Families we have assisted

Meet Aiden – Extended Hospital Stay Grant Recipient

September 5, 2019

Last year alone, Aiden spent just over 100 days in the hospital due to Cystic Fibrosis. This disease is an endeavor that involves the entire family and sometimes an entire community to manage.

Aiden and his family were referred to us by their CF Center Social Worker at a time when they were barely holding on, even though both parents were juggling full time jobs and caring for 2 other children all while trying to spend as much time with Aiden during his hospitalizations.

Claire Wineland founded this organization because she saw a huge gap in care for families just like this, families who are working hard and doing everything they can possibly do but are still coming up short on monthly bills coupled with extensive hospital fees, especially during long hospital stays.

Aiden’s father writes “We are very grateful to everyone at Claire’s Place Foundation who understand what families with CF kids go through. It’s great to see that there is support for us and that helps us come closer together as a family. Very proud of Claire for providing happiness! We send many blessings your way

Thank you all for supporting this important program!

Blog & Events

CLAIRE YouTube Documentary

September 2, 2019

We are proud to announce the release of the documentary CLAIRE exclusively on YouTube. Directed by Oscar-winning filmmaker Nick Reed and Ryan Azevedo and Produced by Paul Foley, the film tells the story of Claire’s Place Foundation Founder Claire Wineland through interviews and footage, exploring her fight with CF and how she has inspired millions to find purpose and to live proudly.

Blog & Events

5th Annual Glow Ride for CF

August 7, 2019

Calling all Claire’s Place Foundation Supporters!

GET ON YOUR BIKES AND RIDE, let’s keep the Claire’s Glow Going!

Please join us for our 5th annual Glow Ride for Cystic Fibrosis on September 7, 2019. You can join us locally in Hermosa Beach, CA or for the first time ever you can join virtually. As a virtual rider, we are asking that everyone who participates helps us raise just $40 to support our Extended Hospital Stay Grant Program.

How do you do that you ask? It’s super easy! Follow the directions HERE and start your own virtual team today free of charge or register to join us in Hermosa Beach, CA. Each registered rider joining us in Hermosa Beach will receive a custom glow in the dark event tee with their $40 registration fee. And, each virtual team leader that raises just $40 will win a tee as a thank you gift – the tee’s will be shipped the last week of August so be sure to get your page up NOW!



Blog & Events

Amanda Jane Cooper and Carrie Manolakos bringing Oz to the Clairity Ball

June 1, 2019

Please join us for our First Annual Clairity Ball, an evening by the sea, celebrating the life and legacy of our late founder Claire Wineland. All proceeds will benefit families and individuals living with cystic fibrosis.

Photo Credit: Caitlin McNaney

Help us welcome two very special guests, Amanda Jane Cooper and Carrie Manolakos

We are thrilled to announce that Amanda Jane Cooper, who starred as Broadway’s 15th Anniversary Glinda in Wicked and Carrie Manolakos who starred as Elphaba in Wicked will be bringing Oz to the Clairity Ball by singing the meaningful song “For Good”. Prior to her 17-month run on Broadway in NYC, Amanda also toured as Glinda nationally from 2015-2017 and in 2011. You’ve seen her on some of your favorite TV shows like Glee, Jessie on Disney, CSI, Bones, Selfie and on NBC’s A Very Wicked Halloween this past October alongside Kristin Chenoweth and Idina Mendel as they all celebrated and sang for the 15th Anniversary special.

Carrie is a singer-songwriter and actress, she is perhaps best known for her stage work, on Broadway in Mamma Mia! as Sophie Sheridan, and on the second national tour of Wicked as Elphaba. She became an internet sensation after her cover of “Creep” by Radiohead went viral after it was picked up by Gawker, under the title “Eargasm“.

You can follow Carrie at @carriemanolakos and Amanda at @amandajanecoop

A very special THANK YOU to our dear friend Alice Issac for making this possible.

Held across from the beach at the Fairmont Miramar Hotel & Bungalows in Santa Monica, CA on Saturday, June 29th, this special evening will include passed hors d’oeuvres, cocktails and silent auction under a twinkle lit tree, celebrity guests, a sit down plated dinner, performances, awards and of course, lots of dancing. The evening will be anything but dull, in true Claire fashion.

We are thrilled to honor a few members of our extended family and community who have gone “above and beyond” in carrying Claire’s light and her legacy forward.

Justin Baldoni for his incredible work raising awareness for cystic fibrosis on a global level through his hugely successful directorial debut, Five Feet Apart.

Zappos for Good for their unending support of Claire both personally and professionally through Claire’s Place Playrooms and an upcoming project that we are so excited to share with all of you.

Vertex Pharmaceuticals, Inc. in acknowledgement of all of their scientific advances, as well as the wonderful programs and support they provide to our community on a daily basis.

Cole & Sanja Hatter of THRIVE: Make Money Matter for their continued support in sharing the message of Claire’s Place Foundation and for their incredible fundraising done since meeting Claire in 2016.

To find out more about our event and sponsorship opportunities, please visit the tab here on our site “Clairity Ball”

Press

My Last Days Follow Up Episode

May 3, 2019

In 2017, Claire had the incredible opportunity to share her story about living with cystic fibrosis on a show called My Last Days created by Soul Pancake and her long time friend Justin Baldoni which aired on The CW Network.

Creating the series with the other 5 individuals living with terminal illness led to long time, heart felt friendships and a sense of understanding between the group. Up until a few weeks before Claire’s passing, she was still in touch via group text with all of these very special human beings.

Watch here as Soul Pancake follows up with the 6 inspiring individuals spotlighted on season 2. Kendrick, Kat, Darth, Isabella and Jessica – we will always hold a special place in our hearts for you and please know that you remain in our thoughts and prayers.

Thank you Soul Pancake, Justin Baldoni, Wayfarer Entertainment and The CW for shining a light on these beautiful souls.