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Hear how Claire Wineland influenced actor Haley Lu Richardson

March 14, 2019

Haley Lu Richardson deeply committed to ‘Five Feet Apart’

By Rick Bentley, Tribune News Service

Haley Lu Richardson knows that with a casual glance “Five Feet Apart” looks like another angst-filled teen romance. It’s the story of two star-crossed teens who fall in love in a hospital. The angst comes from how they must stay 6 feet apart because both are suffering with cystic fibrosis (CF), which is extremely contagious between CF patients.

Cystic fibrosis is a life-threatening genetic disease that makes the body produce thick, sticky mucus in the lungs, pancreas and other organs. Approximately 30,000 people in the United States have CF. The film’s title comes from how Richardson’s character, Stella Grant, decides to defy CF rules and move a foot closer to Will Newman (Cole Sprouse), the young man who has captured her heart.

© Sthanlee B. Mirador/Sipa USA/TNS Haley Lu Richardson arrives at the “Five Feet Apart” Los Angeles Premiere held at the Fox Bruin Theatre in Westwood, CA on Thursday, March 7, 2019.

Richardson wants audiences of all ages to see “Five Feet Apart” as a universal story about unrequited love, the frailty of life and the imperative need for human conduct.
“One of the major reasons I like acting is so universally (is) just anyone can watch a movie and feel something. That means a lot to me,” Richardson says.
Richardson’s research to play the role included meeting with Claire Wineland, a CF patient whose nonprofit, Claire’s Place Foundation, supported and organized people with terminal and chronic illnesses. Before she died at the age of 21, Wineland was in the documentary series “My Last Days,” produced by “Jane the Virgin” star Justin Baldoni.
Baldoni, producer and director of “Five Feet Apart,” helped Richardson make contact with Wineland.

“She was so open and really wanted this film to do its job of representing her life and the life or real people with CF,” Richardson says. “She was such a wise human being.
“I did a lot of research and we had a CF nurse on set every day to get the medical stuff as accurate as possible. But, the most important thing was getting to spend time with Claire. She really taught me the emotional effect of CF on the child and the family.”

Richardson took all that knowledge and mixed it with her own thoughts of what Stella would be feeling. She concluded that Stella was dealing with a lot of guilt and pressure because of the dark cloud that hung over her and her parents from the day she was born.

The key to the film is Stella defying the cardinal rule of falling for Will. The connection is important to both, as Stella has lived a very regimented life through her battle with CF, while Will has resigned to the reality his days are extremely numbered and lives each day as if it could be his last.

Playing out the love story was easy for Richardson because of working with Sprouse (“Riverdale”).
“I was surprised and excited by the fact that Cole is a real artist and takes everything he does – whether it be acting or his photography – very seriously and he cares a lot,” Richardson says. “I also care to a fault about playing a character and so we both cared the same amount.
“When you have two people who are genuinely invested in doing the best they can do and bringing justice to these characters, then we could feed off each other and connect in these big moments.”

Part of Richardson’s focus when playing a role comes from her early days as a leading dancer with the Phoenix-based Cannedy Dance Company from 2001-2011. Her days as a dancer drove home the importance of training, rehearsal, hard work, determination and organization. These are all traits she brought to the acting world in projects such as “The Bronze,” “Ravenswood,” “The Chaperone,” “Recovery Road” and “Split.”
Stella has a master list of things she wants to do in her life, but Richardson doesn’t have such a document. She does have one thing she knows she would like to do and that is to star in a movie where dance isn’t just something the characters do. She wants dance to be used to tell the story. That’s a big hope for Richardson, but she’s never backed down from any test.

Blog & Events, Celebrity Friends

Andy Grammer Gives Back to Claire’s Place Foundation

March 5, 2019

Andy Grammer has released “Don’t Give Up On Me,” his new song from the upcoming film Five Feet Apart.

The song was first heard in the trailer for the movie, which stars Cole Sprouse and Haley Lu Richardson as two teenagers with cystic fibrosis who fall in love, despite being advised to keep a safe distance from each other for the sake of their health. The film is directed by Justin Baldoni, an old pal of Andy’s.

“’Don’t Give Up On Me,’ although a very simple concept – is truly a very powerful one,” Andy says in a statement. “I have had many moments in my life where I wouldn’t give up on someone else, where I believed in them when they didn’t believe in themselves.”

He adds, “Hell I’ve had SUPER intense moments where I wouldn’t give up on myself. But the most powerful memories from my personal vantage point are the ones when someone wouldn’t give up on me.”

A portion of the proceeds from the song will go to Claire’s Place Foundation, a non-profit providing support for children and families affected by cystic fibrosis. The foundation was named after Claire Wineland, who inspired Baldoni to make the film.

Five Feet Apart hits theaters March 15.

PURCHASE/DOWNLOAD/SHARE:  https://andygrammer.ffm.to/dontgiveuponme

 

Families we have assisted

Meet Amy ~ Extended Hospital Stay Grant Recipient

March 4, 2019

What a wonderful turn of events for us here at Claire’s Place Foundation.   As painful as it was to lose our dear founder, Claire Wineland, we find joy in helping others who are struggling with cystic fibrosis and know that Claire would be thrilled that the foundation she worked so hard to start will live on in her honor.

This is Amy, she is a young woman living with cystic fibrosis and a recent double lung transplant recipient.  For her, being a young adult and financially responsible for herself, work and income were a huge issue due to her health decline.  She recently left a full time position and had gained part time employment to accommodate her intense CF regimen and medical appointments but this job did not include sick leave or vacation time so her income suffered greatly.

In May, she was admitted to the hospital with a severe infection and placed in a medically induced coma to buy some time for the doctors to see if they could find her a lung donor to save her life.  She waited in that state for a month, her family and medical team hoping and praying to find a match in time.  Luckily, on Sunday June 17th, 2018 a match was found and Amy was given a double lung transplant, a new lease on life. The next 2 months were spent in patient and she was recently allowed to go home and begin the slow and steady recovery process.

We are happy to let you all know that through our Extended Hospital Stay Grant Program we have been able to help with her living expenses for the next 2 months so she can rest and recuperate post transplant.

Amy writes “Claire’s Place Foundation has been uniquely accommodating and understanding regarding the enormous financial strains having Cystic Fibrosis places on individuals and  their support networks. In my experience it has proven willing to provide crucial financial support for expenses like rent that can be threatened by multiple, extended hospital stays (in my case it was over eighty-days in a row …). I am extremely grateful to Claire’s Place Foundation for providing critical support during a very uncertain time in my life – the need for a double lung transplant in the summer of 2018 was not at all something I anticipated, and threw my plans up in the air completely. Claire’s Place was so easy to work with and genuine in their willingness to help, it made a challenging, unpredictable situation easier. I’m beyond grateful for the chance to still be here, and will hopefully pay forward the kindness and support I’ve received from individuals and groups like CPF. “

This grant is only possible because of our incredible donors and your support of people living with cystic fibrosis.  We are eternally grateful for all of you and are sending our prayers and good wishes to Amy as she begins this next chapter in her young life.

 

 

Blog & Events

7 Years Strong!

March 3, 2019

 

Founder, Claire Wineland 4.10.97 – 9.2.2018

The end of 2018 marks 7 years serving families, children and young adults living with cystic fibrosis. We are so very proud of our late founder Claire Wineland and the success of her foundation.

Claire founded Claire’s Place Foundation in 2011 following a life threatening medical crisis. She was inspired by the amount of support that our family received during her extended hospital stay and was determined to provide that support for others who may not have it otherwise. We are excited to celebrate 7 wonderful years and to continue her mission in her name.

In honor of this milestone, please consider making a year end donation in any increment of 7 or any amount including 7 as a way to acknowledge that her vision and her impact lives on 💥💫🤸‍♀️🎖🙌🦋🙏

Wishing you all a wonderful 2019 full of purpose!

Become the person that your younger self would have been inspired by” ~ Claire Wineland

 

 

Press

Seventeen Magazine Shares Andy Grammer’s Inspirational Video

February 22, 2019

Exclusive: Cole Sprouse and Haley Lu Richardson Are Totally in Love in Andy Grammer’s “Don’t Give Up on Me” Music Video
It’s the original song for Five Feet Apart!

By Tamara Fuentes
Feb 21, 2019


* Cole Sprouse and Haley Lu Richardson star in the new movie, Five Feet Apart, as cystic fibrosis patients who fall in love.
* Andy Grammer wrote the original song for the movie and is donating the proceeds to Claire’s Place.
* Seventeen is exclusively premiering the video featuring Cole and Haley.

 

 

Cole Sprouse and Haley Lu Richardson’s new movie, Five Feet Apart, is almost here and it’ll likely be the big romance movie that we’ve all been waiting for. The two of them play cystic fibrosis patients who have to stay six feet apart from each other at all times. Finally fed up with constantly being away from each other, they decide to stand one foot closer to each other and start to fall in love in the process.

Check out the music video below:

Andy Grammer wrote the movie’s theme song and created a music video all about Will and Stella’s relationship. Seventeen got to talk to Andy about writing the song, what it means to him, and what it was like to meet Cole.

17: What made you decide to write this song?
Andy Grammer: “I think it’s one of the most basic parts of being alive with other humans is not giving up on them when things get hard. Sticking with someone through the hard stuff. I love writing about that.”
17: Did you get to watch the movie beforehand to get some inspiration?
AG: “I LOVED the movie. Ugly cried in a hotel room when I saw one of the first cuts. It’s a beautiful story. I lost my mom 10 years ago to breast cancer so stories told in hospitals hit home a little extra hard for me. Perseverance through disease especially in the name of someone you love will always be inspiring.”
17: What’s your favorite lyric from the song and why?
AG: “‘Don’t give up on me.’ It’s such a simple statement and it’s definitely been said before, but damn it makes me feel. Saying that to someone else usually packs a pretty intense punch. It’s very simple but powerful.”
17: You’re donating a portion of the proceeds to Claire’s Place, an organization that helps families dealing with cystic fibrosis. Why did you decide on that charity?
AG: “One of my best friends, Justin Baldoni, is the director of the movie. He and Claire had such a close relationship and she was a major inspiration for the film. As a surprise to him and to honor her I decided to donate a portion of the proceeds to her foundation. Claire’s Place is a support system for families and patients dealing with Cystic Fibrosis.”
17: Were you a fan of Cole Sprouse beforehand and did you get to meet him as they were shooting the movie?
AG: “Of course. Are there people out there who aren’t fans of Cole Sprouse? I got to meet him in Los Angeles. He was amazing in this movie, I can’t wait for everyone to see it.”
17: How has the song/movie inspired you in your own life?
AG: “Honestly, since the song has come out, the most inspiring thing has been the incredibly touching responses. With a message like ‘don’t give up,’ there have been a lot of people telling me how they were about to give up on their relationships, dreams, on occasion even as dire as their own life when hearing this song and it kept them going. That is just completely amazing feedback to get, it will never get old hearing these stories.”