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Blog & Events, Families we have assisted

Meet Payton ~ Extended Hospital Stay Grant Recipient

November 10, 2017

Payton’s family is committed to getting her the best care possible even though they reside in an area without an accredited CF Center.  “The Cystic Fibrosis Foundation funds and accredits care centers located at teaching and community hospitals across the country. These centers offer comprehensive, high-quality care. This elevated level of specialized care has led to longer, more productive lives for people living with CF.”

Living in Hawaii but having Payton’s care managed at Lucile Packard Children’s Hospital here in California put a huge financial strain on this family, as you can imagine.

Traveling back and forth every 3 months for clinic visits and enduring 2 week stays for “tune ups” has been a nearly impossible task but one they are committed to to ensure she receives the best care possible.

Claire’s Place Foundation was happy to provide a grant for this family to cover their mortgage, a portion of their outstanding hospital bill and pharmacy bills so that they would have additional monies to cover the cost of airfare and travel related expenses that were becoming overwhelming.

Payton’s mother writes

Claire’s Place has helped lift some of the financial burden off of our shoulders during this stressful time.

We can’t thank you all enough for this grant . Caring for our daughter is our number one job . At times the pressure to have enough cash to provide what she needs can be so hard . We are very thankful for this Foundation . Truly a blessing & so appreciated !! Bless you all !!!”

This grant was made possible by all of the wonderful fundraising done by you, Rikis Ride 2017 and Thrive: Make Money Matter ~ we are so grateful.  I love it that the structure Claire set in place when founding this organization is very simple ~ donations come in and grants go out.  We have very little overhead so you know that most of your donation will go directly to a family in need.

Thank you one and all for your continued support of this important program.

Blog & Events, Press

Thrive Event Raises Over $150K for Claire’s Place Foundation

November 8, 2017

Los Angeles, CA, Nov. 08, 2017 (GLOBE NEWSWIRE) — Claire’s Place Foundation, a non-profit organization providing support to children and families affected by cystic fibrosis, thanks the founders of Thrive: Make Money Matter and their attendees for raising over $150,000 to support their Extended Hospital Stay Fund.

Thrive Co Founder Sanja Hatter, Claire’s Place Foundation Fundraising Chair Kathie David, Executive Director Melissa Yeager and Founder Claire Wineland

“I was invited to speak at Thrive 2017, which was such an honor. I had no idea the event would change my life,” said Claire’s Place Founder Claire Wineland. “While on stage Thrive Co-Founders Cole and Sanja Hatter surprised me with a personal donation to support my foundation. They then called upon the audience to open their wallets. In just minutes we raised more money than we have ever raised for Claire’s Place! The funds raised will help thousands of families affected by cystic fibrosis pay their bills. I can’t thank Cole, Sanja and everyone in attendance enough. I am overwhelmed by their generosity.”

“Claire is a beautiful light in our world; I’m so honored to know her, support her, and call her a friend,” said Thrive Co-Founder Cole Hatter. “The work she is doing is amazing, and I know the impact she will make in the world is only just beginning. Thrive was a great start, looking forward to continue to support Claire in leaving her legacy.”

The funds raised at Thrive 2017 will support Claire’s Place Foundation Extended Hospital Stay Fund, a special cache of funds available to families with children living with cystic fibrosis that are experiencing financial distress due to a hospital stay of at least 14 consecutive days. The grants are paid directly to third parties on the families’ behalf to cover basic necessities such as mortgage, rent and utilities so that the parents can focus their energies on being with their child in their great time of need.

“Raising the money for Claire and her foundation on that stage is my favorite moment of Thrive,” said Thrive Co-Founder Sanja Hatter. “It is a highlight in my life that I will never forget. I am so grateful for Claire, her outlook on life and the difference she is making helping others living with cystic fibrosis.”

“When I first connected with Cole and Sanja I was so excited to share the opportunity with Claire and the foundation,” said Claire’s Place Foundation Fundraising Chair Kathie David. “In my wildest dreams I couldn’t have imagined what would later happen at Thrive. It was one of the most exciting and rewarding moments of my life and I’m humbled by Cole and Sanja’s vision and the generosity of the Thrive tribe. The money raised will go a long way to help our families.”

Thrive Co-Founder Cole A Hatter Photo Credit: @tostistudios

To learn more about Thrive: Make Money Matter, please visit: www.attendthrive.com. And, to assist Claire Place Foundation’s mission in helping children with cystic fibrosis, please visit: www.clairesplacefoundation.org.

About Claire’s Place Foundation, Inc.

Claire’s Place Foundation, Inc. is a 501c3 non-profit organization providing support to children and families affected by cystic fibrosis (CF). Claire’s Place Foundation is named in honor of Claire Wineland, now a teenager, who has been living with CF her entire life. The foundation provides grants to families affected by CF, offering both emotional and financial support. A young author of bestseller “Every Breath I Take, Surviving and Thriving with Cystic Fibrosis,” Claire’s unique inspirational model for people living with this disease has led her to be a TEDx Speaker and receive multiple awards including Seventeen Magazine’s “17 Power Teens” of 2016, Fox Teen Choice Awards 2015, Gloria Barron Prize for Young Heroes, Southbay Magazine’s “Top 10 South Bay Teen”, Looking Beyond LA’s “Soaring Spirit Award,” and winner of Los Angeles Business Journal’s “Small Nonprofit of the Year.” She has been featured on Inside Edition, The Dr. Oz Show, CNN, Huffington Post, ABC News, Cosmopolitan, People, Ladies’ Home Journal and more. Claire’s Place Foundation is a way for Claire to give back with hope, strength, and joy and make meaning of what she has had to go through. For more information and make a donation, please visit www.clairesplacefoundation.org.

Claire Wineland Photo Credit: @tostistudios

About THRIVE: Make Money Matter

Thrive: Make Money Matter is a top rated business conference that encourages and equips ‘for-purpose’ businesses to make an impact in their local economy and around the world.  In addition, Thrive: Make Money Matter offers resources and a private networking group for business owners.  The next conference will be held September 15-17, 2018 in Las Vegas, NV.  For more information visit www.attendthrive.com or call 949-534-2653

Cole A Hatter, Claire Wineland, Sanja Hatter, Melissa Yeager Photo Credit: @tostistudios

Blog & Events, Families we have assisted

Meet Nevaeh ~ Extended Hospital Stay Grant Recipient

November 6, 2017

Nevaeh is a bubbly, beautiful toddler with cystic fibrosis and 2 healthy siblings.  Her parents have chosen, like many other CF families, to have a stay at home parent to care for her needs and one parent to bring in income.  Unfortunately, Neveah’s father has been out of work and had a payment dispute with a previous employer leaving the family in a terrible financial situation.  At the same time, Nevaeh came down with Whooping Cough which can be fatal to children with cystic fibrosis.

Nevaeh’s doctors opted to put Navaeh on a strict home hospital regimen to keep her out of the hospital so the family would not be displaced.  She is currently being cared for at home with round the clock treatments and medications and is showing great improvement.

The family applied for assistance through our Extended Hospital Stay Grant Program with their phone bill, an important lifeline when a child is under home hospital care, and their vehicle repairs so they could get her back and forth for her check ups.  Due to the generosity of our new friends from Thrive: Making Money Matter, we were able to pay their bills in full so that they could focus on what’s most important ~ taking care of their children.

We found out about Claire’s Place Foundation by searching Google. Claire’s Place Foundation was able to assist with us our cell phone bill and our extensive car repairs. Not worrying about our phones getting shut off and being able to get Nevaeh back and forth to the doctor allowed us to focus on taking care of her and was such a relief. I was able to exhale and relax a little.” ~ Nevaeh’s Parents

We hope these grants helped to create a bit of a bridge as Neveah recovers and her father gets back to work. Sending prayers for a speedy recovery and gratitude to all of our new donors for supporting this important program ~ your money is making a difference for real families like this!

Blog & Events, Families we have assisted

Meet Samantha ~ Extended Hospital Stay Grant Recipient

August 29, 2017

The fact that patients are living longer, fuller lives with Cystic Fibrosis is a blessing!  We at Claire’s Place Foundation initially began our mission to serve children under 18 but realized that young adults living with CF are out in the world trying to support themselves while dealing with a very high maintenance illness and are also in need of assistance.  We expanded our guidelines to include young adults and have been amazed by the super stars we have been able to meet.  Here is one, her name is Samantha.

Samantha and her husband James are both young professionals working to pay their way while dealing with her disease that is getting more and more difficult to manage.  This year alone, Samantha has been hospitalized 6 times, twice for over 14 days.  The stress of missed work and bills piling up in her absence is enough to take her attention away from her recovery, to say the least.

Samantha says she had been a follower of Claire Wineland on social media but was unaware of her foundation until she saw her on the Gunnar Esiason’s “Making it Matter” Podcast a few weeks ago.  She immediately reached out to her social worker who began the process of referring her for assistance through our Extended Hospital Stay Grant Program.

Being at the point of having to decide which bills can be paid and which ones have to paid late is not an easy place to be.  We were thrilled to be able to offer Samantha and her husband a grant that covered one month’s living expenses paid to the mortgage lender, utilities, etc. so that they could begin the next month with a clean slate and a little bit less of a burden.

 

Samantha says “I received the email saying we had been approved after I got off of work.  I literally sat in my car and cried tears of joy and relief.  We are so grateful, beyond words!  We know there are many families who request assistance and we are honored and humbled to have been helped.  We will happily pay it forward when we are able.  You are angels!”

 

Thank you to Gunnar Esiason, Julia Rae and all of our donors, supporters and friends who share our message.  We are grateful to have reached Samantha in her time of need and it is all due to our amazing circle of support!

Blog & Events, Families we have assisted

Meet Amara ~ Extended Hospital Stay Grant Recipient

August 9, 2017

Currently we have 2 individuals doing phenomenal fundraisers for Claire’s Place Foundation.  Doug Forsyth just completed his 31 day, 3800 mile bike ride across America and Riki Rachtman has just completed 10,000 miles on his motorcycle for #RikisRide17.  We want to show you what their efforts have done for this family and many more over the last 2 months.

Amara was referred to us by Boston Children’s Hospital as having “severe Cystic Fibrosis” and being evaluated for lung transplant at the very young age of 6 years old.  Cystic Fibrosis has many genetic mutations, some more difficult to manage than others and some patients have coexisting conditions that make it even more deadly.

Amara has been hospitalized for over 3 months since January 2017, one of the stays included a very severe infection that ended up in her needing to be intubated.  Luckily, she was strong enough to recover but it has resulted in both significant emotional and financial stress for her single income family who is struggling to stay with her and provide her with the support and love she needs.

Due to the hard work of both Riki and Doug and all the people who sponsor and support their efforts, we were able to assist this family with back rent and associated late fees.

Amara’s mother writes: “As a parent of a child as sick as mine, it feels so refreshing to know that there are people who care.  Any support goes a long way and my family and I are so grateful for this gesture.  I pray that this organization is able to help other families in need as they have helped mine.  Thank you beyond expression!”

Riki and Douglas, thank you from the bottom of our hearts!  Your efforts are herculean and are directly helping kids and families every day here at Claire’s Place Foundation.  BIG thank you to all the sponsors as well:  Hermosa Cyclery, Identified Talent Solutions, Dixon Construction, DIAL Insights, Glastonbury Dental AssociatesLafayette-DuPont#19 Fan Page, MESH, Hot Leathers, LawTigers, DeathWish Coffee, RonzWorld Guitars and GFrames 

There is still time to donate to each fundraiser, let’s show them some love ~

Cycling America for CF Facebook Page (be sure to watch the video of Douglas crossing the finish line in NYC yesterday! To donate on his FB page, click “shop now”)

Rikis Ride 17 Website – You can follow him on social media by using the hashtag #RikisRide17