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Families we have assisted

Blog & Events, Families we have assisted

Meet Connor ~ Extended Hospital Stay Grant Recipient

October 11, 2016

Meet Connor, a vivacious pre teen living with cystic fibrosis.  Connor’s family recently had a financial adjustment that caused them to lose their secondary insurance, something very important for families living with chronic illness.  Connor is currently battling a mycobacterium, a very resistant bacteria with properties that can wreak havoc on compromised immune systems and children with lung disease such as cystic fibrosis.  connor-jpg

Connor’s family was referred to us through their hospital social worker who wrote “Connor’s extensive medical needs this year have caused a great financial hardship for the family.  His parents take turns staying with him during his treatments and I know how very important their presence is for his recovery and mental well being.  Any assistance you might provide for them would be greatly appreciated and well deserved.”

We were excited to provide an Extended Hospital Stay Grant to this family to cover their monthly utilities, gas and mortgage with the generous support of our lovely donors.  Please, keep up the great work and know that your donations are making a real difference for this family and many others.

Thank you so very much for your help! I can’t describe how much stress it took off my plate! Thank you from the bottom of my heart!”  ~ Jamie, Connor’s Mom


Connor with his mom Jamie



Blog & Events, Families we have assisted

Meet Juan ~ Extended Hospital Stay Grant Recipient

July 21, 2016

Juan was introduced to Claire’s Place Foundation by the Cystic Fibrosis Foundation’s Compass program, a personalized service to help you with the insurance, financial, legal and other issues you are facing.   Juan is a vibrant young man living with cystic fibrosis, trying to maintain a full time job as well as his health needs on a daily basis.  As most of us  know, insurance companies can be very difficult to maneuver and often times the co-pays when dealing with a chronic illness are insurmountable.

Juan’s doctors prescribed the use of a High-frequency Chest Wall Oscillation Vest almost one year ago Photo (1)but he had not been able to find a way to cover the equipment co-pay which was just over $3,000.  A Social Worker at the Compass program reached out to us after an extended hospital stay to see if we might be able to help.

With the funds raised at our events this year, we were able to send a check out directly to the maker of the vest system so that Juan could receive his vest!

His most recent email says “I started using my new vest system and looks like it is doing its job.  Yesterday, I went to my doctor appointment and my PFT (pulmonary function test) went up by 3%! I owe Claire’s Place Foundation those 3%!!!

Last year, Juan participated in the CF Foundation’s Maryland Cycle for Life Event and created a beautiful video of his team, the Spinning Dreamers.  Please take a look at this inspirational young man’s commitment to raising funds to help find a cure for Cystic Fibrosis!  YouTube Spinning Dreamers Video

Your donations are hard at work helping families that look to us for assistance ~ thank you so much!


Blog & Events, Families we have assisted

Meet Reid ~ Extended Hospital Stay Grant Recipient

July 4, 2016

Reid was referred to us by the Cystic Fibrosis Foundation’s Compass Program, a personalized service to help “CFers” with the insurance, financial, legal and other issues they face dealing with cystic fibrosis, a lifelong, chronic illness.

Reid came to us with a unique situation, requiring us to expand our reach to be able to provide her with much ReidSmithneeded assistance. Rather than one extended hospital stay, she was struggling with an exorbitant out of pocket medical bill resulting from years of hospitalizations due to cystic fibrosis.

She wrote “I am a married 30 year old female with Cystic Fibrosis, working full time and supporting my own medical expenses. Through my job, I have health insurance; however, each year I meet the $6,1250 in out­of­pocket maximum. Over the years, these expenses have compounded, leaving me with over $12,000 in debt to (hospital name confidential) and a hefty monthly payment. With the help of the CF Foundation, I have negotiated a settlement sum with the hospital to eradicate this insurmountable debt so that I can move forward and investigate a new insurance plan that will relieve this monthly burden.”

A special meeting of our Board of Directors resulted in our decision to provide several thousand dollars towards Reid’s hospital bill, making it easier for her to meet the initial lump sum payment agreement she had negotiated and move forward with a more realistic monthly payment plan.

Reid sent us a beautiful quote to share with all of you that support our efforts in the hopes that you understand how incredibly helpful your generosity is to people in the CF Community.

“I wish to express my gratitude to Claire’s Place Foundation for assistance with out of pocket medical costs. Most adults strive to find the right work/life balance; as a working adult with CF, one must find a work/life/CF balance. Lengthy hospital stays and missed time at work combine with oftentimes untenable medical expenses. I am extremely grateful to Claire’s Place for helping relieve some of this stress by assisting with my medical bills and allowing me to seek the proper care. Yours is an extremely helpful and wonderful service to provide to the CF community.”

Reid, we wish you all the very best ~ you are an inspiration to others!

As always, thank you for your support!  To make a donation to this program, please click here

Blog & Events, Families we have assisted

In Loving Memory of Maria

July 1, 2016

Maria’s family came to us almost 4 years post double lung transplant.  Their daughter, Maria, received a lung transplant in 2012 and enjoyed many years with great health.  Sadly, in February 2016, she was admitted for chronic rejection and subsequently passed away in April 2016.  Maria Fajardo fence picture

Her family spent 3 months with her in the PICU as Maria and her doctors fought to reverse her rejection. Her mother says “Maria was a real fighter, a lover of life, we will miss her more than words can say.  Our long hospital stay created great financial hardship and of course emotional as now we must deal with laying her to rest.  Thank you Claire’s Place Foundation for your support ~ we really needed a shoulder to lean on and you came through for us.”

Thank you Claire’s Place Foundation supporters ~ your donations are making a real difference!  Click here to make a donation today so that this important program can continue to provide much needed assistance to families like Maria’s

Rest in Peace dear Maria

Blog & Events, Families we have assisted

Meet Trent and Tremmell ~ Extended Hospital Stay Grant Recipients

May 24, 2016

Tremmell’s parents were referred to us during a particularly difficult time.  Tremmell had been in patient for 2 weeks and his little brother, Trent, was also experiencing 20151129_183259symptoms that would land him in the hospital next.  Raising 2 children with cystic fibrosis is a herculean effort and we were thrilled to be able to assist them with an Extended Hospital Stay Grant so that they could focus on getting both of their children  home and healthy.

Claire’s Place Foundation was a real life saver for our family last month!  We had been struggling as it was but add to that 2 children in the hospital and it was nearly impossible to make ends meet.  We both work very hard to support our kids financially and emotionally and it’s difficult asking for help ~ thank you for paying our mortgage, cell phone bills and utilities! Just knowing that there is someone out there to lean on when times are tough makes all the difference.”

Your donations are hard at work ~ thank you for your support!