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Blog & Events

Save the Date

November 1, 2019

Clairity Ball ~ October 17, 2020

Click the image below to learn more about our sponsorship opportunities and sign up and receive Early Bird ticket information as soon as it’s released.

Blog & Events

CLAIRE YouTube Documentary

September 2, 2019

We are proud to announce the release of the documentary CLAIRE exclusively on YouTube. Directed by Oscar-winning filmmaker Nick Reed and Ryan Azevedo and Produced by Paul Foley, the film tells the story of Claire’s Place Foundation Founder Claire Wineland through interviews and footage, exploring her fight with CF and how she has inspired millions to find purpose and to live proudly.

Blog & Events

5th Annual Glow Ride for CF

August 7, 2019

Calling all Claire’s Place Foundation Supporters!

GET ON YOUR BIKES AND RIDE, let’s keep the Claire’s Glow Going!

Please join us for our 5th annual Glow Ride for Cystic Fibrosis on September 7, 2019. You can join us locally in Hermosa Beach, CA or for the first time ever you can join virtually. As a virtual rider, we are asking that everyone who participates helps us raise just $40 to support our Extended Hospital Stay Grant Program.

How do you do that you ask? It’s super easy! Follow the directions HERE and start your own virtual team today free of charge or register to join us in Hermosa Beach, CA. Each registered rider joining us in Hermosa Beach will receive a custom glow in the dark event tee with their $40 registration fee. And, each virtual team leader that raises just $40 will win a tee as a thank you gift – the tee’s will be shipped the last week of August so be sure to get your page up NOW!



Blog & Events

Amanda Jane Cooper and Carrie Manolakos bringing Oz to the Clairity Ball

June 1, 2019

Please join us for our First Annual Clairity Ball, an evening by the sea, celebrating the life and legacy of our late founder Claire Wineland. All proceeds will benefit families and individuals living with cystic fibrosis.

Photo Credit: Caitlin McNaney

Help us welcome two very special guests, Amanda Jane Cooper and Carrie Manolakos

We are thrilled to announce that Amanda Jane Cooper, who starred as Broadway’s 15th Anniversary Glinda in Wicked and Carrie Manolakos who starred as Elphaba in Wicked will be bringing Oz to the Clairity Ball by singing the meaningful song “For Good”. Prior to her 17-month run on Broadway in NYC, Amanda also toured as Glinda nationally from 2015-2017 and in 2011. You’ve seen her on some of your favorite TV shows like Glee, Jessie on Disney, CSI, Bones, Selfie and on NBC’s A Very Wicked Halloween this past October alongside Kristin Chenoweth and Idina Mendel as they all celebrated and sang for the 15th Anniversary special.

Carrie is a singer-songwriter and actress, she is perhaps best known for her stage work, on Broadway in Mamma Mia! as Sophie Sheridan, and on the second national tour of Wicked as Elphaba. She became an internet sensation after her cover of “Creep” by Radiohead went viral after it was picked up by Gawker, under the title “Eargasm“.

You can follow Carrie at @carriemanolakos and Amanda at @amandajanecoop

A very special THANK YOU to our dear friend Alice Issac for making this possible.

Held across from the beach at the Fairmont Miramar Hotel & Bungalows in Santa Monica, CA on Saturday, June 29th, this special evening will include passed hors d’oeuvres, cocktails and silent auction under a twinkle lit tree, celebrity guests, a sit down plated dinner, performances, awards and of course, lots of dancing. The evening will be anything but dull, in true Claire fashion.

We are thrilled to honor a few members of our extended family and community who have gone “above and beyond” in carrying Claire’s light and her legacy forward.

Justin Baldoni for his incredible work raising awareness for cystic fibrosis on a global level through his hugely successful directorial debut, Five Feet Apart.

Zappos for Good for their unending support of Claire both personally and professionally through Claire’s Place Playrooms and an upcoming project that we are so excited to share with all of you.

Vertex Pharmaceuticals, Inc. in acknowledgement of all of their scientific advances, as well as the wonderful programs and support they provide to our community on a daily basis.

Cole & Sanja Hatter of THRIVE: Make Money Matter for their continued support in sharing the message of Claire’s Place Foundation and for their incredible fundraising done since meeting Claire in 2016.

To find out more about our event and sponsorship opportunities, please visit the tab here on our site “Clairity Ball”

Blog & Events, Celebrity Friends, Press

Hear how Claire Wineland influenced actor Haley Lu Richardson

March 14, 2019

Haley Lu Richardson deeply committed to ‘Five Feet Apart’

By Rick Bentley, Tribune News Service

Haley Lu Richardson knows that with a casual glance “Five Feet Apart” looks like another angst-filled teen romance. It’s the story of two star-crossed teens who fall in love in a hospital. The angst comes from how they must stay 6 feet apart because both are suffering with cystic fibrosis (CF), which is extremely contagious between CF patients.

Cystic fibrosis is a life-threatening genetic disease that makes the body produce thick, sticky mucus in the lungs, pancreas and other organs. Approximately 30,000 people in the United States have CF. The film’s title comes from how Richardson’s character, Stella Grant, decides to defy CF rules and move a foot closer to Will Newman (Cole Sprouse), the young man who has captured her heart.

© Sthanlee B. Mirador/Sipa USA/TNS Haley Lu Richardson arrives at the “Five Feet Apart” Los Angeles Premiere held at the Fox Bruin Theatre in Westwood, CA on Thursday, March 7, 2019.

Richardson wants audiences of all ages to see “Five Feet Apart” as a universal story about unrequited love, the frailty of life and the imperative need for human conduct.
“One of the major reasons I like acting is so universally (is) just anyone can watch a movie and feel something. That means a lot to me,” Richardson says.
Richardson’s research to play the role included meeting with Claire Wineland, a CF patient whose nonprofit, Claire’s Place Foundation, supported and organized people with terminal and chronic illnesses. Before she died at the age of 21, Wineland was in the documentary series “My Last Days,” produced by “Jane the Virgin” star Justin Baldoni.
Baldoni, producer and director of “Five Feet Apart,” helped Richardson make contact with Wineland.

“She was so open and really wanted this film to do its job of representing her life and the life or real people with CF,” Richardson says. “She was such a wise human being.
“I did a lot of research and we had a CF nurse on set every day to get the medical stuff as accurate as possible. But, the most important thing was getting to spend time with Claire. She really taught me the emotional effect of CF on the child and the family.”

Richardson took all that knowledge and mixed it with her own thoughts of what Stella would be feeling. She concluded that Stella was dealing with a lot of guilt and pressure because of the dark cloud that hung over her and her parents from the day she was born.

The key to the film is Stella defying the cardinal rule of falling for Will. The connection is important to both, as Stella has lived a very regimented life through her battle with CF, while Will has resigned to the reality his days are extremely numbered and lives each day as if it could be his last.

Playing out the love story was easy for Richardson because of working with Sprouse (“Riverdale”).
“I was surprised and excited by the fact that Cole is a real artist and takes everything he does – whether it be acting or his photography – very seriously and he cares a lot,” Richardson says. “I also care to a fault about playing a character and so we both cared the same amount.
“When you have two people who are genuinely invested in doing the best they can do and bringing justice to these characters, then we could feed off each other and connect in these big moments.”

Part of Richardson’s focus when playing a role comes from her early days as a leading dancer with the Phoenix-based Cannedy Dance Company from 2001-2011. Her days as a dancer drove home the importance of training, rehearsal, hard work, determination and organization. These are all traits she brought to the acting world in projects such as “The Bronze,” “Ravenswood,” “The Chaperone,” “Recovery Road” and “Split.”
Stella has a master list of things she wants to do in her life, but Richardson doesn’t have such a document. She does have one thing she knows she would like to do and that is to star in a movie where dance isn’t just something the characters do. She wants dance to be used to tell the story. That’s a big hope for Richardson, but she’s never backed down from any test.