Claire’s Place Foundation is currently developing a program where families living with cystic fibrosis can communicate with each other and share their experience, strength and hope with newly diagnosed or isolated families looking for support.

Social workers at partnering hospitals will provide families with children with cystic fibrosis information about Claire’s Place Foundation, Inc.  Families feeling uncertain and isolated will be offered support and information on how to work through the treatment and care process by other parent volunteers. Over the next 5 years, these programs may expand to include actual activities brought to the hospital for children and families to participate in, tool kits, local support groups for families and other groups for youth suffering of cystic fibrosis.

If you are interested in becoming a support family or are in need of a support family to speak with, please send an email to melissa@clairesplacefoundation.org and we will respond with more information.

While we build out our Support Families Network, please take a look at the following links as a beginning guide to community resources:

www.cff.org
Cystic Fibrosis Foundation
Since 1955, the Cystic Fibrosis Foundation has been the driving force behind the pursuit of a cure. Thanks to the dedication and financial backing of our supporters–patients, families and friends, clinicians, researchers, volunteers, individual donors, corporations and staff, we are making a difference.

Cystic Fibrosis Patient Assistance Foundation
Assistance for affording medications and devices for managing CF
http://www.cfpaf.org

Cystic Fibrosis Services
Additional patient assistance programs for those without insurance coverage
https://www.cfservicespharmacy.com/PatientAssistance/

Boomer Esiason Foundation
Links to assistance programs for Tobradex, Creon, Aceon, Estratest HS, Prometrium, EstroGel, Pulmozyme, Advair, and Cipro

Boomer Esiason Foundation Patient Assistance Information

HospitalBillHelp.org
Guidance for Californians facing hefty hospital bills
http://www.hospitalbillhelp.org

NeedyMeds.org
Additional Patient Assistance Programs
http://www.needymeds.org

Partnership for Prescription Assistance
Database of Patient Assistance Programs
(Search by drug, company or program name)
http://www.pparx.org/prescription_assistance_programs/list_of_participating_programs

Patient Advocate Foundation
Mediation and arbitration services for patients with debilitating and life-threatening illnesses.
http://www.patientadvocate.org/

RXAssist Patient Assistance Program Center
Database of Patient Assistance Programs
(Search by drug, company or program name)
http://www.rxassist.org/patients/default.cfm