Michaela and her husband have 2 young children with cystic fibrosis, both under the age of 3. Over the last year, they have had 6 combined hospital admissions making it very difficult for the family to keep up with monthly expenses coupled with extended hospital stay costs like food, housing, travel to their local hospital, and child care.
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It is not easy to keep a job or develop your career when you are constantly on the move from medical appointments and keeping up with treatments, but we are thrilled to see our program working for our extraordinary participants! Go, Keith!
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Year Two. Everyone knows year one after a loved one’s passing is going to be heartbreaking and excruciatingly difficult. And yes, it does get easier. Not easier because you miss them less, but easier because you have learned how to get up and keep going while you miss them.
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We think it’s important to show you where your donations are going and who every dollar impacts.
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The Emergency COVID-19 Fund will address the need in our CF community to cover costs of food insecurity, extensive medical and prescription drug co-pays during this pandemic due to isolation or loss of income.
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Tina has had 6 extended hospital stays this past year which put an incredible burden on the family both financially and emotionally. Our Extended Hospital Stay Grant Program is alive and well. It's hard at work in our community, thanks to our generous donors and supporters ~ Thank you all!
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Last year alone, Aiden spent just over 100 days in the hospital due to Cystic Fibrosis. This disease is an endeavor that involves the entire family and sometimes an entire community to manage.
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Claire’s vision and mission to help people living the day to day with cystic fibrosis is being realized in large and small ways across the country. This mother’s responses to our post-grant follow up tells her family’s story and how much the support meant to them.
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This is Amy, she is a young woman living with cystic fibrosis and a recent double lung transplant recipient. For her, being a young adult and financially responsible for herself, work and income were a huge issue due to her health decline.
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Meet Elijah - Extended Hospital Stay Grant Recipient
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Meet the K Family ~ Extended Hospital Stay Grant Recipients
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Meet Mason and Grayson ~ Extended Hospital Stay Grant Recipients
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