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Families we have assisted

Meet Aiden – Extended Hospital Stay Grant Recipient

September 5, 2019

Last year alone, Aiden spent just over 100 days in the hospital due to Cystic Fibrosis. This disease is an endeavor that involves the entire family and sometimes an entire community to manage.

Aiden and his family were referred to us by their CF Center Social Worker at a time when they were barely holding on, even though both parents were juggling full time jobs and caring for 2 other children all while trying to spend as much time with Aiden during his hospitalizations.

Claire Wineland founded this organization because she saw a huge gap in care for families just like this, families who are working hard and doing everything they can possibly do but are still coming up short on monthly bills coupled with extensive hospital fees, especially during long hospital stays.

Aiden’s father writes “We are very grateful to everyone at Claire’s Place Foundation who understand what families with CF kids go through. It’s great to see that there is support for us and that helps us come closer together as a family. Very proud of Claire for providing happiness! We send many blessings your way

Thank you all for supporting this important program!

Blog & Events

CLAIRE YouTube Documentary

September 2, 2019

We are proud to announce the release of the documentary CLAIRE exclusively on YouTube. Directed by Oscar-winning filmmaker Nick Reed and Ryan Azevedo and Produced by Paul Foley, the film tells the story of Claire’s Place Foundation Founder Claire Wineland through interviews and footage, exploring her fight with CF and how she has inspired millions to find purpose and to live proudly.

Blog & Events

5th Annual Glow Ride for CF

August 7, 2019

Calling all Claire’s Place Foundation Supporters!

GET ON YOUR BIKES AND RIDE, let’s keep the Claire’s Glow Going!

Please join us for our 5th annual Glow Ride for Cystic Fibrosis on September 7, 2019. You can join us locally in Hermosa Beach, CA or for the first time ever you can join virtually. As a virtual rider, we are asking that everyone who participates helps us raise just $40 to support our Extended Hospital Stay Grant Program.

How do you do that you ask? It’s super easy! Follow the directions HERE and start your own virtual team today free of charge or register to join us in Hermosa Beach, CA. Each registered rider joining us in Hermosa Beach will receive a custom glow in the dark event tee with their $40 registration fee. And, each virtual team leader that raises just $40 will win a tee as a thank you gift – the tee’s will be shipped the last week of August so be sure to get your page up NOW!



Blog & Events, Celebrity Friends, Press

Hear how Claire Wineland influenced actor Haley Lu Richardson

March 14, 2019

Haley Lu Richardson deeply committed to ‘Five Feet Apart’

By Rick Bentley, Tribune News Service

Haley Lu Richardson knows that with a casual glance “Five Feet Apart” looks like another angst-filled teen romance. It’s the story of two star-crossed teens who fall in love in a hospital. The angst comes from how they must stay 6 feet apart because both are suffering with cystic fibrosis (CF), which is extremely contagious between CF patients.

Cystic fibrosis is a life-threatening genetic disease that makes the body produce thick, sticky mucus in the lungs, pancreas and other organs. Approximately 30,000 people in the United States have CF. The film’s title comes from how Richardson’s character, Stella Grant, decides to defy CF rules and move a foot closer to Will Newman (Cole Sprouse), the young man who has captured her heart.

© Sthanlee B. Mirador/Sipa USA/TNS Haley Lu Richardson arrives at the “Five Feet Apart” Los Angeles Premiere held at the Fox Bruin Theatre in Westwood, CA on Thursday, March 7, 2019.

Richardson wants audiences of all ages to see “Five Feet Apart” as a universal story about unrequited love, the frailty of life and the imperative need for human conduct.
“One of the major reasons I like acting is so universally (is) just anyone can watch a movie and feel something. That means a lot to me,” Richardson says.
Richardson’s research to play the role included meeting with Claire Wineland, a CF patient whose nonprofit, Claire’s Place Foundation, supported and organized people with terminal and chronic illnesses. Before she died at the age of 21, Wineland was in the documentary series “My Last Days,” produced by “Jane the Virgin” star Justin Baldoni.
Baldoni, producer and director of “Five Feet Apart,” helped Richardson make contact with Wineland.

“She was so open and really wanted this film to do its job of representing her life and the life or real people with CF,” Richardson says. “She was such a wise human being.
“I did a lot of research and we had a CF nurse on set every day to get the medical stuff as accurate as possible. But, the most important thing was getting to spend time with Claire. She really taught me the emotional effect of CF on the child and the family.”

Richardson took all that knowledge and mixed it with her own thoughts of what Stella would be feeling. She concluded that Stella was dealing with a lot of guilt and pressure because of the dark cloud that hung over her and her parents from the day she was born.

The key to the film is Stella defying the cardinal rule of falling for Will. The connection is important to both, as Stella has lived a very regimented life through her battle with CF, while Will has resigned to the reality his days are extremely numbered and lives each day as if it could be his last.

Playing out the love story was easy for Richardson because of working with Sprouse (“Riverdale”).
“I was surprised and excited by the fact that Cole is a real artist and takes everything he does – whether it be acting or his photography – very seriously and he cares a lot,” Richardson says. “I also care to a fault about playing a character and so we both cared the same amount.
“When you have two people who are genuinely invested in doing the best they can do and bringing justice to these characters, then we could feed off each other and connect in these big moments.”

Part of Richardson’s focus when playing a role comes from her early days as a leading dancer with the Phoenix-based Cannedy Dance Company from 2001-2011. Her days as a dancer drove home the importance of training, rehearsal, hard work, determination and organization. These are all traits she brought to the acting world in projects such as “The Bronze,” “Ravenswood,” “The Chaperone,” “Recovery Road” and “Split.”
Stella has a master list of things she wants to do in her life, but Richardson doesn’t have such a document. She does have one thing she knows she would like to do and that is to star in a movie where dance isn’t just something the characters do. She wants dance to be used to tell the story. That’s a big hope for Richardson, but she’s never backed down from any test.

Blog & Events, Families we have assisted

Meet Maddox ~ Extended Hospital Stay Grant Recipient

February 14, 2018

Meet Maddox, a 7 month old new CF baby who was referred to us by his social worker at Children’s Healthcare of Atlanta Emory University Hospital.  Maddox has already spent a month in the hospital due to complications that can arise from this disease, leaving the family overwhelmed and exhausted trying to maintain their jobs and take care of an older sibling who does not have CF.  Oftentimes families will choose to have one parent stay home and care for the child but occasionally we see families where both parents must work in order to maintain their healthcare insurance costs and opportunities.  Cystic Fibrosis is a very difficult disease to qualify for private insurance and if a parent has group coverage through a job, it is something that they hold on to dearly.

Maddox’ family looked to us for assistance with their mortgage payment and a few outstanding hospital bills that were threatening collection involvement.  We were so grateful to be able to provide them with the assistance they needed to keep their heads above water and turn their attention to learning the ins and outs of raising a child with CF and all of the elaborate home treatment required. We will keep this family in our thoughts and hope that they will find a supportive CF community to help them along the road as we have.

Thank you so much, Claire’s Place Foundation, from the bottom of our hearts! There are not enough words to express our gratitude for this kindness. The weight that has been lifted off this Mom and Dad’s hearts is significant and truly appreciated.  Raising children is a daily challenge in itself and then you add in a Chronic disease, it truly takes a tribe. Thank you, again!”