Claire’s Place Foundation has several families standing by as registered Support Families for newly diagnosed or isolated families looking for support. If you are interested in becoming a support family or are in need of a family to speak with, please send an email to Melissa@clairesplacefoundation.org and we will respond with more information.
Families seeking assistance will be offered support and information on how to work through the treatment and care process by other parent volunteers. Over the next 5 years, these programs may expand to include actual activities brought to the hospital for children and families to participate in, tool kits, local support groups for families and other groups for youth suffering of cystic fibrosis. Click HERE for further information and how to apply.
We understand the financial stress that can occur when children with cystic fibrosis have extended stays in the hospital, often in a city far from home. Claire’s Place Foundation, Inc. has set up a special cache of funds available to CF patients and families with CF children that are experiencing a hospital stay of at least 14 consecutive days or have experienced within the last calendar year.
If you or your family is in this extended stay position, please apply for financial assistance to help with mortgage, rent, utilities or any other basic necessities by asking your hospital worker to reach out to us by sending a letter of referral on your behalf. Once the letter is received, an application will be sent in reply to be forwarded to the family. The number and amount of assistance will be determined by the board of directors depending on the amount of funds available at the time the application and referral are received. Click HERE for further information and how to apply.