CF University

Welcome to my CF University. My name is Claire Wineland, and I have Cystic Fibrosis.  Because I was diagnosed with CF at birth I have had to learn how to deal with my illness physically, emotionally, and spiritually.  Growing up I always wished there was a place I could go to learn how to deal with everything that came with having CF.  How can I make shots hurt less?  How can I make my treatments more fun?  How do I deal with mean nurses or confusing doctors?  For 15 years I have gathered tricks, tips, and laughter to work with a situation that is completely out of my control.  And so the CF University was born…

The CF University will have everything from craft ideas when you are stuck in the hospital, tips on travelling with an illness, decoding “doctor talk”, connecting CF families with each other, with support and with resources. At CF University there is something for everyone.  It is my mission to help everyone with Cystic Fibrosis and the families and loved ones in their lives feel empowered about life no matter what life chooses to throw at you next.  Sharing everything I have learned as well as providing a forum for positive and supportive members to share their experiences in a space that is open and fun for everyone is our goal.  Cystic Fibrosis is a roller coaster, I know, but hopefully CF University can give and share some of the tools, the laughter, and the knowledge you need to get through it all.

Welcome to CF University!