donation“.  Thank you to Kathie and Paul DPhoto1avid who worked so diligently fundraising for this important program.

“Claire’s Place Foundation has helped our family by not being put out on the street.  They saved us from the heartache, stress, constant worry and feelings of worthlessness.  We will be able to remain as a family unit in our home that was facing foreclosure proceedings. This is something that we will be eternally grateful for, for the rest of our lives.” ~ Jackson’s Mother

Even with all the hard work it takes for this family to stay afloat, the social worker let me know that Jackson’s mother is the first person to put her hand out to newly diagnosed families at their cystic fibrosis center and has volunteered many times with projects to improve the overall care of the kids in their community.

Our hat is off to you, many blessings to you and your family ~

*If you are interested in hosting a fundraiser for Claire’s Place Foundation through our Crowdrise site, please let us know by sending an email to Melissa@clairesplacefoundation.org