“Sometimes the difference between stagnation and a life aligned with your values is just a shove in the right direction.” ~ Kyla Duffy
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Lance is at the beginning of his Work Proudly journey, exploring career possibilities designed to protect his health and build independence. This story is proudly supported by Viatris.
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With tax law changes coming in 2026, we’re sharing why 2025 may be a meaningful time to give, and how thoughtful timing can help your generosity go further for families impacted by cystic fibrosis.
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People ask me often how I keep going, how I stay hopeful, how I still show up for the cystic fibrosis community after everything our family has been through.
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It was not until I began working with the Extended Hospital Stay program that I realized how costly CF can be financially for individuals and their families.
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Proud to share that we’ve earned Candid’s Platinum Seal, thanks to the trust and support of our community
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Behind every grant is a real family trying to stay afloat through the challenges of cystic fibrosis. Elisabeth’s story is a powerful reminder of why this program matters. Read more about her journey.
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“We could take a moment of breath for ourselves.” ~ Amy, mother of Azaylee shares about her experience with our Extended Hospital Stay Grant and the impact it had on her family.
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A broken-down car, weeks in the hospital, and bills piling up. Learn how your kindness brought relief to Orvaughn’s family when life became too heavy.
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Meet Monica Fochtman, a volunteer career coach who helps our Work Proudly participants strengthen their resumes, build confidence, and discover meaningful remote work.
Read MoreWhen Five Feet Apart premiered just months after Claire’s passing, Haley Lu Richardson brought Claire’s spirit to life on screen—and their connection became the start of something beautiful. This month, Haley is once again giving back in Claire’s honor through a one-of-a-kind sweater sweepstakes and wardrobe pop-up to benefit Claire’s Place Foundation.
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Holidays in the hospital aren’t easy, but with a little creativity (and a lot of heart), they can still be magical.
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Kylie joined the Work Proudly Program hoping to find a healthier and more sustainable career after years of working as a hairstylist left her vulnerable to infections and financial setbacks. Today she has a new job, stronger confidence, and the peace of mind that comes with stability and benefits.
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For 47 years, Jamila has faced the daily challenges of living with cystic fibrosis. Thanks to an Extended Hospital Stay Grant from Claire’s Place Foundation, she was able to cover her rent during a difficult season of hospitalizations and focus on her recovery.
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When four-year-old Amora was hospitalized for cystic fibrosis complications, her self-employed parents suddenly faced the loss of income and mounting bills. Thanks to an Extended Hospital Stay Grant from Claire’s Place Foundation, they were able to keep their home secure and focus fully on Amora’s care and recovery.
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When Ariana was hospitalized for 15 days due to complications from cystic fibrosis, her single mom Joy faced the impossible challenge of caring for all three of her children while keeping up with bills.
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The story of CF treatment is one of remarkable transformation. Just a generation ago, CF care focused primarily on managing symptoms and slowing disease progression. Today, we have treatments that address the underlying cause of CF—the faulty CFTR protein—while continuing to perfect the supportive therapies that keep patients healthy day to day.
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Today, babies born with cystic fibrosis are living longer, healthier lives than ever before. Thanks to early detection through newborn screening and advancing treatments, children with CF can grow up to attend school, play sports, pursue careers, and build families of their own. Our founder, Claire Wineland, was living proof of this possibility—from her hospital bed, she built a global movement, founded our organization, and touched millions of lives.
If you're reading this because your baby has been diagnosed with CF, or you're supporting someone who has, know this: you're not alone, and this diagnosis doesn't define your child's limits—it reveals their strength before they even know they have it.
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Have you ever watched something that completely shifted how you see the world? At Claire's Place Foundation, we know the power of storytelling to heal, inspire, and transform lives.
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Have you considered how you can prepare yourself to live with cystic fibrosis in adulthood?
Tips from Linda Tirabassi-Mathis PhD RN CPNP CNS
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