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Blog & Events

Our Secret Tool? Our Amazing Supporters! WE NEED YOU!

April 23, 2020

Today is #GivingTuesdayNow, a day where the country is coming together to support charities providing assistance during COVID-19 and we need your help!

Please consider starting a peer to peer fundraising campaign today to help us reach our goal. We currently have a very long waiting list of families needing assistance with groceries and supplies, families dealing with cystic fibrosis, which makes them especially vulnerable to this illness. Our CF members and their families have been in quarantine longer than most of America due to the grave effects this virus can have on their already damaged lungs.

Create a campaign by following these steps and win our limited edition custom enamel pin set. Raise $100 and receive 1 pin, raise $200 to receive both

  1. Please go to FUNRAISE.ORG to view our COVID 19 Relief Fund Campaign Page.
  2. Once there, click the “Fundraise” button in the upper right hand side of the page
  3. Choose the option “Fundraise on my own” or “Start a Team” (note: The team setting will require you to create a group effort where each of your team members also become fundraisers. The “fundraise on my own” option makes you the only fundraiser that can request donations from your friends and family)
  4. Create your individual fundraising page by uploading an image of either yourself of one of our COVID 19 Grant Recipients or even a special picture of our Founder, Claire Wineland that you can all of this in the tab “COVID-19 Toolkit” at the top of the Funraise page or HERE
  5. Write a few sentences about why you are fundraising for Claire’s Place Foundation. There are a few mission guidelines to keep in mind when talking about our organization and the vulnerable community we serve. You can find all of that information in the section below titled “Mission, Vision and Values”.
  6. Set a goal! We are giving out our custom, limited edition enamel pins pictured above with Claire Wineland’s image and one of her most famous quotes “Live a Life you are Proud of” as a gift to any of our fabulous fundraisers that reach their goals. (*Minimum goal is $100 and you will earn 1 pin, $200 for 2 pins)
  7. SHARE this fundraiser far and wide! We have been blessed by an enthusiastic group of supporters, especially those who followed our late founder Claire Wineland on many of her social channels. Now is the time to step up and be heard. Let’s get our community some much needed support during this pandemic. Claire would be so proud of all of you!

If you are unable to create your own page, please consider donating here: https://clairesplacec-19fund.funraise.org/

Help us strengthen the CF Community when they need us the most!

Blog & Events

Claire’s Birthday Celebration

April 10, 2020
Today would have been Claire’s 23rd birthday,we are celebrating her in 2 ways!
Exclusive Claire Performance of “Galaxies”, her original song!
First, a never before released video of her singing her original song “Galaxies” when she was 15 years old. Pieces of this song were in the soundtrack of her YouTube Originals Claire | The Documentary released last year and we have had many people ask for the entire song.
We love that people are doing #quarantineconcerts right now during this coronavirus pandemic so we thought it would be a fun way to participate. Hope you enjoy! You can go to her YouTube channel to view the lyrics as well. https://www.youtube.com/watch?v=riUV4P1_ddI
Join us for Virtual Birthday Cake!
Secondly, we are hosting a “virtual birthday party” for her over the next few weeks where you can participate by purchasing a slice of cake, ice cream, balloons and even host your own party in her honor!You can find all the details about this virtual celebration by clicking below or going to clairesbirthday.funraise.org/Celebrate Here
Blog & Events

New Program: EMERGENCY COVID19 FUND

March 27, 2020

Many of the CF individuals and their families we serve are already living dangerously close to the poverty line, often with only one income earner in the home or living on SSDI if a young adult struggling with extensive health issues and trying to support themselves.

The Emergency COVID-19 Fund will address the need in our CF community to cover costs of food insecurity, extensive medical and prescription drug co-pays during this pandemic due to isolation or loss of income.

  • If you are an individual with CF or a caregiver in this situation, please forward this page to your hospital worker and request that they refer you directly through the submission button below.
  • This emergency cache of funds is limited to providing Visa gift cards to individuals with CF or their caregivers if food/medication availability issues arise due to lack of finances for the next month that are caused by the COVID-19 restrictions.
  • The program will be available starting on 3/20 and will continue depending on funds available. If you are a supporter of our mission and have the means, please make even a small donation here to help us rise to this occasion.
  • A hospital professional worker must submit a referral describing the financial need and diagnosis. This includes Social Workers, Doctors and Nurses.
  • Patient or dependent must have a confirmed cystic fibrosis diagnosis
    Once referral is approved, an application link will be sent to the patient at the email address provided in the referral.
  • This fund will not cover mortgage, rent, bills, etc. If the patient has had a 14 consecutive day hospital stay in the last calendar year and needs assistance with those expenses, please visit our Extended Hospital Stay Grant program for more information.

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Blog & Events

A Message from our Chairman

March 27, 2020

Hello to our lovely Claire’s Place Foundation Family,

Slowly, we are all adjusting to the challenges of the new normal. Hopefully, now, we have stocked up on toilet paper, mastered Zoom meetings and have reached out to our loved ones.


So, now it’s time to do the real work; the work that makes you proud of your life. Now, it’s time to take action. Now it’s time to move forward, to protect and support our precious community.


As many of you know, COVID-19 attacks the lungs; which let’s face it, just plain sucks for the CF community. This puts us smack dab in the middle of the folks who are at the highest risk for this virus to wrack dire consequences.


Let’s do everything in our power to shelter the most vulnerable.


We announced a new program, the Emergency COVID 19 Fund, on March 20th to provide a little grocery money to families living with CF who have a severe financial need. We had no idea how many of our CF families need help this month with keeping food on the table while waiting for unemployment, government assistance or for their jobs to resume. Well vetted requests for assistance come in faster than donations. And, believe me, you all have been so generous. Thank you. Thank YOU!

Unfortunately, we are only at the beginning of this pandemic and the requests for assistance continue to pour in. Not only do we need donations to assist with this emergency fund, we need even more donations for the extended hospital stay grant program as more CFers begin to require extended hospital stays as a result of exposure to this virus.

Normally, a charity would just do a fundraiser event, where we could not only fundraise but celebrate and honor our supporters. We had a few planned for this year but we cannot in good conscious put our community at risk by bringing folks together anytime soon. 

We are in challenging times. We have never needed our donors and supporters more. But, lucky us, we know you.

I am sure with your kindness and your generosity, we will move forward together. In what could have been our darkest days, we will all be proud of what we accomplished together.

“I’m not stuck in this belief that challenges are given to us to hold us back. I am lifted up by the belief that challenges are here to help us move forward“~ Claire Wineland, TEDxMalibu


With a heart full of gratitude,
Laura McHolm, Chairman of the Board

What you can do to help:

  1. Donate to our relief fund
  2. Find out if your employer will match your donation
  3. Start a peer to peer individual or team campaign page by visiting the link here and click the “Fundraise” button in the upper right
  4. Share about our relief fund with friends, family and on social media
Blog & Events

CF Community: Self Quarantine Recommended

March 16, 2020

CF Community: We are recommending an immediate, voluntary self quarantine

Our families need us right now and we need you!

Dr Richard K Mathis, our board member and a doctor in the CF Community for over 40 years, recommends all patients with cystic fibrosis institute a voluntary self quarantine period of 14 days in the home beginning immediately. People with CF are in the highest risk category and are at grave risk if infected with COVID-19. Cystic Fibrosis patients, caregivers and family members of anyone affected by cystic fibrosis, please take all precautions.

Dr Mathis goes on to say “The novel corona virus is proven to invade, and kill the pulmonary epithelial cell in culture. The CF patient has pulmonary epithelial cells that have a number of genetic defects which impair their function. The fact that a number of acquired infections and foreign body fine particles are known to effect the pulmonary epithelial surface producing further lung damage means that the novel corona virus is potentially the greatest threat in cystic fibrosis. However, I am unaware of studies to date which prove this relationship for cystic fibrosis as of yet.

Masks that protect are not at this time readily available. In Italy, the P100 and FFP3 masks are rated more protective than the N-95 masks and used for healthcare workers. A transparent whole face guard can also be effective. Social distancing to 6 feet, hand washing, alcohol hand sanitizer and Lysol object cleaner are quite effective. Masks and gloves that health care workers wear to protect themselves are what CF patients need to employ.

Protective measures for novel corona virus are constantly evolving. The cystic fibrosis patient and their families should take advantage of all methods for the prevention of acquiring this infection.”

With the newly established National Emergency declared by President Trump, we realize there are many individuals with CF and their families that may be severely physically and financially impacted. Most of the people who reach out to us for support through our Extended Hospital Stay Grant program are already living dangerously close to the poverty line. Most have only one parent who is able to work outside of the home and older CFers are living on SSDI.

Loss of work and isolation will make it very hard for these families and individuals to get the food, supplies and support they require.

Please consider donating to our “COVID-19 Emergency Fund” to help us manage this current hardship. If you know someone with Cystic Fibrosis, please consider donating at least $50 on their behalf. Let’s spread the word not the virus!

This is unprecedented territory for us, we hope that the greater community gives generously so we can make funds available for families in need as quickly as possible. We will be announcing how to refer a family for assistance by March 20, 2020. Please follow us on social channels at the bottom of this email and encourage other CF members to sign up for our newsletter on our website prior to this announcement.

We are here for you!

Melissa Yeager
Executive Director


What can you do to help our community?

  1. Spread the word: Even if you’re not a risk you can be a carrier. It may just be a cold for you but it could be a death sentence for someone with Cystic Fibrosis.
  2. Share our social graphics or posts.
  3. Donate to help us fortify our support programs. We anticipate a high volume of patients needing financial and emotional support during this outbreak.

Simplified Precaution List
These few simple precautions must be taken by ALL members of a CF household.