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Amanda Jane Cooper and Carrie Manolakos bringing Oz to the Clairity Ball

June 1, 2019

Please join us for our First Annual Clairity Ball, an evening by the sea, celebrating the life and legacy of our late founder Claire Wineland. All proceeds will benefit families and individuals living with cystic fibrosis.

Photo Credit: Caitlin McNaney

Help us welcome two very special guests, Amanda Jane Cooper and Carrie Manolakos

We are thrilled to announce that Amanda Jane Cooper, who starred as Broadway’s 15th Anniversary Glinda in Wicked and Carrie Manolakos who starred as Elphaba in Wicked will be bringing Oz to the Clairity Ball by singing the meaningful song “For Good”. Prior to her 17-month run on Broadway in NYC, Amanda also toured as Glinda nationally from 2015-2017 and in 2011. You’ve seen her on some of your favorite TV shows like Glee, Jessie on Disney, CSI, Bones, Selfie and on NBC’s A Very Wicked Halloween this past October alongside Kristin Chenoweth and Idina Mendel as they all celebrated and sang for the 15th Anniversary special.

Carrie is a singer-songwriter and actress, she is perhaps best known for her stage work, on Broadway in Mamma Mia! as Sophie Sheridan, and on the second national tour of Wicked as Elphaba. She became an internet sensation after her cover of “Creep” by Radiohead went viral after it was picked up by Gawker, under the title “Eargasm“.

You can follow Carrie at @carriemanolakos and Amanda at @amandajanecoop

A very special THANK YOU to our dear friend Alice Issac for making this possible.

Held across from the beach at the Fairmont Miramar Hotel & Bungalows in Santa Monica, CA on Saturday, June 29th, this special evening will include passed hors d’oeuvres, cocktails and silent auction under a twinkle lit tree, celebrity guests, a sit down plated dinner, performances, awards and of course, lots of dancing. The evening will be anything but dull, in true Claire fashion.

We are thrilled to honor a few members of our extended family and community who have gone “above and beyond” in carrying Claire’s light and her legacy forward.

Justin Baldoni for his incredible work raising awareness for cystic fibrosis on a global level through his hugely successful directorial debut, Five Feet Apart.

Zappos for Good for their unending support of Claire both personally and professionally through Claire’s Place Playrooms and an upcoming project that we are so excited to share with all of you.

Vertex Pharmaceuticals, Inc. in acknowledgement of all of their scientific advances, as well as the wonderful programs and support they provide to our community on a daily basis.

Cole & Sanja Hatter of THRIVE: Make Money Matter for their continued support in sharing the message of Claire’s Place Foundation and for their incredible fundraising done since meeting Claire in 2016.

To find out more about our event and sponsorship opportunities, please visit the tab here on our site “Clairity Ball”

Blog & Events, Celebrity Friends, Press

Hear how Claire Wineland influenced actor Haley Lu Richardson

March 14, 2019

Haley Lu Richardson deeply committed to ‘Five Feet Apart’

By Rick Bentley, Tribune News Service

Haley Lu Richardson knows that with a casual glance “Five Feet Apart” looks like another angst-filled teen romance. It’s the story of two star-crossed teens who fall in love in a hospital. The angst comes from how they must stay 6 feet apart because both are suffering with cystic fibrosis (CF), which is extremely contagious between CF patients.

Cystic fibrosis is a life-threatening genetic disease that makes the body produce thick, sticky mucus in the lungs, pancreas and other organs. Approximately 30,000 people in the United States have CF. The film’s title comes from how Richardson’s character, Stella Grant, decides to defy CF rules and move a foot closer to Will Newman (Cole Sprouse), the young man who has captured her heart.

© Sthanlee B. Mirador/Sipa USA/TNS Haley Lu Richardson arrives at the “Five Feet Apart” Los Angeles Premiere held at the Fox Bruin Theatre in Westwood, CA on Thursday, March 7, 2019.

Richardson wants audiences of all ages to see “Five Feet Apart” as a universal story about unrequited love, the frailty of life and the imperative need for human conduct.
“One of the major reasons I like acting is so universally (is) just anyone can watch a movie and feel something. That means a lot to me,” Richardson says.
Richardson’s research to play the role included meeting with Claire Wineland, a CF patient whose nonprofit, Claire’s Place Foundation, supported and organized people with terminal and chronic illnesses. Before she died at the age of 21, Wineland was in the documentary series “My Last Days,” produced by “Jane the Virgin” star Justin Baldoni.
Baldoni, producer and director of “Five Feet Apart,” helped Richardson make contact with Wineland.

“She was so open and really wanted this film to do its job of representing her life and the life or real people with CF,” Richardson says. “She was such a wise human being.
“I did a lot of research and we had a CF nurse on set every day to get the medical stuff as accurate as possible. But, the most important thing was getting to spend time with Claire. She really taught me the emotional effect of CF on the child and the family.”

Richardson took all that knowledge and mixed it with her own thoughts of what Stella would be feeling. She concluded that Stella was dealing with a lot of guilt and pressure because of the dark cloud that hung over her and her parents from the day she was born.

The key to the film is Stella defying the cardinal rule of falling for Will. The connection is important to both, as Stella has lived a very regimented life through her battle with CF, while Will has resigned to the reality his days are extremely numbered and lives each day as if it could be his last.

Playing out the love story was easy for Richardson because of working with Sprouse (“Riverdale”).
“I was surprised and excited by the fact that Cole is a real artist and takes everything he does – whether it be acting or his photography – very seriously and he cares a lot,” Richardson says. “I also care to a fault about playing a character and so we both cared the same amount.
“When you have two people who are genuinely invested in doing the best they can do and bringing justice to these characters, then we could feed off each other and connect in these big moments.”

Part of Richardson’s focus when playing a role comes from her early days as a leading dancer with the Phoenix-based Cannedy Dance Company from 2001-2011. Her days as a dancer drove home the importance of training, rehearsal, hard work, determination and organization. These are all traits she brought to the acting world in projects such as “The Bronze,” “Ravenswood,” “The Chaperone,” “Recovery Road” and “Split.”
Stella has a master list of things she wants to do in her life, but Richardson doesn’t have such a document. She does have one thing she knows she would like to do and that is to star in a movie where dance isn’t just something the characters do. She wants dance to be used to tell the story. That’s a big hope for Richardson, but she’s never backed down from any test.

Blog & Events, Celebrity Friends

Andy Grammer Gives Back to Claire’s Place Foundation

March 5, 2019

Andy Grammer has released “Don’t Give Up On Me,” his new song from the upcoming film Five Feet Apart.

The song was first heard in the trailer for the movie, which stars Cole Sprouse and Haley Lu Richardson as two teenagers with cystic fibrosis who fall in love, despite being advised to keep a safe distance from each other for the sake of their health. The film is directed by Justin Baldoni, an old pal of Andy’s.

“’Don’t Give Up On Me,’ although a very simple concept – is truly a very powerful one,” Andy says in a statement. “I have had many moments in my life where I wouldn’t give up on someone else, where I believed in them when they didn’t believe in themselves.”

He adds, “Hell I’ve had SUPER intense moments where I wouldn’t give up on myself. But the most powerful memories from my personal vantage point are the ones when someone wouldn’t give up on me.”

A portion of the proceeds from the song will go to Claire’s Place Foundation, a non-profit providing support for children and families affected by cystic fibrosis. The foundation was named after Claire Wineland, who inspired Baldoni to make the film.

Five Feet Apart hits theaters March 15.

PURCHASE/DOWNLOAD/SHARE:  https://andygrammer.ffm.to/dontgiveuponme

 

Blog & Events

7 Years Strong!

March 3, 2019

 

Founder, Claire Wineland 4.10.97 – 9.2.2018

The end of 2018 marks 7 years serving families, children and young adults living with cystic fibrosis. We are so very proud of our late founder Claire Wineland and the success of her foundation.

Claire founded Claire’s Place Foundation in 2011 following a life threatening medical crisis. She was inspired by the amount of support that our family received during her extended hospital stay and was determined to provide that support for others who may not have it otherwise. We are excited to celebrate 7 wonderful years and to continue her mission in her name.

In honor of this milestone, please consider making a year end donation in any increment of 7 or any amount including 7 as a way to acknowledge that her vision and her impact lives on 💥💫🤸‍♀️🎖🙌🦋🙏

Wishing you all a wonderful 2019 full of purpose!

Become the person that your younger self would have been inspired by” ~ Claire Wineland

 

 

Blog & Events

Introducing the Claire Wineland WORLDZ Scholarship Program

November 13, 2018

It is so wonderful to be a part of the WORLDZ tribe! Our Founder, Claire Wineland, was only 18 when she first met Roman Tsunder, Founder and CEO of PTTOW & WORLDZ. They connected through her involvement in My Last Days, the powerful docuseries created by Wayfarer Entertainment that aired on The CW Network 2 years ago. Roman and Claire had a synergy from the first moment they met.

In 2016, Roman invited Claire to speak at his PTTOW conference as their youngest speaker to date. Claire wowed the crowd with her candid story about living with illness and creating a life you are proud of.  For the years following their bond continued, sharing inspirational experiences.

Claire’s passing on September 2, 2018 inspired Roman to honor her in such a spectacular way. He partnered with us to create the first Claire Wineland Scholarship for WORLDZ.  This scholarship seeks out young people who are making a positive impact in the world. The recipients are awarded the unique opportunity to attend the WORLDZ conference where they meet with thought leaders from around the world and attend Master Workshops to learn more about growing their presence and honing their business skills. The conference is attended by some of the biggest leaders that are focused on making an impact and creating positive change.  Attendees include top executives from Amazon, hulu, Marvel, Samsung, Vans, Lyft, Rolling Stone as well as olympians and astronauts.

With the help of Wayfarer Entertainment, our inaugural class of 2018 attended the WORLDZ conference in October in Los Angeles. Beginning later this year, we will announce an application process to find our next class for the WORLDZ 2019 Conference and detailed information on how to apply.  We cannot wait to meet all of the amazing young adults and children that are making an impact in their community and in the world.

“Claire’s message is a bright shining reminder that we should appreciate and enjoy every moment we have on this planet, especially the times that are painful or difficult. We established a scholarship program to recognize courageous change-makers, who like Claire, have surmounted substantial life obstacles yet remain steadfast in sharing their voice and talent as a force of light in the world. I’m so excited by the inaugural class and believe with all my heart that through each of them, Claire’s radiant legacy will continue to blossom and flourish for many years to come.”- Farhoud Meybodi, Wayfarer Entertainment

The Worldz 2018 event was a huge success and we would personally like to congratulate our scholarship winners:

Marinda Davis: Instagram – @marinspirations Facebook  * Marinda is a choreographer and master teacher dedicated to opening hearts through dance. She was diagnosed with seven autoimmune diseases and told that she wouldn’t live past the age of forty. But Marinda is much more than the sum of her illnesses – she’s channeled her passion into a spectacular contemporary dance show entitled UNbreakable. UNbreakable tells the story of Marinda’s emotional and physical journey with illness, and highlights the resilience of the human spirit.

 

Caleb Remington: Instagram – @calebremington Facebook  *Caleb is a software developer at Ambry Genetics who’s passionate about anything outdoorsy. Caleb was diagnosed with Cystic Fibrosis and was told that he wouldn’t see past 18. Now, at 28, he is married to his beautiful wife, Tiffany Anh, lives life to the fullest, and works to raise awareness for the Cystic Fibrosis community. The couple is also world renowned for their beautiful wedding ceremony that became known worldwide as “The Greatest Wedding Ever Donated” that raised money for a multitude of charities and has become a huge inspiration.  GWED.com

 

Anthony Carbajal: Instagram – @carbajalphoto Facebook  *Anthony is a passionate street photographer and public speaker. Diagnosed with ALS at twenty-six, Anthony was determined to find a way to continue developing his love of photography. At his core, Anthony believes that while ALS is taking his strength, it’s not stealing his happiness, a sentiment he loves sharing with his family, friends and subjects in front of the lens.

Travis Flores: Instagram – @travisflores Facebook  *Travis is an writer, author, and speaker. Diagnosed with Cystic Fibrosis as an infant, Travis later published a children’s book, “The Spider Who Never Gave Up,” and went on tour to share his story of perseverance with the world. After receiving a Master’s of Science degree in Fundraising & Grant-Making from NYU, Travis sounds his time raising money for various organizations and serves as Executive Producer for DonateLife California / OneLegacy.

Zein Yousseff: Instagram – @zeinvolution Facebook  *Zein is a feisty 10 year-old hip-hop dancer, and black belt candidate in Taekwondo. He’s also a four time cancer survivor who was diagnosed with high risk stage 4 neuroblastoma when he was just 5 years old. Zein has experienced years of chemotherapy and brain surgeries yet hasn’t lost his zest for life or determination to spread joy to everyone he meets.

 

Today the world lost Claire Wineland – we will never forget her bravery and tenacity, she was an inspiration to us all. We send our thoughts and prayers to her family and friends during this time. Rest In Peace Claire.  <3″ The WORLDZ Tribe @Worldztribe