Browsing Category

Press

Press

Claire’s Place Foundation Welcomes New Board Members

October 23, 2019

Claire’s Place Foundation Welcomes New Board Members
Los Angeles, CA, 2019 (GLOBE NEWSWIRE) —

Claire’s Place Foundation, a non-profit organization providing support to children and families affected by cystic fibrosis, welcomes Richard K. Mathis, M.D. and Interior Design Firm Owner Rozalynn Woods to the organization’s board of directors.

“Dr. Mathis was a long-term caregiver and close friend to my dear daughter Claire and our entire family. He is deeply committed to the goals of enriching the lives of individuals with cystic fibrosis,” said Claire’s Place Foundation Co-Founder & Executive Director Melissa Yeager. “Rozalynn Woods has personal experience with cystic fibrosis in her family and has been instrumental in creating the designs for Claire’s Place Hospital Playrooms. Their professional and personal experiences with cystic fibrosis are a huge asset to the foundation. As extremely kindhearted individuals, Dr. Mathis and Ms. Woods have already contributed so much to the foundation. We are absolutely thrilled to have them both join our board of directors.”

Owner of Rozalynn Woods Interior Design, Woods’ designs have received extensive media coverage, including California Homes, Metropolitan Home, Pasadena Magazine and HGTV. She was recently awarded “Best Interior Designer” by Pasadena Weekly. “Cystic fibrosis is a disease that has become a personal experience for my family,” said Woods. “My nephew has cystic fibrosis and we have fought the fight alongside him. Having witnessed the devastation it causes, I feel compelled to help create awareness and raise money to fight this disease. Claire’s Place Foundation is the perfect avenue for me to do so.”

Dr. Mathis began working with patients with cystic fibrosis (CF) early in his career, caring for a full age range of patients with CF for over forty years in multiple hospitals nationwide. Within his practice he has developed novel approaches specific to CF nutrition and has participated in the consensus development of nutrition guidelines for CF at the Cystic Fibrosis Foundation. “I am deeply committed to the goals of enriching lives of individuals with cystic fibrosis,” said Dr. Mathis. “I have a great understanding of both the emotional and physical factors in this condition. The rewards of being elected to Claire’s Place Foundation’s board are many: an opportunity to give back; to share my knowledge with a wider CF community; to continue to honor Claire’s passion with efforts that represent my love for her; and to promote and help achieve triumph over this complex condition.”

The Claire’s Place Foundation board also re-elected NorthStar Moving Company Co-Founder Laura McHolm as the Chairman of the Board of Directors for another term. Claire’s Place Foundation Co-Founder & Executive Director Melissa Yeager, mother to Claire’s Place Foundation’s late founder Claire Wineland, was elected as a board member to represent the family on the board. McHolm and Yeager join Trish Dixon, Kathie David, Irwin Feinberg and David Gersholowitz in welcoming Dr. Richard Mathis and Rozalynn Woods to the board.

Irwin Feinberg, Patricia Dixon, Rozalynn Woods, Melissa Yeager, Laura McHolm,
Kathie Vang David and Dr Richard Mathis *David Gersholowitz not pictured

About Claire’s Place Foundation, Inc.

Claire’s Place Foundation, Inc. is a 501(c)(3) non-profit organization providing support to children and families affected by cystic fibrosis (CF). Claire’s Place Foundation is named in honor of Claire Wineland who lived with CF her entire life and passed away at the age of 21. Claire was an activist, author, TEDx Speaker, social media star, inspiration for the film Five Feet Apart and received numerous awards. Claire’s foundation was a way for her to assure that others living with CF enjoyed the same hope, strength and joy that she enjoyed. Recipient of Los Angeles Business Journal’s “Small Nonprofit of the Year,” the foundation provides grants to families affected by CF, offering both emotional and financial support. Today, Claire’s Place Foundation continues to carry on Claire’s legacy. For more information and make a donation, please visit www.clairesplacefoundation.org.

Carrie N Callahan
Claire’s Place Foundation
6174134589
carrie@nashcallahan.com

Press

My Last Days Follow Up Episode

May 3, 2019

In 2017, Claire had the incredible opportunity to share her story about living with cystic fibrosis on a show called My Last Days created by Soul Pancake and her long time friend Justin Baldoni which aired on The CW Network.

Creating the series with the other 5 individuals living with terminal illness led to long time, heart felt friendships and a sense of understanding between the group. Up until a few weeks before Claire’s passing, she was still in touch via group text with all of these very special human beings.

Watch here as Soul Pancake follows up with the 6 inspiring individuals spotlighted on season 2. Kendrick, Kat, Darth, Isabella and Jessica – we will always hold a special place in our hearts for you and please know that you remain in our thoughts and prayers.

Thank you Soul Pancake, Justin Baldoni, Wayfarer Entertainment and The CW for shining a light on these beautiful souls.

Blog & Events, Celebrity Friends, Press

Hear how Claire Wineland influenced actor Haley Lu Richardson

March 14, 2019

Haley Lu Richardson deeply committed to ‘Five Feet Apart’

By Rick Bentley, Tribune News Service

Haley Lu Richardson knows that with a casual glance “Five Feet Apart” looks like another angst-filled teen romance. It’s the story of two star-crossed teens who fall in love in a hospital. The angst comes from how they must stay 6 feet apart because both are suffering with cystic fibrosis (CF), which is extremely contagious between CF patients.

Cystic fibrosis is a life-threatening genetic disease that makes the body produce thick, sticky mucus in the lungs, pancreas and other organs. Approximately 30,000 people in the United States have CF. The film’s title comes from how Richardson’s character, Stella Grant, decides to defy CF rules and move a foot closer to Will Newman (Cole Sprouse), the young man who has captured her heart.

© Sthanlee B. Mirador/Sipa USA/TNS Haley Lu Richardson arrives at the “Five Feet Apart” Los Angeles Premiere held at the Fox Bruin Theatre in Westwood, CA on Thursday, March 7, 2019.

Richardson wants audiences of all ages to see “Five Feet Apart” as a universal story about unrequited love, the frailty of life and the imperative need for human conduct.
“One of the major reasons I like acting is so universally (is) just anyone can watch a movie and feel something. That means a lot to me,” Richardson says.
Richardson’s research to play the role included meeting with Claire Wineland, a CF patient whose nonprofit, Claire’s Place Foundation, supported and organized people with terminal and chronic illnesses. Before she died at the age of 21, Wineland was in the documentary series “My Last Days,” produced by “Jane the Virgin” star Justin Baldoni.
Baldoni, producer and director of “Five Feet Apart,” helped Richardson make contact with Wineland.

“She was so open and really wanted this film to do its job of representing her life and the life or real people with CF,” Richardson says. “She was such a wise human being.
“I did a lot of research and we had a CF nurse on set every day to get the medical stuff as accurate as possible. But, the most important thing was getting to spend time with Claire. She really taught me the emotional effect of CF on the child and the family.”

Richardson took all that knowledge and mixed it with her own thoughts of what Stella would be feeling. She concluded that Stella was dealing with a lot of guilt and pressure because of the dark cloud that hung over her and her parents from the day she was born.

The key to the film is Stella defying the cardinal rule of falling for Will. The connection is important to both, as Stella has lived a very regimented life through her battle with CF, while Will has resigned to the reality his days are extremely numbered and lives each day as if it could be his last.

Playing out the love story was easy for Richardson because of working with Sprouse (“Riverdale”).
“I was surprised and excited by the fact that Cole is a real artist and takes everything he does – whether it be acting or his photography – very seriously and he cares a lot,” Richardson says. “I also care to a fault about playing a character and so we both cared the same amount.
“When you have two people who are genuinely invested in doing the best they can do and bringing justice to these characters, then we could feed off each other and connect in these big moments.”

Part of Richardson’s focus when playing a role comes from her early days as a leading dancer with the Phoenix-based Cannedy Dance Company from 2001-2011. Her days as a dancer drove home the importance of training, rehearsal, hard work, determination and organization. These are all traits she brought to the acting world in projects such as “The Bronze,” “Ravenswood,” “The Chaperone,” “Recovery Road” and “Split.”
Stella has a master list of things she wants to do in her life, but Richardson doesn’t have such a document. She does have one thing she knows she would like to do and that is to star in a movie where dance isn’t just something the characters do. She wants dance to be used to tell the story. That’s a big hope for Richardson, but she’s never backed down from any test.

Press

Seventeen Magazine Shares Andy Grammer’s Inspirational Video

February 22, 2019

Exclusive: Cole Sprouse and Haley Lu Richardson Are Totally in Love in Andy Grammer’s “Don’t Give Up on Me” Music Video
It’s the original song for Five Feet Apart!

By Tamara Fuentes
Feb 21, 2019


* Cole Sprouse and Haley Lu Richardson star in the new movie, Five Feet Apart, as cystic fibrosis patients who fall in love.
* Andy Grammer wrote the original song for the movie and is donating the proceeds to Claire’s Place.
* Seventeen is exclusively premiering the video featuring Cole and Haley.

 

 

Cole Sprouse and Haley Lu Richardson’s new movie, Five Feet Apart, is almost here and it’ll likely be the big romance movie that we’ve all been waiting for. The two of them play cystic fibrosis patients who have to stay six feet apart from each other at all times. Finally fed up with constantly being away from each other, they decide to stand one foot closer to each other and start to fall in love in the process.

Check out the music video below:

Andy Grammer wrote the movie’s theme song and created a music video all about Will and Stella’s relationship. Seventeen got to talk to Andy about writing the song, what it means to him, and what it was like to meet Cole.

17: What made you decide to write this song?
Andy Grammer: “I think it’s one of the most basic parts of being alive with other humans is not giving up on them when things get hard. Sticking with someone through the hard stuff. I love writing about that.”
17: Did you get to watch the movie beforehand to get some inspiration?
AG: “I LOVED the movie. Ugly cried in a hotel room when I saw one of the first cuts. It’s a beautiful story. I lost my mom 10 years ago to breast cancer so stories told in hospitals hit home a little extra hard for me. Perseverance through disease especially in the name of someone you love will always be inspiring.”
17: What’s your favorite lyric from the song and why?
AG: “‘Don’t give up on me.’ It’s such a simple statement and it’s definitely been said before, but damn it makes me feel. Saying that to someone else usually packs a pretty intense punch. It’s very simple but powerful.”
17: You’re donating a portion of the proceeds to Claire’s Place, an organization that helps families dealing with cystic fibrosis. Why did you decide on that charity?
AG: “One of my best friends, Justin Baldoni, is the director of the movie. He and Claire had such a close relationship and she was a major inspiration for the film. As a surprise to him and to honor her I decided to donate a portion of the proceeds to her foundation. Claire’s Place is a support system for families and patients dealing with Cystic Fibrosis.”
17: Were you a fan of Cole Sprouse beforehand and did you get to meet him as they were shooting the movie?
AG: “Of course. Are there people out there who aren’t fans of Cole Sprouse? I got to meet him in Los Angeles. He was amazing in this movie, I can’t wait for everyone to see it.”
17: How has the song/movie inspired you in your own life?
AG: “Honestly, since the song has come out, the most inspiring thing has been the incredibly touching responses. With a message like ‘don’t give up,’ there have been a lot of people telling me how they were about to give up on their relationships, dreams, on occasion even as dire as their own life when hearing this song and it kept them going. That is just completely amazing feedback to get, it will never get old hearing these stories.”

 

 

Press

‘Five Feet Apart’ Trailer Released Ahead of March Theater Opening

January 18, 2019

‘Five Feet Apart’ Trailer Released Ahead of March Theater Opening
AliBY ALI JAN 16, 2019

Haley Lu Richardson and Cole Sprouse push boundaries in Five Feet Apart. Image courtesy of Teen Vogue.

Prepare for romantic overload! The trailer for Five Feet Apart was released today — the same day as the Riverdale midseason premier, incidentally. Cole Sprouse and co-star Haley Lu Richardson play cystic fibrosis patients being treated in the same hospital. As characters in romantic dramadies tend to do, they fall in love over the course of their treatment but cannot get closer than six feet apart because of a risk of infection that could have fatal consequences. The trailer gives us a glimpse of a defiant Richardson taking back “one foot” so they can be “five feet apart.” What that will mean for the two of them remains to be seen.

Haley Lu Richardson and Cole Sprouse push boundaries in Five Feet Apart. Image courtesy of Teen Vogue. Click image to watch

As we reported back in November, there is some controversy about whether or not this movie is good for CF awareness:

“There are some who feel the movie is a wonderful way to deliver representation and awareness of CF and those who suffer from it. But others feel like it smacks of exploitation and is another example of Hollywood using able-bodied actors to play terminal-illness sufferers as a way to make the healthy feel relieved that they do not have these struggles.”

That being said, the actors have taken care to spend time with Claire’s Place Foundation in an effort to prepare appropriately for their roles. Hopefully this dedication to presenting the illness accurately and with compassion will show in their performances. Check out the trailer below for a sneak peek and see what you think!

 

The wait is over: the new #FiveFeetApart trailer is finally here. 💖 Are you ready to fall in love with this film on March 22?