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Blog & Events, Families we have assisted

Meet Emma ~ Extended Hospital Stay Grant Recipient

December 12, 2016

Meet Emma, a theatrical, vivacious teen living with cystic fibrosis.  Over the last year, her CF course has been plagued with several admissions, most recently for nearly an entire month, in a city quite far from their home.  Admissions such as this place a huge burden on families as it can 123_1_2cause a family to be separated for the duration and need to maintain the cost of what can feel like two households.  Food costs and lodging for caregivers, transportation costs of traveling to and from the hospital, child care for other siblings and many times, the loss of income adds up to an insurmountable financial crisis.  fb_img_1478017166739

We were so very grateful to be able to grant this family some much needed assistance, with the support of our donors.  Checks were sent out directly to their landlord, utilities company and car loan for the month so that they could focus their energy and time on being with Emma while she received the care she needed.  We are happy to report that Emma is now home and doing well ~ our thoughts and prayers are with you little fighter!

Emma’s mother writes “We are so appreciative of your organization and we know how very blessed we were to receive a referral from our social worker and ultimately a grant. Having support helped us get caught up and that meant so much to us. We are a one income family and it’s tough. Thank you for making it easier for us to be there for Emma.” 

 

Press

Thank you Val’s Pal’s

October 7, 2016

This morning, our favorite radio team did a shout out for Claire’s Place Foundation as part of their “Nissan MYFM Vals Pals” campaign that helps bring awareness and support to Southern California charities.

We thank you for shining a light on our programs that support children and families living with cystic fibrosis!  We will also be competing to win a $20,000 grant sponsored by Nissan to assist even more families in the coming year…stay tuned for the date ~ we will need you all to place your VOTE!

Link to the mp3

1043myfm

Blog & Events, Newsletters

World of Children®Recognizes Claire’s Place Foundation

September 17, 2016
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Claire’s Place Foundation Recognized for Supporting Children Living with Cystic Fibrosis
World of Children® Youth Honoree 2016
The only way we ourselves can get through pain and suffering is by giving to others – so that is what my family and I decided to do.”  ~ Claire Wineland
These are the words that started our foundation 6 years ago.
World of Children® Award improves the lives of vulnerable children by funding and elevating the most effective change makers for children worldwide.  This year, our Founder Claire Wineland, has been awarded the Youth Award 2016 for the work she does here at Claire’s Place Foundation and with children living with cystic fibrosis around the world.  We are humbled and grateful to say the least.  Please take a minute and visit their website where you can see profiles of all the 2016 Honorees ~ quite an amazing group of individuals.
As part of their 2016 Award, World of Children® has initiated a matching campaign for Claire’s Place Foundation.  All donations made through this Crowdrise link between September 15 and October 21, 2016, will be DOUBLE MATCHED up to $5,000. That means your $10 donation turns into $30 , your $100 turns into $300! And because they are underwriting all processing fees, 100% of your donation goes to Claire’s Place Foundation and the families we support!

We don’t want to miss out on a single penny of this amazing offer to help children living with cystic fibrosis. World of Children will match our $5,000 with another $10,000 making a grand total of $15,000!  We can do this with your help.

“When a child is sick, especially with Cystic Fibrosis, nothing matters more to them and their family than being able to be together… but often that requires a lot of love and support from others”

On behalf of all the children and families we will be able to assist with your donations, thank you!

MATCH CAMPAIGN DONATION LINK: https://www.crowdrise.com/team-claire-wineland-for-claires-place-foundation

UPCOMING EVENTcapture

It’s that time again!  Join us on October 8th for our 4th Annual Poker Event benefiting children and families living with cystic fibrosis.
TICKETS & INFORMATION HERE

 

SERVICE SPOTLIGHT:

samantha-frossSamantha and Kathie have quite a rare situation, both mother and daughter have cystic fibrosis.
Claire’s Place Foundation is a life saver!  They helped with rent and power, saving us from being evicted. We are a family with mother and daughter with CF and had an extreme circumstance come up that was unexpected right after my daughter spent 27 days in the hospital. Thank you for your kind and loving support
Blog & Events

My Last Days

August 16, 2016

WorkCpeYReGUMAEiSGPing with the amazing cast and crew on My Last Days was a dream come true.  Finally, someone is creating mainstream content about living with terminal illness that actually empowers us rather than showing us pity.  Please be sure to tune in and be inspired on August 17, 18 and 19 at 9/8c on your local CW Network channel.

“It’s not about how much time you have on Earth, it’s about what you make of that time.”

Big love to Wayfarer Entertainment and The CW Network for keeping it real!

Blog & Events, Families we have assisted

Meet Juan ~ Extended Hospital Stay Grant Recipient

July 21, 2016

Juan was introduced to Claire’s Place Foundation by the Cystic Fibrosis Foundation’s Compass program, a personalized service to help you with the insurance, financial, legal and other issues you are facing.   Juan is a vibrant young man living with cystic fibrosis, trying to maintain a full time job as well as his health needs on a daily basis.  As most of us  know, insurance companies can be very difficult to maneuver and often times the co-pays when dealing with a chronic illness are insurmountable.

Juan’s doctors prescribed the use of a High-frequency Chest Wall Oscillation Vest almost one year ago Photo (1)but he had not been able to find a way to cover the equipment co-pay which was just over $3,000.  A Social Worker at the Compass program reached out to us after an extended hospital stay to see if we might be able to help.

With the funds raised at our events this year, we were able to send a check out directly to the maker of the vest system so that Juan could receive his vest!

His most recent email says “I started using my new vest system and looks like it is doing its job.  Yesterday, I went to my doctor appointment and my PFT (pulmonary function test) went up by 3%! I owe Claire’s Place Foundation those 3%!!!

Last year, Juan participated in the CF Foundation’s Maryland Cycle for Life Event and created a beautiful video of his team, the Spinning Dreamers.  Please take a look at this inspirational young man’s commitment to raising funds to help find a cure for Cystic Fibrosis!  YouTube Spinning Dreamers Video

Your donations are hard at work helping families that look to us for assistance ~ thank you so much!

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