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Families we have assisted

Blog & Events, Families we have assisted

Meet Amara ~ Extended Hospital Stay Grant Recipient

August 9, 2017

Currently we have 2 individuals doing phenomenal fundraisers for Claire’s Place Foundation.  Doug Forsyth just completed his 31 day, 3800 mile bike ride across America and Riki Rachtman has just completed 10,000 miles on his motorcycle for #RikisRide17.  We want to show you what their efforts have done for this family and many more over the last 2 months.

Amara was referred to us by Boston Children’s Hospital as having “severe Cystic Fibrosis” and being evaluated for lung transplant at the very young age of 6 years old.  Cystic Fibrosis has many genetic mutations, some more difficult to manage than others and some patients have coexisting conditions that make it even more deadly.

Amara has been hospitalized for over 3 months since January 2017, one of the stays included a very severe infection that ended up in her needing to be intubated.  Luckily, she was strong enough to recover but it has resulted in both significant emotional and financial stress for her single income family who is struggling to stay with her and provide her with the support and love she needs.

Due to the hard work of both Riki and Doug and all the people who sponsor and support their efforts, we were able to assist this family with back rent and associated late fees.

Amara’s mother writes: “As a parent of a child as sick as mine, it feels so refreshing to know that there are people who care.  Any support goes a long way and my family and I are so grateful for this gesture.  I pray that this organization is able to help other families in need as they have helped mine.  Thank you beyond expression!”

Riki and Douglas, thank you from the bottom of our hearts!  Your efforts are herculean and are directly helping kids and families every day here at Claire’s Place Foundation.  BIG thank you to all the sponsors as well:  Hermosa Cyclery, Identified Talent Solutions, Dixon Construction, DIAL Insights, Glastonbury Dental AssociatesLafayette-DuPont#19 Fan Page, MESH, Hot Leathers, LawTigers, DeathWish Coffee, RonzWorld Guitars and GFrames 

There is still time to donate to each fundraiser, let’s show them some love ~

Cycling America for CF Facebook Page (be sure to watch the video of Douglas crossing the finish line in NYC yesterday! To donate on his FB page, click “shop now”)

Rikis Ride 17 Website – You can follow him on social media by using the hashtag #RikisRide17

 

Blog & Events, Families we have assisted

Meet Allison ~ Extended Hospital Stay Grant Recipient

August 2, 2017

Allison’s story is very relevant to today’s insurance debate and we were grateful to be able to make a difference for her, even if only a small one.  Allison is a young woman with Cystic Fibrosis who recently lost her Medi Cal insurance which is devastating for anyone living with a chronic illness like “CF”.  Being privately insured demands that the individual pay exorbitant co pays and are expected to pay very high “out of pocket” expenses for a calendar year.  In Allison’s case, her yearly deductible was met in February due to such high medical costs and her illness makes it very difficult for her to maintain a steady paycheck.

Allison with her loving family, second from the left

Allison was referred to us by our friends at the Cystic Fibrosis Foundation’s Compass Program, a personalized service to help you with the insurance, financial, legal, and other issues you are facing.  She came to us with a hospital bill that she had been chipping away at but was still out of her reach.  We were thrilled to be able to make a payment towards her bill but were unable to pay it in full.  We have committed to working with Allison and her hospital to help pay this down as funds allow.

Allison writes “I have been having financial hardships since the end of 2016 due to medical costs and issues. I was denied from Medi-cal  and could no longer afford my medications out of pocket. With my new insurance, I was expected to pay $5,700 for out of pocket expenses for the 2017 calendar year. With high medical costs, my deductible was met in Feburary 2017. Since January I have had 3 hospital stays amounting to a bill of ___ dollars. I am very grateful to Claire’s Place Foundation for contributing towards my bill. I have had a stressful year and receiving help from this foundation has helped put my mind at ease.”

Thank you for all of your support dear donors!  Your donations are hard at work in our community making a difference for people like Allison

This grant was made possible by 2 fundraisers going on right now!  Riki’s Ride 17 and Cycling USA for Cystic Fibrosis.  Way to be awesome guys! Let’s show them some support!

Blog & Events, Families we have assisted

Meet Lori ~ Extended Hospital Stay Grant Recipient

July 17, 2017

Lori is a young woman with cystic fibrosis that was referred to us by her hospital social worker.

Her referral reads “Lori is a beautiful and strong young woman living with cystic fibrosis. We have witnessed her endure numerous obstacles, while simultaneously participating within the CF community. Any assistance that you may provide to her and her family would be greatly appreciated.”

Lori had just been hospitalized for a long period of time and she and her fiance desperately needed help catching up on bills as she tried to return to her daily life.  Because of you, our generous supporters, we were able to provide them with a grant to cover one month’s expenses so they could get back on their feet.

She writes “Thank you so much for all that you do. I appreciate how much you have helped my me and my fiance with the Extended Hospital Stay Grant, it has made a huge difference!

Thank you to all of our supporters ~ your donations are hard at work in our CF community and are making a real difference for many children, young adults and families.

This grant was made possible by 2 fundraisers going on right now!  Riki’s Ride 17 and Cycling USA for Cystic Fibrosis.  Way to be awesome guys! Let’s show them some love!

Blog & Events, Families we have assisted

Meet Logan ~ Extended Hospital Stay Grant Recipient

June 6, 2017

Logan is an 11 year old boy living with cystic fibrosis and has had a particularly rough year.  He was referred to us by his CF Center Social Worker who let us know that he has been hospitalized 4 times in quick succession and the family was facing extreme financial difficulties as well as a move to a new city.  Logan’s parents made the decision that many parents of children with Cystic Fibrosis do and were depending on only one income so that one parent could take care of all the many hours of treatments, doctor appointments, missed school and hospital stays that constitute living with this disease.

Out of desperation and in an attempt to bring in more money, Logan’s father accepted a job for better pay in a city far from home.  The cost of moving expenses coupled with 4 hospital stays became too much to bear and the family was in a critical position.

We are so grateful that our supporters continue to make donations to the Extended Hospital Stay Fund so that we can help families like this.  We were able to cover the rent and utilities for the month of May so that they could take a breath and get settled in to their new home and new CF Center/hospital.

This grant was made possible in part by our friend Douglas Forsyth and the fundraising he is doing in honor of his young friend Connor, a 5 year old with Cystic Fibrosis.  Douglas is riding his bicycle 3400 miles from Portland, OR to New York City beginning in July.  Please support his efforts and thank him for his generosity by visiting his Go Fund Me Page to make a donation and following his Facebook Page.  Thank you Douglas and everyone who is helping with Cycling America for CF!  Your efforts are making a real difference in this family’s life.

Logan’s parents write “Our family took a huge pay cut so that my husband could attend a 2 week job training for his new position and at the exact same time, we were hit with another long hospital stay, the 4th this year.  Without help from Claire’s Place Foundation, we would not have had the money to cover our rent and make the move needed to start a better life.  Knowing that it was taken care of took a huge burden off of our shoulders and allowed us to focus on Logan.  We feel blessed! Thank you all

Cycling America for CF is sponsored byIdentified Talent Solutions, Dixon Construction, Inc. and Hermosa Cyclery


Blog & Events, Families we have assisted

Teaming up with WT Farley to Help a Family in Need

May 22, 2017

Recently we were contacted by a family looking for assistance in acquiring a portable oxygen concentrator or POC for their teen, Caleb, who had become oxygen dependent due to cystic fibrosis.  This family went through a divorce and the mother, a now single parent with 3 children, was unable to find the support she needed in acquiring such an expensive device through her insurance.  Most of the time, insurance carriers will provide oxygen tanks for individuals with low income but tanks are very cumbersome and make it difficult for the patient, especially young and fairly active patients, to get out and enjoy their life.

This was a challenge we were willing to take on, especially given the fact that our Founder’s primary message is one of positivity and resilience.

We were lucky to find WT Farley, Inc., a local medical supply company serving the industry for over 45 years and known for offering Innovative, Truly Relevant and Reliable service for patients needing medical supplies including medical gas, accessories and equipment.  Not only were they helpful and knowledgeable, they were also inspired to donate the equipment to this family, what a blessing!

Working together, we were able to secure a brand new Inogen One G3 oxygen concentrator plus an over the shoulder carry bag for Caleb.  The Inogen One G3 is compact and lightweight making it easy for him to continue his active teen lifestyle.

Caleb’s mother writes “Caleb is so grateful for his new Inogen One G3 concentrator that allows him more freedom to leave the house! Thank you to Claire’s Place Foundation and WT Farley, Inc.

We are proud to partner with our friends at WT Farley, Inc. ~ your generosity has made a real difference in this teen’s life!

WT Farley Inc. has been serving the medical industry for more than 45 years. Established in 1968, Mr. Farley set out to create and offer quality products and unmatched customer service.

We have become a “just in time” company getting you what you need when you need it. Outstanding customer service is also very important to us. We pride ourselves as being helpful to our customers. If we don’t offer the product you need, we will make it or help you find someone who has it.

*Inspired by what we are up to here at Claire’s Place Foundation?  Please consider making a donation today so we can continue providing much needed support to families and children living with cystic fibrosis.  Thank you!