“Our nine year old daughter has CF. She has spent much of the last 6 years in the hospital. In 2018 she had a lobotomy of her upper right lobe, and since then has seen a steady decline in lung function. In the last year she has had countless admissions. We are holding on until she is eligible for Trikafta, in Hope's she will have similar results as her peers. We could use some support.”
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