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Blog & Events

New Program: EMERGENCY COVID19 FUND

March 27, 2020

Many of the CF individuals and their families we serve are already living dangerously close to the poverty line, often with only one income earner in the home or living on SSDI if a young adult struggling with extensive health issues and trying to support themselves.

The Emergency COVID-19 Fund will address the need in our CF community to cover costs of food insecurity, extensive medical and prescription drug co-pays during this pandemic due to isolation or loss of income.

  • If you are an individual with CF or a caregiver in this situation, please forward this page to your hospital worker and request that they refer you directly through the submission button below.
  • This emergency cache of funds is limited to providing Visa gift cards to individuals with CF or their caregivers if food/medication availability issues arise due to lack of finances for the next month that are caused by the COVID-19 restrictions.
  • The program will be available starting on 3/20 and will continue depending on funds available. If you are a supporter of our mission and have the means, please make even a small donation here to help us rise to this occasion.
  • A hospital professional worker must submit a referral describing the financial need and diagnosis. This includes Social Workers, Doctors and Nurses.
  • Patient or dependent must have a confirmed cystic fibrosis diagnosis
    Once referral is approved, an application link will be sent to the patient at the email address provided in the referral.
  • This fund will not cover mortgage, rent, bills, etc. If the patient has had a 14 consecutive day hospital stay in the last calendar year and needs assistance with those expenses, please visit our Extended Hospital Stay Grant program for more information.

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Blog & Events

A Message from our Chairman

March 27, 2020

Hello to our lovely Claire’s Place Foundation Family,

Slowly, we are all adjusting to the challenges of the new normal. Hopefully, now, we have stocked up on toilet paper, mastered Zoom meetings and have reached out to our loved ones.


So, now it’s time to do the real work; the work that makes you proud of your life. Now, it’s time to take action. Now it’s time to move forward, to protect and support our precious community.


As many of you know, COVID-19 attacks the lungs; which let’s face it, just plain sucks for the CF community. This puts us smack dab in the middle of the folks who are at the highest risk for this virus to wrack dire consequences.


Let’s do everything in our power to shelter the most vulnerable.


We announced a new program, the Emergency COVID 19 Fund, on March 20th to provide a little grocery money to families living with CF who have a severe financial need. We had no idea how many of our CF families need help this month with keeping food on the table while waiting for unemployment, government assistance or for their jobs to resume. Well vetted requests for assistance come in faster than donations. And, believe me, you all have been so generous. Thank you. Thank YOU!

Unfortunately, we are only at the beginning of this pandemic and the requests for assistance continue to pour in. Not only do we need donations to assist with this emergency fund, we need even more donations for the extended hospital stay grant program as more CFers begin to require extended hospital stays as a result of exposure to this virus.

Normally, a charity would just do a fundraiser event, where we could not only fundraise but celebrate and honor our supporters. We had a few planned for this year but we cannot in good conscious put our community at risk by bringing folks together anytime soon. 

We are in challenging times. We have never needed our donors and supporters more. But, lucky us, we know you.

I am sure with your kindness and your generosity, we will move forward together. In what could have been our darkest days, we will all be proud of what we accomplished together.

“I’m not stuck in this belief that challenges are given to us to hold us back. I am lifted up by the belief that challenges are here to help us move forward“~ Claire Wineland, TEDxMalibu


With a heart full of gratitude,
Laura McHolm, Chairman of the Board

What you can do to help:

  1. Donate to our relief fund
  2. Find out if your employer will match your donation
  3. Start a peer to peer individual or team campaign page by visiting the link here and click the “Fundraise” button in the upper right
  4. Share about our relief fund with friends, family and on social media
Blog & Events

CF Community: Self Quarantine Recommended

March 16, 2020

CF Community: We are recommending an immediate, voluntary self quarantine

Our families need us right now and we need you!

Dr Richard K Mathis, our board member and a doctor in the CF Community for over 40 years, recommends all patients with cystic fibrosis institute a voluntary self quarantine period of 14 days in the home beginning immediately. People with CF are in the highest risk category and are at grave risk if infected with COVID-19. Cystic Fibrosis patients, caregivers and family members of anyone affected by cystic fibrosis, please take all precautions.

Dr Mathis goes on to say “The novel corona virus is proven to invade, and kill the pulmonary epithelial cell in culture. The CF patient has pulmonary epithelial cells that have a number of genetic defects which impair their function. The fact that a number of acquired infections and foreign body fine particles are known to effect the pulmonary epithelial surface producing further lung damage means that the novel corona virus is potentially the greatest threat in cystic fibrosis. However, I am unaware of studies to date which prove this relationship for cystic fibrosis as of yet.

Masks that protect are not at this time readily available. In Italy, the P100 and FFP3 masks are rated more protective than the N-95 masks and used for healthcare workers. A transparent whole face guard can also be effective. Social distancing to 6 feet, hand washing, alcohol hand sanitizer and Lysol object cleaner are quite effective. Masks and gloves that health care workers wear to protect themselves are what CF patients need to employ.

Protective measures for novel corona virus are constantly evolving. The cystic fibrosis patient and their families should take advantage of all methods for the prevention of acquiring this infection.”

With the newly established National Emergency declared by President Trump, we realize there are many individuals with CF and their families that may be severely physically and financially impacted. Most of the people who reach out to us for support through our Extended Hospital Stay Grant program are already living dangerously close to the poverty line. Most have only one parent who is able to work outside of the home and older CFers are living on SSDI.

Loss of work and isolation will make it very hard for these families and individuals to get the food, supplies and support they require.

Please consider donating to our “COVID-19 Emergency Fund” to help us manage this current hardship. If you know someone with Cystic Fibrosis, please consider donating at least $50 on their behalf. Let’s spread the word not the virus!

This is unprecedented territory for us, we hope that the greater community gives generously so we can make funds available for families in need as quickly as possible. We will be announcing how to refer a family for assistance by March 20, 2020. Please follow us on social channels at the bottom of this email and encourage other CF members to sign up for our newsletter on our website prior to this announcement.

We are here for you!

Melissa Yeager
Executive Director


What can you do to help our community?

  1. Spread the word: Even if you’re not a risk you can be a carrier. It may just be a cold for you but it could be a death sentence for someone with Cystic Fibrosis.
  2. Share our social graphics or posts.
  3. Donate to help us fortify our support programs. We anticipate a high volume of patients needing financial and emotional support during this outbreak.

Simplified Precaution List
These few simple precautions must be taken by ALL members of a CF household.

Blog & Events

CF Individuals are the Highest Risk Category for COVID-19

March 13, 2020

CF Families Advised to Take Preventive Measures to Avoid Coronavirus
MARCH 11, 2020 David MelamedBY DAVID MELAMED IN CYSTIC FIBROSIS, NEWS


CF Families Advised to Take Preventive Measures to Avoid Coronavirus
Click here to subscribe to the Cystic Fibrosis News Today Newsletter!

With the outbreak of coronavirus (COVID-19) affecting thousands of people around the world, individuals with respiratory conditions such as cystic fibrosis (CF) need to take precautions, according to medical expert Richard K. Mathis, MD.

Mathis is a board member of Claire’s Place Foundation, a nonprofit organization that supports CF patients and their families. He has personally been caring for CF patients for over 40 years.

The term coronavirus refers to a class of viruses that also includes severe acute respiratory syndrome (SARS) and Middle East respiratory syndrome (MERS). The name COVID-19 is an acronym for COrona VIrus Disease, and the year that it was discovered, 2019.

COVID-19 is an infectious disease that is believed to be spread through small droplets of moisture produced by sneezing or coughing. The primary mode of transmission is thought to be through person-to-person contact, but the virus can also live in droplets outside of a person. It is not yet known how long the virus can survive under external conditions.

The main symptoms of COVID-19 are fever, dry cough, and difficulty breathing. COVID-19 primarily infects the respiratory system, leaving CF patients particularly vulnerable.

In total, COVID-19 cases have been identified in over 100 countries. The disease has reached “community spread” — a term used when an illness for which the source of infection is unknown spreads throughout a community — in some regions of the U.S.

“COVID-19 is extremely infectious, and has recently achieved community spread status in the U.S.,” Mathis said in a press release. “This status means that individuals with CF and their household members are on the front line of the need for preventive measures.”

“The novel virus affects the epithelial cells lining of the lungs, which is detrimental to the health of someone with CF, as the epithelial cells are already damaged due to CF,” Mathis said.

Mathis strongly recommends people with CF consider whether it is worth attending a particular community gathering, as the risk of contracting the virus increases with the number of people. Public places and schools have already closed in some parts of the world to limit exposure.

Mathis also recommends wearing a N-95 face mask, a respirator mask designed to filter out droplets that potentially carry the virus.

Additional steps one can take to limit the possibility of infection include washing hands with water and soap for at least 20 seconds, using hand sanitizer with at least 60% alcohol content, and avoiding touching the face and eyes.

Inside the home, Mathis recommends frequently disinfecting any surfaces that are commonly touched, such as TV remotes. This is important because COVID-19 symptoms may not appear immediately, making it possible for a person to be infected and not know about it.

“It is vital that caretakers and family members of individuals with CF do not bring COVID-19 into their home, and follow preventive measures immediately,” Mathis said. “In fact, someone can carry COVID-19 without symptoms, bringing it unknowingly into the home.”

Mathis also recommends being proactive about any possibility of having the virus. If a person suspects he or she has contracted the virus, that person should stay quarantined at home.

“Fever and increased breathing difficulty require prompt medical care,” and CF patients should call their pulmonary or CF doctor if these symptoms appear, Mathis said.

As COVID-19 spread is a developing situation, it is important to monitor the websites of agencies such as the Centers for Disease Control and Prevention, the National Institute of Allergy and Infectious Diseases, and the CF Foundation for updated information, Mathis said. The World Health Organization is also providing updates.

David Melamed

WHAT CAN YOU DO TO HELP?

Please take measures to protect yourself and your loved ones with cystic fibrosis.

Make a donation today to Claire’s Place Foundation so we can be best prepared to help our vulnerable community when they need us.

Blog & Events

Giving Tuesday 2019!

December 2, 2019

HELP US REACH OUR GIVING TUESDAY GOAL OF RAISING $10,000 to continue Claire’s vision of supporting people with Cystic Fibrosis! (donations up to $5,000 will be matched by a generous donor)
There are two different ways today, GIVING TUESDAY!

  1. Create a FUNRAISE campaign by clicking “Fundraise” on our site, share it to your Facebook page, and help us receive donations through your social networks! (Takes about 5 mins or less)
  2. Donate directly to our FUNRAISE campaign via a one time donation or pledge a recurring donation!

Your donations and support mean that we can continue…

  • Making grants to support families and individuals living with cystic fibrosis, through the generosity of our donors, throughout the United States.
  • Connecting families who are isolated and in need of support to our group of “Support Families” through email, Skype or telephone.
  • Educating the community by engaging in public speaking, newsletters, press and media related to cystic fibrosis.