Last year alone, Aiden spent just over 100 days in the hospital due to Cystic Fibrosis. This disease is an endeavor that involves the entire family and sometimes an entire community to manage.
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GET ON YOUR BIKES AND RIDE, let’s keep the Claire’s Glow Going!
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Claire’s vision and mission to help people living the day to day with cystic fibrosis is being realized in large and small ways across the country. This mother’s responses to our post-grant follow up tells her family’s story and how much the support meant to them.
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The inspiration behind Stella Grant’s beautifully decorated hospital room in the movie Five Feet Apart was Claire Wineland’s passion. Claire was all about creating safe and comfortable spaces in hospitals, mainly her own hospital room.
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This is Amy, she is a young woman living with cystic fibrosis and a recent double lung transplant recipient. For her, being a young adult and financially responsible for herself, work and income were a huge issue due to her health decline.
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Last night at 6:00pm, Claire Wineland our inspirational founder passed away. She was not in any pain and the medical staff said it was the most peaceful passing they had ever witnessed.
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