Additional Foundations that may help with some of the issues facing Cystic Fibrosis families
Barkann Foundation
https://thebarkannfoundation.org/
a. What they will help with: Rent, bills, will also sometimes consider other requests – they’re pretty open.
b. Any Qualifications: Generally children with long term illnesses but they are pretty good about making exceptions. Their website says they also help with “sudden death or illness of a parent or the loss of home due to fire, flood, or disaster.”
c. Application Process: email Mike Barns (executive director) at mike@thebarkannfoundation.org with a description of the family and what they need help with. He may request additional information if needed
Cherished Creations
http://www.cherishedcreations.org/
a. What they will help with: Technically a “wish/dream” organization but also do “special requests” intended to assist families in providing proper home care for a seriously ill child/young adult. They’ve helped with everything from adaptive tricycles, new furnaces, computers, to adaptive strollers.
b. Any Qualifications: Long list of qualifications on their website.
c. Application Process: Application located on their website – one application for requests under $500 and another one for over $500. Applications then go to the board for approval so it takes a while and could still be denied.
Erick J Umstead Memorial Foundation
http://www.ericksplace.org/ep/about-us
a. What they will help with: essentials of everyday life – utilities, rent, bills, etc.
b. Any Qualifications: chronically ill children
c. Application Process: contact via website?
*FYI: I am unclear if this foundation is still functioning
Final Farewell
http://www.finalfarewell.org/
a. What they will help with: Cost of funerals for children under age 18
b. Any Qualifications: Not that I am aware of
c. Application Process: Fill out the application on their website.
Fred Footsteps
https://fredsfootsteps.org/
a. What they will help with: Up to $10,000. Home modifications, bills, transportation costs, medical equipment.
b. Any Qualifications: Demonstrated relationship between child’s illness and family’s financial need, at least one caregiver must be employed, child must be younger than 18. Only specific counties (including Philadelphia)
c. Application Process: Application is on shared drive
Giving Angels Foundation
https://givingangelsfoundation.org/
a. What they will help with: up to $500 one-time grant.
b. Any Qualifications: Low income families, children under the age of 21 with any type of physical disability.
c. Application Process: Application is on their website – you will need to submit proof of family’s income. The board votes on applications approximately 1x/month.
Golden Slipper
a. What they will help with: Medical expenses not covered by insurance, glasses, hearing aids, medical equipment, essential furniture, safety repairs for home. Up to $500. Will usually NOT help with food or any ongoing bills (rent, utilities). Reportedly like to help with “out of the box” requests.
b. Any Qualifications: In addition to the application, a letter on letterhead must be submitted.
c. Application Process: Application is located on the Share drive and then email it to ngilberg@goldenslipper.org. The committee meets once a month and payments are sent to the third party, not the family.
J Foundation
http://jfoundationinc.org/
a. What they will help with: mortgages, utility bills, transportation, and other necessary expenses. Will also help with home modifications and funerals.
b. Any Qualifications: child must have “life-limiting illness”/terminal illness.
c. Application Process: Application is located on their website and saved on the share drive
Johnny’s Rainbow Foundation
a. What they will help with: Grant up to $250 to pay for therapeutic services, counseling services, daily living item, or equipment. (has done sensory equipment for children with autism)
b. Any Qualifications: Special Needs child
c. Application Process: application is saved on share drive – email completed application to Patrice@johnnysrainbowfoundation.org. Board meets quarterly to review grants
Joshua Harr Shane Foundation
https://joshuaharrshane.org/
a. What they will help with: mortgages, utilities, bills, equipment not covered by insurance, special therapeutic activities/programs.
b. Any Qualifications: Other than a serious medical diagnosis, not really
c. Application Process: Application is on their website and saved to the share drive. Email to joshuaharrshane@gmail.com along with bill/estimate and a letter on St. Chris Letterhead explaining diagnoses and current financial need.
Kelly Anne Dolan Memorial Fund
https://www.dolanfund.org/
a. What they will help with: Up to $500 per calendar year. Pays directly to third party – mortgage/rent, utilities, other bills. Also has a program in the summer to help families purchase an air conditioner – will send the family a gift card.
b. Any Qualifications: Current financial strain needs to be related to medical needs (ie. Mom is unable to work due to pt’s medical needs and appointments).
c. Application Process: Apply online – you must make an account first. Then you’ll be able to see all the patient’s you’ve requested for.
*One of the easiest foundations to request from – payments are approved and sent out fairly quickly!
Mary Kate’s Legacy Foundation
https://marykateslegacy.com/
a. What they will help with: Primarily help with adaptive equipment – van lift, stair glides, ramps, some medical equipment. Has helped with ipads to help with communication/learning. Sometimes able to accommodate “out of the box” requests if they aren’t too expensive
b. Any Qualifications: Special Needs child.
c. Application Process: Application is on their website. Parents must sign! Email completed application to marykateslegacy@verizon.net. For smaller requests, process seems to move pretty quickly.
Maximum Hope Foundation
www.maximumhopefoundation.org
a. What they will help with: rent, utility payments, groceries, and hospital travel expenses.
b. Any Qualifications: Any child diagnosed with a critical or life-limiting illness
c. Application Process: Very unclear on their website. They say they strive to provide aid within 48 hours. There is no application that I could see.
Parker’s Purpose Foundation
a. What they will help with: up to $1000 grant – family gets the money directly
b. Any Qualifications: 18 year old and under with a life altering illness or disability that is in an immediate financial crisis due to unforeseen medical expenses.
c. Application Process: Application is on the share drive and then mail application to: Parker’s Purpose, 1056 Hazel St, Fremont OH 43420
*Children from Ohio are prioritized but they accept applications from outside the state*
Pennies from Heaven – Caleb’s Foundation
http://calebspennies.org/
a. What they will help with: mortgage/rent, utilities, medical bills, groceries, transportation, and more.
b. Any Qualifications: Critically ill child, they prioritize children who are currently in the hospital (does not need to be cancer)
c. Application Process: Submit contact form online and they will get back to either the family or the social worker in two weeks. Can also try emailing calebspennies18@gmail.com
Sophie Jane Darr
http://www.sophiejanedarrchildrensfoundation.org/
a. What they will help with: rent/mortgage, utilities, other bills, ramps, chair lifts, etc.
b. Any Qualifications: Cancer or other life threatening illness
c. Application Process: email info@sophiejanedarrchildrensfoundation.org