What a wonderful turn of events for us here at Claire’s Place Foundation. As painful as it was to lose our dear founder, Claire Wineland, we find joy in helping others who are struggling with cystic fibrosis and know that Claire would be thrilled that the foundation she worked so hard to start will live on in her honor.
This is Amy, she is a young woman living with cystic fibrosis and a recent double lung transplant recipient. For her, being a young adult and financially responsible for herself, work and income were a huge issue due to her health decline. She recently left a full time position and had gained part time employment to accommodate her intense CF regimen and medical appointments but this job did not include sick leave or vacation time so her income suffered greatly.
In May, she was admitted to the hospital with a severe infection and placed in a medically induced coma to buy some time for the doctors to see if they could find her a lung donor to save her life. She waited in that state for a month, her family and medical team hoping and praying to find a match in time. Luckily, on Sunday June 17th, 2018 a match was found and Amy was given a double lung transplant, a new lease on life. The next 2 months were spent in patient and she was recently allowed to go home and begin the slow and steady recovery process.
We are happy to let you all know that through our Extended Hospital Stay Grant Program we have been able to help with her living expenses for the next 2 months so she can rest and recuperate post transplant.
Amy writes “Claire’s Place Foundation has been uniquely accommodating and understanding regarding the enormous financial strains having Cystic Fibrosis places on individuals and their support networks. In my experience it has proven willing to provide crucial financial support for expenses like rent that can be threatened by multiple, extended hospital stays (in my case it was over eighty-days in a row …). I am extremely grateful to Claire’s Place Foundation for providing critical support during a very uncertain time in my life – the need for a double lung transplant in the summer of 2018 was not at all something I anticipated, and threw my plans up in the air completely. Claire’s Place was so easy to work with and genuine in their willingness to help, it made a challenging, unpredictable situation easier. I’m beyond grateful for the chance to still be here, and will hopefully pay forward the kindness and support I’ve received from individuals and groups like CPF. ”
This grant is only possible because of our incredible donors and your support of people living with cystic fibrosis. We are eternally grateful for all of you and are sending our prayers and good wishes to Amy as she begins this next chapter in her young life.