Many of the CF individuals and their families we serve are already living dangerously close to the poverty line, often with only one income earner in the home or living on SSDI if a young adult struggling with extensive health issues and trying to support themselves.
The Emergency COVID-19 Fund will address the need in our CF community to cover costs of food insecurity, extensive medical and prescription drug co-pays during this pandemic due to isolation or loss of income.
- If you are an individual with CF or a caregiver in this situation, please forward this page to your hospital worker and request that they refer you directly through the submission button below.
- This emergency cache of funds is limited to providing Visa gift cards to individuals with CF or their caregivers if food/medication availability issues arise due to lack of finances for the next month that are caused by the COVID-19 restrictions.
- The program will be available starting on 3/20 and will continue depending on funds available. If you are a supporter of our mission and have the means, please make even a small donation here to help us rise to this occasion.
- A hospital professional worker must submit a referral describing the financial need and diagnosis. This includes Social Workers, Doctors and Nurses.
- Patient or dependent must have a confirmed cystic fibrosis diagnosis
Once referral is approved, an application link will be sent to the patient at the email address provided in the referral.
- This fund will not cover mortgage, rent, bills, etc. If the patient has had a 14 consecutive day hospital stay in the last calendar year and needs assistance with those expenses, please visit our Extended Hospital Stay Grant program for more information.
Christina or “Tina” to her family and friends is a vibrant and precocious young lady living with cystic fibrosis. This last year has been especially difficult for her as she enters in to an experimental Phage Therapy for an aggressive multi drug resistant organism living in her lungs. There are many dangerous, antibiotic resistant bacteria affecting our CF community in the last 10 years and treatments are often times difficult, time consuming and uncomfortable. However, we are grateful for new Phage Therapy addressing these issues and hope that Tina has a wonderfully positive result.
This last year alone, Tina has had 6 extended hospital stays and those can put an incredible burden on the family both financially and emotionally. Our Extended Hospital Stay Grant Program is alive and well and hard at work in our community thanks to our donors and supporters ~ thank you all!
Tina’s mother writes “This grant brings so much relief to our family in this stressful time, especially around the holidays. We have spent months and months in the hospital and the stress that it brings is very hard on our family and it’s even harder during the holidays. This grant is such a blessing for us and takes so much weight off our shoulders. We will be forever grateful to Claire’s Place Foundation and all it’s donors for this wonderful gift!”
|NEW PRODUCTS ARE HERE! Just in time for the holidays…|
We are thrilled to announce 3 custom products memorializing Claire Wineland’s inspiring quotes! Check out all of our collections on our website under the ” Swag” tab
|P.S. These make GREAT stocking stuffers and Hanukkah gifts 🙂|
*All proceeds benefit people living with Cystic Fibrosis
Claire’s Place Foundation Welcomes New Board Members
Los Angeles, CA, 2019 (GLOBE NEWSWIRE) —
Claire’s Place Foundation, a non-profit organization providing support to children and families affected by cystic fibrosis, welcomes Richard K. Mathis, M.D. and Interior Design Firm Owner Rozalynn Woods to the organization’s board of directors.
“Dr. Mathis was a long-term caregiver and close friend to my dear daughter Claire and our entire family. He is deeply committed to the goals of enriching the lives of individuals with cystic fibrosis,” said Claire’s Place Foundation Co-Founder & Executive Director Melissa Yeager. “Rozalynn Woods has personal experience with cystic fibrosis in her family and has been instrumental in creating the designs for Claire’s Place Hospital Playrooms. Their professional and personal experiences with cystic fibrosis are a huge asset to the foundation. As extremely kindhearted individuals, Dr. Mathis and Ms. Woods have already contributed so much to the foundation. We are absolutely thrilled to have them both join our board of directors.”
Owner of Rozalynn Woods Interior Design, Woods’ designs have received extensive media coverage, including California Homes, Metropolitan Home, Pasadena Magazine and HGTV. She was recently awarded “Best Interior Designer” by Pasadena Weekly. “Cystic fibrosis is a disease that has become a personal experience for my family,” said Woods. “My nephew has cystic fibrosis and we have fought the fight alongside him. Having witnessed the devastation it causes, I feel compelled to help create awareness and raise money to fight this disease. Claire’s Place Foundation is the perfect avenue for me to do so.”
Dr. Mathis began working with patients with cystic fibrosis (CF) early in his career, caring for a full age range of patients with CF for over forty years in multiple hospitals nationwide. Within his practice he has developed novel approaches specific to CF nutrition and has participated in the consensus development of nutrition guidelines for CF at the Cystic Fibrosis Foundation. “I am deeply committed to the goals of enriching lives of individuals with cystic fibrosis,” said Dr. Mathis. “I have a great understanding of both the emotional and physical factors in this condition. The rewards of being elected to Claire’s Place Foundation’s board are many: an opportunity to give back; to share my knowledge with a wider CF community; to continue to honor Claire’s passion with efforts that represent my love for her; and to promote and help achieve triumph over this complex condition.”
The Claire’s Place Foundation board also re-elected NorthStar Moving Company Co-Founder Laura McHolm as the Chairman of the Board of Directors for another term. Claire’s Place Foundation Co-Founder & Executive Director Melissa Yeager, mother to Claire’s Place Foundation’s late founder Claire Wineland, was elected as a board member to represent the family on the board. McHolm and Yeager join Trish Dixon, Kathie David, Irwin Feinberg and David Gersholowitz in welcoming Dr. Richard Mathis and Rozalynn Woods to the board.
About Claire’s Place Foundation, Inc.
Claire’s Place Foundation, Inc. is a 501(c)(3) non-profit organization providing support to children and families affected by cystic fibrosis (CF). Claire’s Place Foundation is named in honor of Claire Wineland who lived with CF her entire life and passed away at the age of 21. Claire was an activist, author, TEDx Speaker, social media star, inspiration for the film Five Feet Apart and received numerous awards. Claire’s foundation was a way for her to assure that others living with CF enjoyed the same hope, strength and joy that she enjoyed. Recipient of Los Angeles Business Journal’s “Small Nonprofit of the Year,” the foundation provides grants to families affected by CF, offering both emotional and financial support. Today, Claire’s Place Foundation continues to carry on Claire’s legacy. For more information and make a donation, please visit www.clairesplacefoundation.org.
Carrie N Callahan
Claire’s Place Foundation