Holidays in the hospital aren’t easy, but with a little creativity (and a lot of heart), they can still be magical.
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Kylie joined the Work Proudly Program hoping to find a healthier and more sustainable career after years of working as a hairstylist left her vulnerable to infections and financial setbacks. Today she has a new job, stronger confidence, and the peace of mind that comes with stability and benefits.
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For 47 years, Jamila has faced the daily challenges of living with cystic fibrosis. Thanks to an Extended Hospital Stay Grant from Claire’s Place Foundation, she was able to cover her rent during a difficult season of hospitalizations and focus on her recovery.
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When four-year-old Amora was hospitalized for cystic fibrosis complications, her self-employed parents suddenly faced the loss of income and mounting bills. Thanks to an Extended Hospital Stay Grant from Claire’s Place Foundation, they were able to keep their home secure and focus fully on Amora’s care and recovery.
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When Ariana was hospitalized for 15 days due to complications from cystic fibrosis, her single mom Joy faced the impossible challenge of caring for all three of her children while keeping up with bills.
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The story of CF treatment is one of remarkable transformation. Just a generation ago, CF care focused primarily on managing symptoms and slowing disease progression. Today, we have treatments that address the underlying cause of CF—the faulty CFTR protein—while continuing to perfect the supportive therapies that keep patients healthy day to day.
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Today, babies born with cystic fibrosis are living longer, healthier lives than ever before. Thanks to early detection through newborn screening and advancing treatments, children with CF can grow up to attend school, play sports, pursue careers, and build families of their own. Our founder, Claire Wineland, was living proof of this possibility—from her hospital bed, she built a global movement, founded our organization, and touched millions of lives.
If you're reading this because your baby has been diagnosed with CF, or you're supporting someone who has, know this: you're not alone, and this diagnosis doesn't define your child's limits—it reveals their strength before they even know they have it.
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Have you ever watched something that completely shifted how you see the world? At Claire's Place Foundation, we know the power of storytelling to heal, inspire, and transform lives.
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Have you considered how you can prepare yourself to live with cystic fibrosis in adulthood?
Tips from Linda Tirabassi-Mathis PhD RN CPNP CNS
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“In 2018, when my beloved daughter Claire Wineland passed away from cystic fibrosis, the torch she passed to me felt incredibly heavy,” Claire’s Place Foundation Executive Director Melissa Yeager. “At first, I wasn’t sure I could continue this work at Claire’s Place without her, but as time went on, I realized I couldn’t let her light go out. A heartfelt thank you to the Los Angeles Business Journal for honoring me with this award. It’s a recognition of the work we do, the dedicated support of my incredible team, and, most importantly, the strength and resilience of the cystic fibrosis community we are honored to serve.”
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Happy New Year! We are filled with gratitude for an extraordinary year and excitement for what’s to come. Your support has helped Claire’s Place Foundation achieve incredible milestones, and we can’t wait to share our plans for 2025!
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We support many families that have more than one child with cystic fibrosis.
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Losing a child to cystic fibrosis ~ A special Mother’s Day message from a supporter of Claire’s Place Foundation.
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Elisha, a resilient individual who has battled cystic fibrosis for 37 years, received a life-changing double lung transplant in July 2013. Following the transplant, Elisha embraced a relatively normal and independent lifestyle.
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Dr. Ingrid Clayton discusses the use of Somatic Experiencing to heal medical trauma in the cystic fibrosis community.
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Melissa Yeager will be honored with the Open Hearts Award at the Open Hearts Foundation Gala on February 17, 2024. This award is inspired by Jane Seymour's mother’s philosophy to turn adversity into an opportunity to help others, this award honors individuals who have risen above their own life challenges to truly help and reach out to others in need.
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Emmberlynn spent the first 6 months of her life in the hospital
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A view from inside an extended hospital stay
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